Indigenous research: A commitment to walking the talk. The Gudaga study-an Australian case study

Journal of Bioethical Inquiry

Volumn 6, Issue 4, 2009, Pages 467-476

  Knight, Jennifer A ^a   Comino, Elizabeth J ^a   Harris, Elizabeth ^a   Jackson Pulver, Lisa ^a  

^a UNIVERSITY OF NEW SOUTH WALES   (Australia)

Author keywords

Indigenous populations

Indexed keywords

EID: 71549149408     PISSN: 11767529     EISSN: 18724353     Source Type: Journal    
DOI: 10.1007/s11673-009-9186-x     Document Type: Article

References (30)

1. Anderson, I., R. Griew, and D. McAullay. 2003. Ethics guidelines, health research and Indigenous Australians. New Zealand Bioethics Journal 4: 20-29.
2. Australian Health Ministers' Advisory Council's Standing Committee on Aboriginal and Torres Strait Islander Health Working Party. 2004. Cultural respect framework for Aboriginal and Torres Strait Islander health, 2004-2009. Adelaide: South Australian Department of Health.
3. Australian Institute of Aboriginal and Torres Strait Islander Studies. 2000. Guidelines for ethical research in Indigenous studies. Canberra: Australian Institute of Aboriginal and Torres Strait Islander Studies.
4. Australian Institute of Health and Welfare. 2002. Australia's health 2002. Canberra: AIHW.
5. Australian Institute of Health and Welfare. 2008. The health and welfare of Australia's Aboriginal and Torres Strait Islander peoples 2008, vol. Cat. No. IHW 21. Canberra: AIHW.
6. Australian Institute of Health and Welfare. 2009. A picture of Australia's children 2009, vol. Cat. No. PHE 112. Canberra: AIHW.
7. Canadian Institutes of Health Research. 2007. Guidelines for health research involving Aboriginal people. Ottawa: Canadian Institutes of Health Research.
8. Comino, E., P. Craig, E. Harris, D. McDermott, M. Harris, R. Henry, L. Jackson Pulver, L. Kemp, and J. Knight. 2009. The Gudaga study: Establishing an aboriginal birth cohort in an urban community. Australian and New Zealand Journal of Public Health. Forthcoming.
9. Cooperative Research Centre for Aboriginal and Tropical Health. 2001. Research partnerships: Yarning about research with Indigenous people. Darwin: Cooperative Research Centre for Aboriginal and Tropical Health.
10. Cunningham, C., J. Reading, and S. Eades. 2003. Health research and indigenous health. British Medical Journal 327: 445-447.
11. Dunbar, T. and M. Scrimgeour. 2003. Ethics in Indigenous research-connecting with community. Journal of Bioethical Inquiry 3: 179-185.
12. Dunbar, T. and M. Scrimgeour. 2005. Ethical assessment of Indigenous health research: A review of the literature. Melbourne: Onemda VicHealth Koor Health Unit.
13. Gillam, L. and P. Pyett. 2003. A commentary on the NH& MRC draft values and ethics in Aboriginal and Torres Strait Islander health research. Monash Bioethics Review 22: 8-19.
14. Gower, G. 2003. Ethical research in indigenous contexts and the practical implementation of it: Guidelines for ethical research versus the practice of research. Paper read at Joint AARE/NZARE conference. Auckland, New Zealand, 29 November-3 December 2003.
15. Grove, N., M. Brough, C. Canuto, and A. Dobson. 2003. Aboriginal and Torres Strait Islander health research and the conduct of longitudinal studies: Issues for debate. Australia and New Zealand Journal of Public Health 27: 637-641.
16. Health Research Council of New Zealand. 1998. Guidelines for researchers on health research involving Maori. Auckland: Health Research Council of New Zealand.
17. Humphery, K. 2003. Setting the rules: The development of the NHMRC Guidelines on ethical matters in Aboriginal and Torres Strait Islander health research. New Zealand Bioethics Journal 4: 14-19.
18. Leeds, K., M. Gourley, P. Laws, J. Zhang, F. Al-Yaman, and E. A. Sullivan. 2007. Indigenous mothers and their babies, Australia 2001-2004. Canberra: Australian Institute of Health and Welfare.
19. Lehmann, D., A. Arumugaswamy, D. Elsbury, J. Finucane, et al. 2008. The Kalgoorlie Otitis media research project: Rationale, methods, population characteristics and ethical considerations. Paediatric and Perinatal Epidemiology 22: 60-71.
20. McKendrick, J. and P. Aratukutuku Bennett. 2003. The ethics of health and indigenous research. Monash Bioethics Review 22: 20-25.
21. National Health and Medical Research Council. 2002. The NHMRC Roadmap: A strategic framework for improving Aboriginal and Torres Strait Islander health through research. Canberra: Commonwealth of Australia.
22. National Health and Medical Research Council. 2003. Values and ethics: Guidelines for ethical conduct in Aboriginal and Torres Strait Islander health research. Canberra: Commonwealth of Australia.
23. National Health and Medical Research Council. 2005. Keeping research on track. A guide for Aboriginal and Torres Strait Islander peoples about health research ethics. Canberra: Commonwealth of Australia.
24. National Health and Medical Research Council. 2008. Review of the NHMRC Road Map: A strategic framework for improving Aboriginal and Torres Strait Islander health through research. http://www. nhmrc. gov. au/guidelines/consult/consultations/review_of_NHMRC_roadmap. htm. Accessed on 3 August 2009.
25. Pyett, P. 2002. Working together to reduce health inequalities: Reflections on a collaborative participatory approach to health research. Australian and New Zealand Journal of Public Health 26: 332-336.
26. Read, A. W., J. Gibbins, F. J. Stanley, and P. Morich. 1994. Hospital admissions before the age of 2 years in Western Australia. Archives of Diseases in Childhood 70: 205-210.
27. Rousham, E. K. and M. Gracey. 1997. Persistent growth faltering among Aboriginal infants and young children in north-west Australia: A retrospective study from 1969 to 1993. Acta Paediatrica 86: 26-50.
28. Sayers, S. and J. R. Powers. 1993. Birth size of Australian Aboriginal babies. Medical Journal of Australia 159: 586-591.
29. Smith, L. 1999. Decolonizing methodologies: Research and indigenous peoples. Dunedin: University of Otago.
30. Thomson, N. 2005. Cultural respect and related concepts: A brief summary of the literature. Australian Indigenous Health Bulletin 5: 1-11.