"It shouldn't be something that's evil, it should be talked about": A phenomenological approach to epilepsy and stigma

Seizure

Volumn 18, Issue 10, 2009, Pages 665-671

  Kilinc S ^a   Campbell, C ^b  

^a TEESSIDE UNIVERSITY   (United Kingdom)

^b ZAYED UNIVERSITY   (United Arab Emirates)

Author keywords

Awareness; Epilepsy; Knowledge; Phenomenology; Qualitative research; Stigma

Indexed keywords

ADULT; ARTICLE; EPILEPSY; FEMALE; FOLLOW UP; HEALTH EDUCATION; HUMAN; INTERPERSONAL COMMUNICATION; INTERVIEW; KNOWLEDGE; MAJOR CLINICAL STUDY; MALE; MEDICAL RESEARCH; METHODOLOGY; PHENOMENOLOGY; PRIORITY JOURNAL; SOCIAL STATUS; STIGMA;

ADULT; ATTITUDE TO HEALTH; EPILEPSY; FEMALE; FOLLOW-UP STUDIES; HUMANS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; QUESTIONNAIRES; SELF CONCEPT; SOCIAL PERCEPTION; STEREOTYPING; YOUNG ADULT;

EID: 71549171721     PISSN: 10591311     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.seizure.2009.09.001     Document Type: Article

References (24)

1. Scambler G., and Hopkins A. Being epileptic: coming to terms with stigma. Sociology of Health and Illness 8 (1986) 26-43
2. Scambler G., and Hopkins A. Generating a model of epileptic stigma: the role of qualitative analysis. Social Science and Medicine 30 (1990) 1187-1194
3. Schneider J.W., and Conrad P. In the closet with illness: epilepsy, stigma potential and information control. Social Problems 28 1 (1980) 32-43
4. Goffman F. Stigma. Notes on the management of spoiled identity (1963), Simon and Schuster Inc.
5. Deaux K., and Ethier K.A. Negotiating social identity. In: Swim J.K., and Stanger C. (Eds). Prejudice. The target's perspective (1998), Academic Press
6. Jacoby A. Felt versus enacted stigma: a concept revisited. Evidence from a study of people with epilepsy in remission. Social Science and Medicine 38 2 (1994) 269-274
7. Paschal A.M., Ablah E., Wetta-Hall R., Molgaard C.A., and Liow K. Stigma and safe havens: a medical sociological perspective on African-American female epilepsy patients. Epilepsy and Behaviour 7 (2005) 106-115
8. Morrell M.J. Stigma and epilepsy. Epilepsy and Behaviour 3 (2002) S21-S25
9. Miller C.T., and Kaiser C.R. A theoretical perspective on coping with stigma. Journal of Social Issues 57 1 (2001) 73-92
10. Baker G.A. People with epilepsy: what do they know and understand, and how does this contribute to their perceived level of stigma. Epilepsy and Behaviour 3 (2002) S26-S32
11. Jacoby A., Gorry J., Gamble C., and Baker G.A. Public knowledge, private grief: a study of public attitudes to epilepsy in the United Kingdom and implications for stigma. Epilepsia 45 11 (2004) 1405-1415
12. Reno A.R., Fernandes P.T., Bell G.S., Sander J.W., and Li L.M. Stigma and attitudes on epilepsy. A study with secondary school students. Arquivos de Neuro-psiquiatria 65 Suppl. 1 (2007) 49-54
13. Scambler G. Re-framing stigma: felt and enacted stigma and challenges to the sociology of chronic and disabling conditions. Social Theory and Health 2 (2004) 29-46
14. Swim J.K., and Stanger C. Prejudice. The target's perspective (1998), Academic Press
15. Swim J.K., Cohen L.L., and Hyers L.L. Experiencing everyday prejudice and discrimination. In: Swim J.K., and Stanger C. (Eds). Prejudice. The target's perspective (1998), Academic Press
16. Pope C., and Mays N. Qualitative research: reaching the parts other methods cannot reach. An introduction to qualitative methods in health and health services research. The British Medical Journal 311 6996 (1995) 42-45
17. Byrne M.M. Understanding life experiences through a phenomenological approach to research. AORN Journal 73 4 (2001) 830-832
18. Smith J.A. Developing theory from case studies: self reconstruction and the transition to motherhood. In: Hayes N. (Ed). Doing qualitative analysis in psychology (1997), Psychology Press
19. Scambler G. Patient perceptions of epilepsy and of doctors who manage epilepsy. Seizure 3 (1994) 287-293
20. Flick U. An introduction to qualitative research (1998), Sage
21. Lincoln Y., and Guba E. In: Denzin N.K., and Lincoln Y.S. (Eds). The handbook of qualitative research (2000), Sage
22. Lemon N., and Taylor H. Caring in casualty: the phenomenology of nursing care. In: Hayes N. (Ed). Doing qualitative analysis in psychology (1997), Psychology Press
23. Link B.G., and Phelan J.C. Conceptualising stigma. Annual Review of Sociology 27 (2001) 363-385
24. Epilepsy Action. Epilepsy education information. www.epilepsy.org.uk/campaigns/awareness/primaryschools/.html; 2008.