Cancer survivorship: Research priorities at the national and international levels

Cancer Forum

Volumn 33, Issue 3, 2009, Pages 194-197

  Girgis, Afaf ^a   Butow, Phyllis ^b  

^a UNIVERSITY OF NEWCASTLE   (Australia)

^b UNIVERSITY OF SYDNEY   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

AUSTRALIA; CANCER DIAGNOSIS; CANCER RECURRENCE; CANCER RESEARCH; CANCER SURVIVAL; CANCER SURVIVOR; CANCER THERAPY; FOLLOW UP; HEALTH CARE; HUMAN; INSURANCE; LIFESTYLE; QUALITY OF LIFE; REVIEW;

EID: 71949099798     PISSN: 0311306X     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Review

References (38)

1. Hewitt M, Greenfield W, Stovall E, editors. From Cancer Patient to Cancer Survivor: Lost in Transition. Washington: The National Academies Press; 2005.
2. Office of Cancer Survivorship [Internet]. National Cancer Institute. Office of Cancer Survivorship - Researcher fact sheet [updated 2009 July 5; cited 2009 July 6]. Available from: http://cancercontrol.cancer.gov/ocs/ researcher-factsheet.pdf
3. Making the Cancer Survivorship Agenda a Reality: Report for Think Tank Event Participants [Internet]. National Cancer Research Institute; 2006 [cited 2009 July 6]. Available from: http://www.improvement.nhs.uk/cancer/documents/ Think-Tank-%20Event-%20Final-Report-for-paticipants.doc
4. Ristovski-Slijepcevic S. Environmental scan of cancer survivorship in Canada: Conceptualization, practice and research. Report prepared for ReBalance Focus Action Group, Canadian Partnership Against Cancer; 2008.
5. Cancer Journey Action Group of the Canadian Partnership Against Cancer. Canadian Invitational Cancer Survivorship Workshop: Creating an Agenda for Cancer Survivorship. March 25-26, 2008 Toronto, Ontario.
6. Identifying priorities for cancer survivorship research: Pan-Canadian Invitational Workshop, 2008 November 21-22 [Internet]. 2008 [cited 2009 July 6]. Available from: http://www.bccancer.bc.ca/NR/rdonlyres/E6F649B9-761C-4C51-89E0- C2F0834B8DCC/33186/ProceedingsSurvResNov212208FINAL1.pdf].
7. National Health Priority Council (NHPAC). National Improvement Framework for Cancer. Canberra: Australian Government Department of Health and Ageing; 2006.
8. Little M, Jordens CF, Paul K, Montgomery K, Philipson B. Liminality: a major category of the experience of cancer illness. Soc Sci Med. 1998;47:1485-1494 (Pubitemid 28482431)
9. Hodgkinson K, Butow P, Hunt GE, Pendlebury S, Hobbs KM, Lo SK, Wain G. The development and evaluation of a measure to assess cancer survivors' unmet supportive care needs: the CaSUN (Cancer Survivors' Unmet Needs measure). Psychooncology. 2007;16:796-804. (Pubitemid 47456238)
10. Hodgkinson K, Butow P, Hobbs KM, Hunt GE, Lo SK, Wain G. Assessing unmet supportive care needs in partners of cancer survivors: the development and evaluation of the Cancer Survivors' Partners Unmet Needs measure (CaSPUN). Psychooncology. 2007;16:805-813 (Pubitemid 47456239)
11. Boyes A, Girgis A, Lecathelinais C. Brief assessment of adult cancer patients' perceived needs: Development and validation of the 34-item Supportive Care Needs Survey (SCNS-SF34). J Eval Clin Pract. Forthcoming 2009.
12. Beatty L, Oxlad M, Koczwara B, Wade TD. The psychosocial concerns and needs of women recently diagnosed with breast cancer: a qualitative study of patient, nurse and volunteer perspectives. Health Expect. 2008;11:331-342
13. Beesley V, Eakin E, Steginga S, Aitken J, Dunn J, Battistutta D. Unmet needs of gynaecological cancer survivors: implications for developing community support services. Psychooncology. 2008;17:392-400.
14. Rainbird KJ, Perkins JJ, Sanson-Fisher RW. The Needs Assessment for Advanced Cancer Patients (NA-ACP): a measure of the perceived needs of patients with advanced, incurable cancer. a study of validity, reliability and acceptability. Psychooncology. 2005;14:297-306.
15. Jefford M, Karahalios E, Pollard A, Baravelli C, Carey M, Franklin J, et al. Survivorship issues following treatment completion - results from focus groups with Australian cancer survivors and health professionals. Journal of Cancer Survivorship. 2008;2:20-32.
16. Boyes A, Girgis A, Zucca A, Lecathelinais C. Anxiety and depression among long-term survivors of cancer in Australia: results of a population-based survey. Med J Aust. 2009;190:S94-S98.
17. Sanson-Fisher R, Girgis A, Boyes A, Bonevski B, Burton L, Cook P, the Supportive Care Review Group. The unmet supportive care needs of patients with cancer. Cancer. 2000;88:226-237
18. Vardy J, Wong K, Yi QL, Park A, Maruff P, Wagner L, et al. Assessing cognitive function in cancer patients. Support Care Cancer. 2006;14:1111-1118 (Pubitemid 44898793)
19. Falleti MG, Sanfilippo A, Maruff P, Weih L, Phillips KA. The nature and severity of cognitive impairment associated with adjuvant chemotherapy in women with breast cancer: a meta-analysis of the current literature. Brain Cogn. 2005;59:60-70. (Pubitemid 41405841)
20. Kilbreath SL, Refshauge KM, Beith JM, Ward LC, Simpson JM, Hansen RD. Progressive resistance training and stretching following surgery for breast cancer: study protocol for a randomised controlled trial. BMC Cancer. 2006;6:273.
21. Ryan M, Stainton MC, Jaconelli C, Watts S, MacKenzie P, Mansberg T. The experience of lower limb lymphedema for women after treatment for gynecologic cancer. Oncol Nurs Forum. 2003;30:417-423
22. Hayes S, Janda M, Cornish B, Battistutta D, Newman B. Lymphedema secondary to breast cancer: how choice of measure influences diagnosis, prevalence, and identifiable risk factors. Lymphology. 2008;41:18-28. (Pubitemid 351747151)
23. Donovan J, Hawes C, Borbasi S, Chapman Y, Filler N, O'Brien N, et al. Our interest is swelling: a collaborative venture to establish the world's first free public screening for lymphoedema. Collegian. 2002;9:i-iv.
24. Connell S, Patterson C, Newman B. A qualitative analysis of reproductive issues raised by young Australian women with breast cancer. Health Care Women Int. 2006;27:94-110. (Pubitemid 41780142)
25. Peate M, Meiser B, Hickey M, Friedlander M. The fertility-related concerns, needs and preferences of younger women with breast cancer: a systematic review. Breast Cancer Res Treat. 2009;116:215-223
26. Otlowski M, Barlow-Stewart K, Taylor S, Stranger M, Treloar S. Investigating genetic discrimination in the Australian life insurance sector: the use of genetic test results in underwriting, 1999-2003. J Law Med. 2007;14:367-396
27. Gordon L, Scuffham P, Hayes S, Newman B. Exploring the economic impact of breast cancers during the 18 months following diagnosis. Psychooncology. 2007;16:1130-1139 (Pubitemid 350302535)
28. Milne HM, Gordon S, Guilfoyle A, Wallman KE, Courneya KS. Association between physical activity and quality of life among Western Australian breast cancer survivors. Psychooncology. 2007;16:1059-1068 (Pubitemid 350302528)
29. Beesley VL, Eakin EG, Janda M, Battistutta D. Gynecological cancer survivors' health behaviors and their associations with quality of life. Cancer Causes Control. 2008;19:775-782
30. Brennan M, Butow P, Spillane A, Boyle F. Survivorship care after breast cancer. Aust Fam Physician. 2008;37:826-830
31. Karahoalios A, Baravelli C, Carey M, Schofield P, Pollard A, Aranda S, et al. An audiovisual information resource to assist in the transition from completion of potentially curative treatment for cancer through to survivorship: a systematic development process. Journal of Cancer Survivorship. 2007;1:226-236
32. Aranda S, Schofield P, Weih L, Milne D, Yates P, Faulkner R. Meeting the support and information needs of women with advanced breast cancer: a randomised controlled trial. Br J Cancer. 2006;95:667-673 (Pubitemid 44373479)
33. Clayton JM, Butow PN, Arnold RM, Tattersall MH. Fostering coping and nurturing hope when discussing the future with terminally ill cancer patients and their caregivers. Cancer. 2005;103:1965-1975
34. Hudson P, Quinn K, Kristjanson L, Thomas T, Braithwaite M, Fisher J, et al. Evaluation of a psycho-educational group programme for family caregivers in home-based palliative care. Palliat Med. 2008;22:2270-2280 (Pubitemid 351795932)
35. Currow DC, Plummer JL, Cooney NJ, Gorman D, Glare PA. A randomized, double-blind, multi-site, crossover, placebo-controlled equivalence study of morning versus evening once-daily sustained-release morphine sulfate in people with pain from advanced cancer. J Pain Symptom Manage. 2007;34:17-23. (Pubitemid 46970879)
36. Duggal P, Butow P, Eisenbruch M, Girgis A, Jefford M, Schofield P, et al. Unmet needs of cancer patients from Culturally and Linguistically Diverse (CALD) communities in Australia. COSA ASM 2008.
37. Girgis A, Boyes A, Sanson-Fisher R, Burrows S. Perceived needs of women diagnosed with breast cancer; rural versus urban location. Aust N Z J Public Health. 2000;24:166-173. (Pubitemid 30218925)
38. Condon JR, Armstrong BK, Barnes A, Cunningham J. Cancer in Indigenous Australians: a review. Cancer Causes Control. 2003;14:109-21.