Exercise capacity, quality of life, and daily activity in the long-term follow-up of patients with univentricular heart and total cavopulmonary connection

European Heart Journal

Volumn 30, Issue 23, 2009, Pages 2915-2920

  Müller, Jan ^a   Christov, Florian ^a   Schreiber, Christian ^a   Hess, John ^a   Hager, Alfred ^a  

^a TECHNICAL UNIVERSITY OF MUNICH   (Germany)

Author keywords

Congenital heart disease; Daily activity; Exercise capacity; Long term follow up; Quality of life; Total cavopulmonary connection

Indexed keywords

OXYGEN;

ACCELEROMETER; ADOLESCENT; ADULT; AGE DISTRIBUTION; AGED; ARTICLE; CARDIOPULMONARY EXERCISE TEST; CAVOPULMONARY CONNECTION; CHILD; CONSENSUS; DAILY LIFE ACTIVITY; EXERCISE; FEMALE; FOLLOW UP; HEART SINGLE VENTRICLE; HUMAN; MAJOR CLINICAL STUDY; MALE; MENTAL HEALTH; OXYGEN CONSUMPTION; PRIORITY JOURNAL; QUALITY OF LIFE; SCHOOL CHILD; SEX DIFFERENCE; SHORT FORM 36; UNITED KINGDOM;

ACTIVITIES OF DAILY LIVING; ADOLESCENT; ADULT; CHILD; EPIDEMIOLOGIC METHODS; EXERCISE TEST; EXERCISE THERAPY; EXERCISE TOLERANCE; FEMALE; HEART; HEART BYPASS, RIGHT; HEART DEFECTS, CONGENITAL; HEART VENTRICLES; HUMANS; MALE; MIDDLE AGED; POSTOPERATIVE CARE; QUALITY OF LIFE; YOUNG ADULT;

EID: 71549164641     PISSN: 0195668X     EISSN: 15229645     Source Type: Journal    
DOI: 10.1093/eurheartj/ehp305     Document Type: Article

References (23)

1. Diller GP, Dimopoulos K, Okonko D, Li W, Babu-Narayan SV, Broberg CS, Johansson B, Bouzas B, Mullen MJ, Poole-Wilson PA, Francis DP, Gatzoulis MA. Exercise intolerance in adult congenital heart disease: comparative severity, correlates, and prognostic implication. Circulation 2005;112:828-835.
2. Bjarnason-Wehrens B, Dordel S, Schickendantz S, Krumm C, Bott D, Sreeram N, Brockmeier K. Motor development in children with congenital cardiac diseases compared to their healthy peers. Cardiol Young 2007:1-12.
3. Telama R, Yang X, Viikari J, Välimäki I, Wanne O, Raitakari O. Physical activity from childhood to adulthood: a 21-year tracking study. Am J Prev Med 2005;28: 267-273.
4. Fredriksen PM, Ingjer E, Thaulow E. Physical activity in children and adolescents with congenital heart disease. Aspects of measurements with an activity monitor. Cardiol Young 2000;10:98-106.
5. McCrindle BW, Williams RV, Mital S, Clark BJ, Russell JL, Klein G, Eisenmann JC. Physical activity levels in children and adolescents are reduced after the Fontan procedure, independent of exercise capacity, and are associated with lower perceived general health. Arch Dis Child 2007;92:509-514.
6. Gibbons RJ, Balady GJ, Bricker JT, Chaitman BR, Fletcher GF, Froelicher VF, Mark DB, McCallister BD, Mooss AN, O'Reilly MG, Winters WL Jr, Antman EM, Alpert JS, Faxon DP, Fuster V, Gregoratos G, Hiratzka LF, Jacobs AK, Russell RO, Smith SC Jr. ACC/AHA 2002 guideline update for exercise testing: summary article: a report of the American College of Cardiology/American Heart Association Task Force on Practice Guidelines (Committee to Update the 1997 Exercise Testing Guidelines). Circulation 2002;106:1883-1892.
7. Washington RL, Bricker JT, Alpert BS, Daniels SR, Deckelbaum RJ, Fisher EA, Gidding SS, Isabel Jones J, Kavey RE, Marx GR. Guidelines for exercise testing in the pediatric age group. From the Committee on Atherosclerosis and Hypertension in Children, Council on Cardiovascular Disease in the Young, the American Heart Association. Circulation 1994;90:2166-2179.
8. Cooper CB, Storer TW. Exercise Testing and Interpretation; A Practical Approach. Cambridge University Press; 2001. p278.
9. Cooper DM, Weiler-Ravell D. Gas exchange response to exercise in children. Am Rev Respir Dis 1984;129:S47-S48.
10. Hager A, Hess J. Comparison of health related quality of life with cardiopulmon-ary exercise testing in adolescents and adults with congenital heart disease. Heart 2005;91:517-520.
11. Bullinger M. German translation and psychometric testing of the SF-36 Health Survey: preliminary results from the IQOLA Project. International Quality of Life Assessment. Soc Sci Med 1995;41:1359-1366.
12. Bullinger M, Kirchberger I. SF-36, Fragebogen zum Gesundheitszustand, Handanwei-sung. Göttingen: Hogrefe; 1998.
13. Landgraf J, Abetz L, Ware J. The CHQ User's Manual. Boston: HealthAct; 1999.
14. Rowlands AV, Thomas PW, Eston RG, Topping R. Validation of the RT3 triaxial accelerometer for the assessment of physical activity. Med Sci Sports Exerc 2004;36:518-524.
15. Pate RR, Freedson PS, Sallis JF, Taylor WC, Sirard J, Trost SG, Dowda M. Compliance with physical activity guidelines: prevalence in a population of children and youth. Ann Epidemiol 2002;12:303-308.
16. Gratz A, Hess J, Hager A. Self-estimated physical functioning poorly predicts actual exercise capacity in adolescents and adults with congenital heart disease. Eur Heart J 2009;30:497-504.
17. Giardini A, Hager A, Napoleone CP, Picchio FM. Natural history of exercise capacity after the Fontan operation: a longitudinal study. Ann Thorac Surg 2008; 85:818-821.
18. Azakie A, McCrindle BW, Van Arsdell G, Benson LN, Coles J, Hamilton R, Freedom RM, Williams WG. Extracardiac conduit versus lateral tunnel cavopul-monary connections at a single institution: impact on outcomes. J Thorac Cardio-vasc Surg 2001;122:1219-1228.
19. Dilawar M, Bradley S, Saul J, Stroud M, Balaji S. Sinus node dysfunction after intraatrial lateral tunnel and extracardiac conduit Fontan procedures. Pediatr Cardiol 2003;24:284-288.
20. Nakano T, Kado H, Ishikawa S, Shiokawa Y, Ushinohama H, Sagawa K, Fusazaki N, Nishimura Y, Tanoue Y, Nakamura T, Ueda Y. Midterm surgical results of total cavopulmonary connection: clinical advantages of the extracardiac conduit method. J Thorac Cardiovasc Surg 2004;127:730-737.
21. Massin MM, Hovels-Gurich HH, Gerard P, Seghaye MC. Physical activity patterns of children after neonatal arterial switch operation. Ann Thorac Surg 2006;81: 665-670.
22. Sallis JF. Epidemiology of physical activity and fitness in children and adolescents. Crit Rev Food Sci Nutr 1993;33:403-408.
23. Reybrouck T, Mertens L. Physical performance and physical activity in grown-up congenital heart disease. Eur J Cardiovasc Prev Rehabil 2005;12:498-502.