Revisiting therapy assumptions in children's rehabilitation: Clinical and research implications

Disability and Rehabilitation

Volumn 31, Issue 17, 2009, Pages 1446-1453

  Gibson, Barbara E ^a,b   Darrah, Johanna ^c   Cameron, Deb ^a   Hashemi, Goli ^d   Kingsnorth, Shauna ^b   Lepage, Cline ^e   Martini, Rose ^f   Mandich, Angela ^g   Menna Dack, Dolly ^h  

^a UNIVERSITY OF TORONTO   (Canada)

^b University of Toronto   (Canada)

^c UNIVERSITY OF ALBERTA   (Canada)

^d BAYLOR HEALTH CARE SYSTEM   (United States)

^e Quebec Rehabilitation Institute   (Canada)

^f UNIVERSITY OF OTTAWA   (Canada)

^g UNIVERSITY OF WESTERN ONTARIO   (Canada)

^h HOLLAND BLOORVIEW KIDS REHABILITATION HOSPITAL   (Canada)

Author keywords

Children with disabilities; Ethics; Quality of life; Rehabilitation

Indexed keywords

ADOLESCENT; CHILD; CHILD CARE; DEVELOPMENTAL DISORDER; DISABILITY; EARLY INTERVENTION; ETHICS; FAMILY; HUMAN; INTERNATIONAL CLASSIFICATION OF FUNCTIONING, DISABILITY AND HEALTH; LIFE SATISFACTION; LIFESPAN; MOTOR DYSFUNCTION; NOTE; OCCUPATIONAL THERAPY; OUTCOME ASSESSMENT; PARENT; PATIENT CARE; PATIENT SATISFACTION; PHYSICAL PERFORMANCE; PHYSIOTHERAPY; PRIORITY JOURNAL; QUALITY OF LIFE; REHABILITATION CARE; REHABILITATION CENTER; TREATMENT INDICATION; TREATMENT PLANNING; WELLBEING;

ADOLESCENT; CHILD; DISABLED CHILDREN; ETHICS, PROFESSIONAL; HUMANS; NEEDS ASSESSMENT; PATIENT SATISFACTION; QUALITY OF LIFE; REHABILITATION;

EID: 70849117733     PISSN: 09638288     EISSN: 14645165     Source Type: Journal    
DOI: 10.1080/09638280802621390     Document Type: Note

References (50)

1. Bottos M, Bolcati C, Sciuto L, Ruggeri C, Feliciangeli A. Powered wheelchairs and independence in young children with tetraplegia. Dev Med Child Neurol 2001;43:769-777.
2. Helders PJM, Engelbert RHH, Gulmans VAN, Van Der Net J. Paediatric rehabilitation. Disabil Rehabil 2001;23:497.
3. Law M, Darrah J, Pollock N, Rosenbaum P, Russell D, Walter SD. Focus on function - a randomized controlled trial comparing two rehabilitation interventions for young children with cerebral palsy. BMC Pediatrics 2007;7:31.
4. Wiart L, Darrah J. Changing philosophical perspectives on the management of children with physical disabilities - their effect on the use of powered mobility. Disabil Rehabil 2002;24:492-498.
5. Lincoln Y, Denzin N. Epilogue: the eight and ninth moments - qualitative research in/and the fractured future. In: Denzin NK, Lincoln YS, editors. Handbook of qualitative research, 3rd ed. Thousand Oaks, CA: Sage; 2005. pp 1115-1126.
6. Molke D, Laliberte-Rudman D, Polatajko H. The promise of occupational science: a developmental assessment of an emerging academic discipline. Can J Occup Ther 2005;71: 269-281.
7. Iwama M. Kawa (river) model: nature, life flow, the power of culturally relevant occupational therapy. In: Kronenberg F, Algado S, Pollard N, editors. Occupational therapy without borders: learning from the spirit of survivors. Edinburgh: Elsevier, Churchill Livingstone; 2005. pp 213-227.
8. Kronenberg F, Algado S, Pollard N. Occupational therapy without borders: learning from the spirit of survivors. Edinburgh: Elsevier, Churchill Livingstone; 2005.
9. Gentile AM. The nature of skill acquisition: therapeutic implications for children with movement disorders. Med Sports Sci 1992;36:31-40.
10. Damiano D. Activity, activity, activity: rethinking our physical therapy approach to cerebral palsy. Phys Ther 2006;86:1534-1540.
11. Helders PJ, Engelbert RH, Custers JW, Gorter JW, Takken T, & Van Der Net J. Creating and being created: The changing panorama of paediatric rehabilitation. Pediatric Rehabil 2003;6:5-12.
12. World Health Organization. International classification of functioning, disability and health. Geneva: World Health Organization; 2001.
13. Butler C. Effects of powered mobility on self-initiated behaviours of very young children with locomotor disability. Dev Med Child Neurol 1986;28:325-332.
14. Davis CM. Patient-practitioner interaction: an experiential manual for developing the art of health care, 3rd ed. Thorofare, NJ: Slack; 1998.
15. Raina P, O'Donnell M, Schwellnus H, Rosenbaum P, King G, Brehaut J, Russell D, Swinton M, King S, Wong M, Walter SD, Wood E. Caregiving process and caregiver burden: Conceptual models to guiDe research and practice. BMC Pediatrics 2004;4:1.
16. Nelson AM. A metasynthesis: mothering other-than-normal children. Qual Health Res 2002;12:515.
17. Priestly M. Childhood disability and disabled childhoods: agendas for research. Childhood 1998;5:207-223.
18. Bailey DB, Bruer JT, Symons FJ, Luchtman JW. Critical thinking about critical periods. Baltimore: Paul H. Brooks; 2001.
19. Giangreco MF. Related services decision-making: a foundation component of effective education for students with disabilities. Occup Phys Ther Educ Environ 1995;15:47-67.
20. Meisels SJ, Shonkoff JP. Early childhood intervention: a continuing education. Handbook of early childhood intervention. Cambridge, U.K: Cambridge University Press; 2000. pp 3-31.
21. Stevenson CJ, Pharoah PO, Stevenson R. Cerebral palsy - the transition from youth to adulthood. Dev Med Child Neurol 1997;39:336-343.
22. Marn LM, Koch LC. The major tasks of adolescence: implications for transition planning with youths with cerebral palsy. Work: J Prevent, Assess Rehabil 1999;13:51-58.
23. Hauser-Cram P, Krauss MW. Adolescents with developmental disabilities and their families. In: Lerner RM, Steinberg L, editors. Handbook of adolescent psychology, 2nd ed. Hoboken, NJ: Wiley; 2004. pp 697-719.
24. Turk MA, Geremski CA, Rosenbaum PF, Weber RJ. The health status of women with cerebral palsy. Arch Phys Med Rehabil 1997;78:S10-S17.
25. Bottos M, Feliciangeli A, Sciuto L, Gericke C, Vianello A. Functional status of adults with cerebral palsy and implications for treatment of children. Dev Med Child Neurol 2001;43:516-528.
26. Stewart DA, Law MC, Rosenbaum P, Willms DG. A qualitative study of the transition to adulthood for youth with physical disabilities. Phys Occup Ther Pediatrics 2001;21:3-21.
27. Gibson BE, Young NL, Upshur REG, McKeever P. Men on the margin: a Bourdieusian examination of living into adulthood with muscular dystrophy. Soc Sci Med 2007;65:505-517.
28. Schneider JW, Gurucharri LM, Gutierrez AL, Gaebler-Spira D. Health-related quality of life and functional outcome measures for children with cerebral palsy. Dev Med Child Neurol 2001;43:601-608.
29. Walkerdine V. Beyond developmentalism. Theory Psychol 1993;3:451-469.
30. Young B, Rice H, Dixon-Woods M, Colver AF, Parkinson KN. A qualitative study of the health-related quality of life of disabled children. Dev Med Child Neurol 2007;49:660-665.
31. Rosenbaum PL, Livingston MH, Palisano RJ, Galuppi BE, Russel DJ. Quality of life and health-related quality of life of adolescents with cerebral palsy. Dev Med Child Neurol 2007;49:516-521.
32. Livingston MH, Rosenbaum PL, Russell DJ, Palisano RJ. Quality of Life among adolescents with cerebral palsy: what does the literature tell us? Dev Med Child Neurol 2007; 49:225-231.
33. King GA, Cathers T, Polgar JM, MacKinnon E, Havens L. Success in life for older adolescents with cerebral palsy. Qual Health Res 2000;10:734-749.
34. Hunt SM. The problem of quality of life. Qual Life Res 1997;6:205-212.
35. Lepage A, Hunt S. The problem of quality of life in medicine. J Am Med Assoc 1997;278:47-50.
36. Gill TM, Feinstein AR. A critical appraisal of the quality of quality of life instruments. J Am Med Assoc 1994;272: 24-31.
37. Koch T. Disability and difference: balancing social and physical constructions. J Med Ethics 2001;27: 370-376.
38. Harris J. Is there a coherent social conception of disability? J Med Ethics 2000;26:95-100.
39. Koch T. Life quality vs 'quality of life': assumptions underlying prospective quality of life instruments in health care planning. Soc Sci Med 2000;51:419-427.
40. Franck LS, Callery P. Re-thinking family-centred care across the continuum of children's healthcare. Child: Care, Health, Dev 2004;30:265-277.
41. De Geeter KI, Poppes P, Vlaskamp C. Parents as experts: the position of parents of children with profound multiple disabilities. Child: Care, Health, Dev 2002;28:443-453.
42. Gall C, Kingsnorth S, Healy H. Growing up ready: a shared management approach to transition. Phys Occup Ther Pediatrics 2006;38:47-62.
43. Beayni S, Curran CJ, Gall C, Kingsnorth S, Lunan D, McDougall C, Healy H. Creating a transition peer support program: Family Facilitators. Panel Presentation at the Ontario Association of Children's Rehabilitation Services (OACRS) Conference; October 2007; Waterloo, ON.
44. Kingsnorth S, Rigby P, Healy H, Beayni S. A Transition Pilot Project for Parents of AAC Users. Podium presentation at the International ISAAC Conference; July 2006; Düsseldorf, Germany.
45. Blum RW. Transition to adult health care: setting the stage. J Adolesc Health 1995;17:3-5.
46. Hammell KW. Perspectives on disability and rehabilitation. Edinburgh: Elsevier; 2006.
47. WaDe DT. Describing rehabilitation interventions. Clinical Rehabil 2005;19:811-818.
48. Gladstone BM, Boydell KM, McKeever P. Recasting research into children's experience of parental mental illness: beyond risk and resilience. Soc Sci Med 2006;62: 2540-2550.
49. James A, Jenks C, Prout A. Theorising childhood. Cambridge: Polity Press & Blackwell Publishers; 1998.
50. Matthews S. A window on the 'new' sociology of childhood. Sociology Compass 2007;1:322-334.