Toward the necessary universalizing of a disability policy

Milbank Quarterly

Volumn 83, Issue 4, 2005, Pages

  Zola, Irving Kenneth ^a  

^a NONE

Author keywords

[No Author keywords available]

Indexed keywords

CIVIL RIGHTS; DISABILITY; ENVIRONMENTAL FACTOR; HEALTH CARE NEED; HEALTH CARE POLICY; HOUSING; HUMAN; MEDICAL RESEARCH; MEDICAL SERVICE; MEDICAL SOCIETY; NEEDS ASSESSMENT; ORGANIZATIONAL DOWNSIZING; ORGANIZATIONAL EFFICIENCY; PRIORITY JOURNAL; REVIEW; SOCIAL INTERACTION; SOCIAL PROBLEM; TRAFFIC AND TRANSPORT; WORKPLACE;

EID: 70849085362     PISSN: 0887378X     EISSN: 14680009     Source Type: Journal    
DOI: 10.1111/j.1468-0009.2005.00436.x     Document Type: Review

References (106)

1. Akabas, S.H. 1984. Commentary. In The Future of Work for Persons with Disabilities: A View from Great Britain, edited by P. Cornes, 74-77. New York:World Rehabilitation Fund.
2. Apfel, R.J., and S.M. Fisher. 1984. To Do No Harm: DES and the Dilemmas of Modern Medicine. New Haven: Yale University Press.
3. Barnartt, S., and K. Seelman. 1988. A Comparison on Federal Laws toward the Disabled and Racial/Ethnic Groups in the U.S.A. Disability, Handicap and Society 3:37-48.
4. Batelle Memorial Institute. 1977. Study and Evaluation of Integrating the Handicapped in HUD Housing.Washington: Department of Housing and Urban Development.
5. Berkowitz, M. 1980. Work Disincentives and Rehabilitation. Falls Church, VA.: Institute for Information Studies.
6. Biklen, D., and L. Bailey. 1981. Rudely Stamp'd: Imaginal Disability and Prejudice. Washington: University Press of America.
7. Blanpain, J. 1985. Advanced Technology and Health Care in the Home. International Journal of Technology Assessment in Health Care 1:271-93.
8. Borgatta, E.F., and R.J. Montgomery. 1987. Critical Issues in Aging Policy: Linking Research and Values. Newbury Park, Calif.: Sage.
9. Boston Women's Health Book Collective. 1984. The New Our Bodies Ourselves. New York: Simon and Schuster.
10. Bowe, F. 1983. Accessible Transportation. In Independent Living for Physically Disabled People, edited by N. Crewe and I.K. Zola, 205-18. San Francisco: Jossey-Bass.
11. Brooks, N., and R. Matson. 1987. Managing Multiple Sclerosis. In The Experience and Management of Chronic Illness, edited by J. Roth and P. Conrad, 73-106. Greenwich, Conn.: JAI Press.
12. Callahan, D. 1987. Setting Limits: Medical Goals in an Aging Society. New York: Simon and Schuster.
13. Collins, J.G. 1985. Persons Injured: Disability Days Due to Injuries, U.S., 1980-81. Vital and Health Statistics series 10. Public Health Service pub no. (PHS)85-1577.Washington.
14. Colvez, A., and M. Blanchet. 1981. Disability Trends in the United States Population 1966-76: Analysis of Reported Causes. American Journal of Public Health 71:464-71.
15. Committee for the Study on Improving Mobility and Safety for Older Persons. 1988. Transportation in an Aging Society: Improving Mobility and Safety for Older Persons. Special Report no. 218. Washington: Transportation Research Board.
16. Conrad, P., and J.W. Schneider. 1980. Deviance and Medicalization: From Badness to Sickness. St. Louis: C.V. Mosby.
17. Cornes, P. 1984. The Future of Work for People with Disabilities: A View from Great Britain. New York:World Rehabilitation Fund.
18. Crawford, R. 1977. You Are Dangerous to Your Health: The Ideology of Politics of Victim Blaming. International Journal of Health Services 7:663-80.
19. Crewe, N.M., I.K. Zola, and Associates. 1983. Independent Living for Physically Disabled People. San Francisco: Jossey-Bass.
20. DeJong, G. 1983. Defining and Implementing the Independent Living Concept. In Independent Living for Physically Disabled People, edited by N. Crewe and I.K. Zola, 4-28. San Francisco: Jossey-Bass.
21. DeJong, G., and R. Lifchez. 1983. Physical Disability and Public Policy. Scientific American 248:40-49.
22. Disability Rag. 1984. Wheelchairs: Tools of Living. 1: 3-15.
23. Doress, P., and D. Siegal. 1987. Ourselves Growing Older: Aging with Knowledge and Power. New York: Simon and Schuster.
24. Dunn, P.A. 1985a. An Analysis of the Housing Adaptation Programs in Massachusetts. Boston: Adaptive Environment Center.
25. Dunn, P.A. 1985b. An Annotated Bibliography on the Needs, Costs, and Social Impacts of Housing Adaptation. Boston: Adaptive Environment Center.
26. Dunn, P.A. 1987. The Impact of Housing upon the Independent Living Outcomes of Individuals with Disabilities. Unpublished Ph.D. diss., Florence Heller Graduate School for Advanced Studies in Social Welfare, Brandeis University.
27. Faigel, H. 1985. When the Learning Disabled Go to College. Journal of American College Health 43:18-22.
28. Feinstein, P.H., M. Gornick, and J.N. Greenberg. 1984. The Need for New Approaches in Long-Term Care. In Long-Term Care Financing and Delivery Systems: Exploring Some Alternatives, edited by P.H. Feinstein, M. Gornick, and J.N. Greenberg, 7-12. Health Care Financing Administration pub. no. 03174.Washington.
29. Fries, J. 1980. Aging, Natural Death, and the Compression of Morbidity. New England Journal of Medicine 303:130-35.
30. Funne, K.B., N. Gingher, and L.M. Olsen. 1989. A Survey of the Medical and Functional Status of Members of the Adult Network of the Spina Bifida Association of America. Rockville, Md.: Spina Bifida Association of America.
31. Gartner, A., and T. Joe. 1987. Images of the Disabled, Disabling Images. New York: Praeger.
32. Gerhardt, U., and M. Brieskorn-Zinke. 1986. The Normalization of Hemodialysis at Home. In The Adoption and Social Consequences of Medical Technologies, edited by J. Roth and S.B. Ruzek, vol. 4, 271-317. Greenwich, Conn.: JAI Press.
33. Gilderbloom, J., M. Rosentraub, and D. Bullard. 1987. Designing, Locating and Financing Housing and Transportation Services for Low-Income, Elderly, and Disabled Persons. Houston: University of Houston Center for Public Policy.
34. Gilford, D.M. 1988. The Aging Population in the Twenty-first Century: Statistics for Health Policy. Washington: National Academy Press.
35. Governor's Commission on Accessible Transportation. 1987a. Access to Transportation in the Commonwealth: Summary, Overall Findings and Recommendations. Boston: Commonwealth of Massachusetts.
36. Governor's Commission on Accessible Transportation. 1987b. Accessible Transportation: Current Law, Policy, and Enforcement. Position Paper no. 6. Boston: Commonwealth of Massachusetts.
37. Griss, B. 1985. Report on Health Care Coverage forWorking-Age Persons with Physical Disabilities: A Key to Reducing Disincentives toWork. Madison, Wis.: Department of Health and Social Services.
38. Gruenberg, E.M. 1977. The Failures of Success. Milbank Memorial Fund Quarterly/Health and Society 55(1):3-24.
39. Grundy, E. 1984. Mortality and Morbidity among the Old. British Medical Journal 228:663-64.
40. Haggerty, R.J., K.J. Roghmann, and I.B. Pless. 1975. Child Health and the Community. New York: JohnWiley.
41. Hahn, H. 1984. The Issue of Equality: European Perceptions of Employment for Disabled Persons. New York:World Rehabilitation Fund.
42. Hahn, H. 1985. Disability Policy and the Problem of Discrimination. American Behavioral Scientist 28:293-318.
43. Hahn, H. 1986. Public Support for Rehabilitation Programs: The Analysis of U.S. Disability Policy. Disability, Handicap, and Society 1:121-37.
44. Halstead, L.S., and D. Wiechers. 1985. Late Effects of Poliomyelitis. New York: Symposia Foundation.
45. Hotchkiss, R.D. 1984. Left to Your Own Devices: Developing Wheelchairs in the DevelopingWorld. In Proceedings of the 2nd International Conference on Rehab Engineering, 202-206. Ottawa: National Research Council of Canada.
46. Hotchkiss, R.D. 1985. Independence through Mobility: A Guide to the Construction ofATI-Hotchkiss Wheelchair.Washington: Appropriate Technology International.
47. Hotchkiss, R.D. 1986. Wheelchairs from the Third World. In Inventors' Vignettes: Success and Failure in the Development of Medical Devices. Washington: U.S. Congress Office of Technology Assessment.
48. Illich, I. 1976. Medical Nemesis. New York: Pantheon.
49. Illich, I., I.K. Zola, J. McKnight, J. Kaplan, and H. Shaiken. 1977. Disabling Professions. London: Marion Boyars.
50. Kadushin, C. 1969. Why People Go to Psychiatrists. New York: Atherton.
51. Katz, J. 1984. The Silent World of Doctors and Patients. New York: Free Press.
52. Katzmann, S., L.G. Branch, M.H. Branson, J.A. Papsidero, J.L. Beck, and D.S. Greer. 1983. Active Life Expectancy. New England Journal of Medicine 309:1218-24.
53. Katzmann, R.A. 1986. Institutional Disability: The Saga of Transportation Policy for the Disabled. Washington: Brookings Institute.
54. Kingston, E. 1982. The Health of Very Early Retirees. Social Security Bulletin 45:3-9.
55. Kinley, H.J. 1987. LatentTravel Demand of the Aging and Handicapped and Barriers to Travel. In Images of the Disabled, Disabling Images, edited by A. Gartner and T. Joe, 157. New York: Praeger.
56. Kluckhohn, F., and F.L. Strodtbeck. 1961. Variations in Value Orientations. Evanston, Ill.: Row, Peterson.
57. Kramer, J., E. Yelin, and W. Epstein. 1983. Social and Economic Impact of Four Musculoskeletal Conditions. Arthritis and Rheumatism 26(7):901-7.
58. Kramer, M. 1980. The Rising Pandemic of Mental Disorders and Associated Chronic Diseases and Disorders. Acta Psychiatrica Scandinavica Supplement 62:382-96.
59. Laurie, G., and J. Raymond. 1984. Proceedings of Rehabilitation Gazette's 2nd International Post-polio Conference and Symposium on Living Independently with Severe Disability. St. Louis: Gazette International Networking Institute.
60. Leonard, E. 1983. La Brava. New York: Arbor House.
61. Lewis, B.E. 1985. Inventors, Explorers, and Experimenters: How Parents Adapt Homes for Children with Mobility Problems. Unpublished Ph.D. diss., Massachusetts Institute of Technology.
62. Liang, M., M. Larson, M. Thompson, H. Eaton, E. McNamara, R. Katz, and J. Taylor. 1984. Costs and Outcomes in Rheumatoid Arthritis. Arthritis and Rheumatism 27:522-29.
63. Lifchez, R. 1987. Rethinking Architecture: Design Students and Physically Disabled People. Berkeley: University of California Press.
64. Lifchez, R., and B. Winslow. 1979. Design for Independent Living: The Environment and Physically Disabled People. Berkeley: University of California Press.
65. Livneh, H. 1982. On the Origins of Negative Attitudes toward People with Disabilities. Rehabilitation Literature 43:338-47.
66. Lorber, J. 1984. Women Physicians: Careers, Status, and Power. New York: Tavistock.
67. Louis Harris and Associates. 1986. The ICD Survey I: Disabled Americans' Self Perceptions: Bringing Disabled Americans into the Mainstream. New York: International Center for the Disabled.
68. Louis Harris and Associates. 1987. The ICD Survey II: Employing Disabled Americans. New York: International Center for the Disabled.
69. Milio, N. 1981. Promoting Health through Public Policy. Philadelphia: F.A. Davis.
70. Mitchell, K. 1987. The Aging Work Force and the Politics of Incapacity. In The Aging Workforce: Implications for Rehabilitation, edited by L.G. Perlman and G.F. Austin, 17-25. Alexandria, Va.: National Rehabilitation Association.
71. Nash, B.E. 1987. The State of the Art: An Overview of the World of Work. In The Aging Workforce: Implications for Rehabilitation, edited by L.G. Perlman and G.F. Austin, 9-15. Alexandria, Va.: National Rehabilitation Association.
72. National Center for Health Statistics. 1983. Americans Needing Help to Function at Home. Public Health Service Advance Data no. 92. Department of Health and Human Services pub. no. 83-1250. Washington.
73. National Safety Council. 1980. National Safety Council Accident Facts. 1980 ed. Chicago.
74. Navarro, V. 1976. Medicine under Capitalism. New York: Prodist.
75. Newacheck, P.W., P.P. Budetti, and N. Halfon. 1986. Trends in Activitylimiting Chronic Conditions among Children. American Journal of Public Health 76:178-83.
76. Orleans, M., and P. Orleans. 1985. High and LowTechnology: Sustaining Life at Home. International Journal of Technology Assessment in Health Care 1:353-63.
77. Osberg, S., P.J. Corcoran, G. DeJong, and E. Ostroff. 1983. Environmental Barriers and the Neurologically Impaired Patient. Seminars in Neurology 3:180-94.
78. Paul, C. 1984. Age and Health Care Costs. Los Angeles: University of California Andrus Gerontology Center.
79. Perlman, L.G., and G.F. Austin, ed. 1987. The Aging Workforce: Implications for Rehabilitation. Alexandria, Va.: National Rehabilitation Association.
80. Petty, L. 1987. Section 504 Transportation Regulations: Molding Civil Rights Legislation to Meet the Realities of Economic Constraints. Washburn Law Journal 27:558-600.
81. Phillips, J.M. 1983. Designing Supportive Physical Environments. In Independent Living for Physically Disabled People, edited by N. Crewe and I.K. Zola, 113-29. San Francisco: Jossey-Bass.
82. President's Committee on Employment of the Handicapped. 1967. Designs for All Americans. Washington.
83. Ratzka, A.D. 1984. The Costs of Disabling Environments: A Cost-Revenue Analysis of Installing Elevators in Old Houses. Stockholm: Swedish Council of Building Research.
84. Rhodes, S. 1983. Age-related Differences inWork Attitudes and Behaviors: A Review and Concept Analysis. Psychological Bulletin 93:328-67.
85. Richman, J. 1988. A New York Law That Disables Builders. New York Times, November 23.
86. Robinette, G.O. 1978. Access to the Environment. Washington: Department of Housing and Urban Development.
87. Sato, H. 1989. Secondary Disabilities of Adults with Cerebral Palsy in Japan. Disability Studies Quarterly 9:14.
88. Scotch, R.K. 1984. From Good Will to Civil Rights: Transforming Federal Disability Policy. Philadelphia: Temple University Press.
89. Scotch, R.K. 1989. Politics and Policy in the History of the Disability Rights Movement. Milbank Quarterly 67 (Suppl. 2, Pt. 2):380-400.
90. Secretariat for Future Studies. 1982. Care and Welfare at the Crossroads. Stockholm.
91. Starr, P. 1982. The Social Transformation of American Medicine. New York: Basic Books.
92. Stone, D. 1984. The Disabled State. Philadelphia: Temple University Press.
93. Stubbins, J. 1982. The Clinical Attitude in Rehabilitation: A Cross-Cultural View. New York:World Rehabilitation Fund.
94. Stubbins, J. 1987. Towards a National Policy on Vocational Rehabilitation. In The Changing Nature ofWork, Society and Disability: The Impact on Rehabilitation Policy, edited by D.E. Woods and D. Vandergoot, 59-64. New York:World Rehabilitation Fund.
95. Turk, D.C., and M.A. Speers. 1983. Diabetes Mellitus: A Cognitive- Functional Analysis of Stress. In Coping with Chronic Disease, edited by T.G. Burish and L.A. Bradley, 191-217. New York: Academic Press.
96. U.S. General Accounting Office. 1985. Retirement before Age 65 Is a Growing Trend in the Private Sector. Washington.
97. U.S. Office of Technology Assessment. 1982. Technology and Handicapped People. Washington.
98. Vachon, R.A. III. 1987. Inventing a Future for Individuals with Work Disabilities. In The Changing Nature of Work, Society and Disability: The Impact on Rehabilitation Policy, edited by D.E. Woods and D. Vandergoot, 19-46. New York:World Rehabilitation Fund.
99. Waitzkin, H. 1983. The Second Sickness: Contradictions of Capitalist Health Care. New York: Free Press.
100. Wilson, R., and T. Drury. 1984. Interpreting Trends in Illness and Disability. Annual Review of Public Health 5:83-106.
101. Yelin, E., M. Nevitt, andW. Epstein. 1980. Toward an Epidemiology of Work Disability. Milbank Memorial Fund Quarterly/Health and Society 58(3):386-415.
102. Zola, I.K. 1972. Medicine as an Institution of Social Control. Sociological Review 20:487-504.
103. Zola, I.K. 1982. Missing Pieces: A Chronicle of Living with a Disability. Philadelphia: Temple University Press.
104. Zola, I.K. 1983. Socio-Medical Inquiries: Recollections, Reflections and Reconsiderations. Philadelphia: Temple University Press.
105. Zola, I.K. 1986. Depictions of Disability: Metaphor, Message and Medium in the Media. Social Science Journal 22:5-17.
106. Zola, I.K. 1989. The Naming Question: Reflections on the Language of Disability. In Report on the American Association for the Advancement of Science Workshop on the Demography of Scientists and Engineers with Disabilities. Washington: American Association for the Advancement of Science.