An analysis of personal medical information disclosed in youtube videos created by patients with multiple sclerosis

Studies in Health Technology and Informatics

Volumn 150, Issue , 2009, Pages 292-296

  Fernandez Luque, Luis ^a   Elahi, Najeed ^b   Grajales III, Francisco J ^c  

^a Northern Research Institute   (Norway)

^b UNIVERSITY HOSPITAL OF NORTH NORWAY   (Norway)

^c UNIVERSITY OF BRITISH COLUMBIA   (Canada)

Author keywords

Health information; Patient generated content; Privacy; Web 2.0; Youtube

Indexed keywords

BIOINFORMATICS; DATA PRIVACY;

HEALTH CARE PROFESSIONALS; HEALTH INFORMATIONS; MEDICAL INFORMATION; PATIENT-GENERATED CONTENT; PERSONAL HEALTH INFORMATIONS; PERSONAL MEDICAL INFORMATIONS; WEB 2.0; YOUTUBE;

DIAGNOSIS;

CONFERENCE PAPER; HUMAN; INTERNET; INTERPERSONAL COMMUNICATION; MULTIPLE SCLEROSIS;

HUMANS; INTERNET; MULTIPLE SCLEROSIS; TRUTH DISCLOSURE;

EID: 72249089205     PISSN: 09269630     EISSN: 18798365     Source Type: Book Series    
DOI: 10.3233/978-1-60750-044-5-292     Document Type: Conference Paper

References (10)

1. Andreassen, H.K., Bujnowska-Fedak, M.M., Chronaki, C.E., Dumitru, R.C., Pudule, I., Santana, S., Voss, H., Wynn, R. (2007) European citizens' use of e-health services: A study of seven countries. BMC Public Health 7: 53.
2. Luque, L.F., Basagoiti, I., Johnsen, E. et al. (2008) Study of the ePatient as a generator of health content in the Internet. In Eysenbach, G. (Ed.) Medicine 2.0 Proceedings, Toronto, Canada, 28-29.
3. Keelan, J., Pavri-Garcia, V., Tomlinson, G., Wilson, K. (2007) YouTube as a source of information on immunization: A content analysis. Journal of the American Medical Association 298(21): 2482-2484.
4. Burton, A. (2008) YouTube-ing your way to neurological knowledge. Lancet Neurology 7(12): 1086- 1087.
5. Bonander, J. (2008) Personally tailored health information: A health 2.0 approach. In Eysenbach, G. (Ed.) Medicine 2.0 Proceedings, Toronto, Canada, 12.
6. Sheth, A., Nagarajan, M. (2009) Semantics-empowered social computing. IEEE Internet Computing 13, 1: 76-80.
7. Burkow, T.M., Vognild, L.K., Krogstad, T., Borch, N., Ostengen, G., Bratvold, A., Risberg, M.J. (2008) An easy to use and affordable home-based personal eHealth system for chronic disease management based on free open source software. In Proceedings of MIE 2008, Studies in Health Technology and Informatics 136: 83-88.
8. th, 2008. http://www.insidefacebook.com/2008/07/29/ tracking-facebooks-2008-international-growth-by-country/(Archived by WebCite® at http://www.webcitation.org/5eILehtpM).
9. Berendt, B., Navigli, R. (2006) Finding your way through blogspace: Using semantics for cross-domain blog analysis. In Nicolov, N., Salvetti, F., Martin, J.H., Liberman, M. (Eds.) Proceedings of the AAAI 2006 Symposium on Computational Approaches to Analysing Weblogs, Stanford, Technical Report SS- 06-03, AAAI Press, Menlo Park, 1-8.
10. W3C Member Submission (2004) SWRL: A Semantic Web Rule Language Combining OWL and RuleML, http://www.w3.org/Submission/SWRL/.