Timeliness of primary cleft lip/palate surgery

Cleft Palate-Craniofacial Journal

Volumn 46, Issue 6, 2009, Pages 588-597

  Cassell, Cynthia H ^a,b   Daniels, Julie ^c   Meyer, Robert E ^b,c  

^a UNIVERSITY OF NORTH CAROLINA AT CHARLOTTE   (United States)

^b State Center for Health Statistics   (United States)

^c IL   (United States)

Author keywords

Cleft lip palate surgery; Health services

Indexed keywords

AGE; ARTICLE; CHILD; CLEFT LIP; CLEFT LIP PALATE; CLEFT PALATE; FEMALE; GEOGRAPHIC DISTRIBUTION; HUMAN; INFANT; LIP RECONSTRUCTION; MAJOR CLINICAL STUDY; MALE; MAXILLOFACIAL SURGERY; MEDICAID; OUTCOME ASSESSMENT; PRENATAL CARE; PRESCHOOL CHILD; PRIORITY JOURNAL; RETROSPECTIVE STUDY; UNITED STATES;

AGE FACTORS; CHI-SQUARE DISTRIBUTION; CLEFT LIP; CLEFT PALATE; FEMALE; HUMANS; INFANT; INFANT, NEWBORN; MALE; MEDICAID; NORTH CAROLINA; REGISTRIES; RETROSPECTIVE STUDIES; UNITED STATES;

EID: 70450244816     PISSN: 10556656     EISSN: 15451569     Source Type: Journal    
DOI: 10.1597/08-154.1     Document Type: Article

References (62)

1. American Cleft Palate-Craniofacial Association. Parameters for evaluation and treatment of patients with cleft lip/palate or other craniofacial anomalies. Cleft Palate Craniofac J. 1993;30(suppl):S1-S16.
2. American Cleft Palate-Craniofacial Association, Cleft Palate Foundation. American Cleft Palate-Craniofacial Association 2005-2006 Membership-Team Directory. Chapel Hill: ACPA/CPF National Office; 2005-2006:1-400.
3. Anonymous. Black-white disparities in health care. JAMA. 1990;263:2344-2346.
4. Anonymous. Bridging the gaps in chronic illness care for children. Dis Manag Advis. 2001;7:65-69.
5. Antonelli PJ. Otolaryngologic needs of individuals with oral clefts. In: Wyszynski DF, ed. Cleft Lip and Palate. New York: Oxford University Press; 2002:397-407.
6. Benedict RE, Farel AM. Identifying children in need of ancillary and enabling services: a population approach. Soc Sci Med. 2003;57:2035-2047. (Pubitemid 37153147)
7. Betz CL, Baer MT, Poulsen M, Vahanvaty U, Bare M, Haddad Y, Nwachuken G. Secondary analysis of primary and preventive services accessed and perceived service barriers by children with developmental disabilities and their families. Issues Compr Pediatr Nurs. 2004;27:83-106. (Pubitemid 38891334)
8. Billmire DA. Insurance and coverage of care. In: Wyszynski DF, ed. Cleft Lip and Palate: From Origin to Treatment. New York: Oxford University Press; 2002:468-473.
9. Bokhout B, Hofman FX, van Limbeek J, Kramer GJ, Prahl-Andersen B. Incidence of dental caries in the primary dentition in children with a cleft lip and/or palate. Caries Res. 1997;31:8-12. (Pubitemid 127520310)
10. Broen PA, Devers MC, Doyle SS, Prouty JM, Moller KT. Acquisition of linguistic and cognitive skills by children with cleft palate. J Speech Lang Hear Res. 1998;41:676-687. (Pubitemid 28299859)
11. Buescher P, Whitmire JT, Brunssen S, Nelson D, Howell E, Kluttz-Hile CE. Children who are medically fragile in North Carolina: prevalence and medical care costs in 2002. SCHS Studies. No.147. Raleigh, NC: State Center for Health Statistics; 2005:1-11.
12. Buescher PA, Horton SJ, Devaney BL, Roholt SJ, Lenihan AJ, Whitmire JT, Kotch JB. Child participation in WIC: Medicaid costs and use of health care services. Am J Public Health. 2003a;93:145-150. (Pubitemid 36055290)
13. Buescher PA, Horton SJ, Devaney BL, Roholt SJ, Lenihan AJ, Whitmire JT, Kotch JB. Differences in use of health services between White and African American children enrolled in Medicaid in North Carolina. Matern Child Health J. 2003b;7:45-52.
14. Buescher PA, Jones-Vessey K. Using Medicaid data to estimate state- and county-level prevalence of asthma among low-income children. Matern Child Health J. 1999;3:211-216.
15. Canady J, Karnell M, Marsh J. Cleft Lip and Cleft Palate: The First Four Years. Chapel Hill: Cleft Palate Foundation; 1998:1-26.
16. Caplan DJ, Weintraub JA. The oral health burden in the United States: a summary of recent epidemiologic studies. J Dent Educ. 1993;57:853-862.
17. Cassell CH, Meyer RE, Farel AM. Predictors of referral to the North Carolina Child Service Coordination Program among infants with orofacial clefts. Cleft Palate Craniofac J. 2007;44:45-51.
18. DeRoo LA, Gaudino JA, Edmonds LD. Orofacial cleft malformations: associations with maternal and infant characteristics in Washington State. Birth Defects Res Part A Clin Mol Teratol. 2003;67:637-642.
19. Fiscella K, Franks P, Doescher MP, Saver BG. Disparities in health care by race, ethnicity, and language among the insured: findings from a national sample. Med Care. 2002;40:52-59.
20. Gosain AK, Conley SF, Santoro TD, Denny AD. A prospective evaluation of the prevalence of submucous cleft palate in patients with isolated cleft lip versus controls. Plast Reconstr Surg. 1999;103:1857-1863.
21. Hagberg C, Larson O, Milerad J. Incidence of cleft lip and palate and risks of additional malformations. Cleft Palate Craniofac J. 1998;35:40-45. (Pubitemid 28095996)
22. Haley J, Kenney G. Low-income uninsured children with special health care needs: why aren't they enrolled in public health insurance programs? Pediatrics. 2007;119:60-68.
23. Hall SA, Kaufman JS, Ricketts TC. Defining urban and rural areas in U.S. epidemiologic studies. J Urban Health. 2006;83:162-175.
24. Hart LG, Larson EH, Lishner DM. Rural definitions for health policy and research. Am J Public Health. 2005;95:1149-1155. (Pubitemid 40880862)
25. Ireys HT, Humensky J, Paterson E, Wickstrom S, Manda B, Rheault P. Children With Special Health Care Needs in Commercial Managed Care: Patterns of Service Use and Cost. Washington, DC: Mathematica Policy Research, Inc.; 2002:68.
26. Kapp-Simon KA, Krueckeberg S. Mental development in infants with cleft lip and/or palate. Cleft Palate Craniofac J. 2000;37:65-70. (Pubitemid 30065021)
27. Koempel JA, Kumar A. Long-term otologic status of older cleft palate patients. Indian J Pediatr. 1997;64:793-800. (Pubitemid 128515152)
28. Larson SL, Fleishman JA. Rural-urban differences in usual source of care and ambulatory service use: analyses of national data using Urban Influence Codes. Med Care. 2003;41:III65-III74.
29. Lynch JI, Karnell MP. Cleft Lip and Palate: The School-Aged Child. Chapel Hill: Cleft Palate Foundation; 2003:1-34.
30. March of Dimes Foundation. Cleft lip and cleft palate. Available at: http://www.marchofdimes.com/professionals/14332-1210.asp. Accessed March 26, 2007.
31. Margolis PA, Lannon CM, Stevens R, Harlan C, Bordley WC, Carey T, Leininger L, Keyes LL, Earp JL. Linking clinical and public health approaches to improve access to health care for socially disadvantaged mothers and children: a feasibility study. Arch Pediatr Adolesc Med. 1996;150:815-821. (Pubitemid 26269892)
32. Mikhail BI. Perceived impediments to prenatal care among low-income women. West J Nurs Res. 1999;21:335-350, discussion 351-355.
33. Nackashi JA, Dedlow ER, Wood-Dixon V. Health care for children with cleft lip and palate: comprehensive services and infant feeding. In: Wyszynski DF, ed. Cleft Lip and Palate: From Origin to Treatment. New York: Oxford University Press; 2002:303-318.
34. National Committee for Quality Assurance. HEDIS 2005: Technical Specifications. Washington DC: National Committee for Quality Assurance; 2004:1-360.
35. National Institute for Health Care Management Foundation. Reducing Health Disparities Among Children: Strategies and Programs for Health Plans. Washington, DC: National Institute for Health Care Management; 2007:1-28.
36. Newacheck PW, Hughes DC, Stoddard JJ. Children's access to primary care: differences by race, income, and insurance status. Pediatrics. 1996;97:26-32.
37. Newacheck PW, Kim SE. A national profile of health care utilization and expenditures for children with special health care needs. Arch Pediatr Adolesc Med. 2005;159:10-17. (Pubitemid 40070637)
38. Newacheck PW, McManus M, Fox HB, Hung YY, Halfon N. Access to health care for children with special health care needs. Pediatrics. 2000;105:760-766. (Pubitemid 30219522)
39. North Carolina Department of Health and Human Services. Guidelines: North Carolina Perinatal Care Program. Raleigh: Division of Health Services; 1984:1-34.
40. North Carolina Division of Medical Assistancea. Maternity care coordination. Available at: http://www.dhhs.state.nc.us/dma/babylovechild/1m8. pdf. Accessed April 9, 2006.
41. Nugent RR. Perinatal regionalization in North Carolina, 1967-1979: services, programs, referral patterns, and perinatal mortality rate declines for very low birthweight infants. N C Med J. 1982;43:513-515.
42. Porterfield SL, McBride TD. The effect of poverty and caregiver education on perceived need and access to health services among children with special health care needs. Am J Public Health. 2007;97:323-329.
43. Posnick JC, Ruiz RL. Staging of cleft lip and palate reconstruction: infancy through adolescence. In: Wyszynski DF, ed. Cleft Lip and Palate: From Origin to Treatment. New York: Oxford University Press; 2002:319-353.
44. Ricketts TC, Johnson-Webb KD. Definitions of Rural: A Handbook for Health Policy Makers and Researchers. Washington, DC: Federal Office of Rural Health Policy; 1998:1-20.
45. Riski JE. Evaluation and management of speech, language, and articulation disorders. In: Wyszynski DF, ed. Cleft Lip and Palate. New York: Oxford University Press; 2002:354-370.
46. Ronsaville DS, Hakim RB. Well child care in the United States: racial differences in compliance with guidelines. Am J Public Health. 2000;90:1436-1443.
47. Rosenbach ML, Irvin C, Coulam RF. Access for low-income children: is health insurance enough? Pediatrics. 1999;103:1167-1174.
48. Saal HM. Classification and description of nonsyndromic clefts. In: Wyszynski DF, ed. Cleft Lip and Palate: From Origin to Treatment. New York: Oxford University Press; 2002:47-52.
49. Shatin D, Levin R, Ireys HT, Haller V. Health care utilization by children with chronic illnesses: a comparison of Medicaid and employer-insured managed care. Pediatrics. 1998;102:E44.
50. Sommers BD. From Medicaid to uninsured: drop-out among children in public insurance programs. Health Serv Res. 2005;40:59-78.
51. Speltz ML, Endriga MC, Hill S, Maris CL, Jones K, Omnell ML. Cognitive and psychomotor development of infants with orofacial clefts. J Pediatr Psychol. 2000;25:185-190. (Pubitemid 30205280)
52. Sperber GH. Palatogenesis: closure of the secondary palate. In: Wyszynski DF, ed. Cleft Lip and Palate: From Origin to Treatment. New York: Oxford University Press; 2002:14-24.
53. St. Clair PA, Smeriglio VL, Alexander CS, Connell FA, Niebyl JR. Situational and financial barriers to prenatal care in a sample of low-income, inner-city women. Public Health Rep. 1990;105:264-267.
54. Strauss RP. Developing a cleft palate or craniofacial team. In: Wyszynski DF, ed. Cleft Lip and Palate: From Origin to Treatment. New York: Oxford University Press; 2002:293-302.
55. Strauss RP. The organization and delivery of craniofacial health services: the state of the art. Cleft Palate Craniofac J. 1999;36:189-195.
56. Tolarova MM, Cervenka J. Classification and birth prevalence of orofacial clefts. Am J Med Genet. 1998;75:126-137. (Pubitemid 28034487)
57. Wall A, Meyer RE. Birth Defects in North Carolina. Raleigh, NC: Department of Health and Human Services, North Carolina Division of Public Health, North Carolina State Center for Health Statistics; 2006:1-15.
58. Washington State Department of Health. Guidelines for using rural-urban classification systems for public health assessment. Available at: http://www.doh.wa.gov/Data/Guidelines/RuralUrban.htm#summary. Accessed October 4, 2006.
59. White RB. Services for children with congenital facial clefts through a state Crippled Children's Service Program. Cleft Palate J. 1981;18:116-121.
60. Williams CA, Mardon RE, Grove D, Wharton P, Hauser KW, Frías GL. Treatment of oralfacial clefts by state-affiliated craniofacial centers and cleft palate clinics. Birth Defects Res Part A Clin Mol Teratol. 2003;67:643-646. (Pubitemid 37222114)
61. Wyszynski DF, Wu T. Prenatal and perinatal factors associated with isolated oral clefting. Cleft Palate Craniofac J. 2002;39:370-375. (Pubitemid 34496501)
62. Yazdy M, Honein M, Rasmussen S, Frias J. Priorities for future public health research in orofacial clefts. Cleft Palate Craniofac J. 2007;44:351-357. (Pubitemid 47101003)