Inflammatory bowel disease: A patient's and caregiver's perspective

Digestive Diseases and Sciences

Volumn 54, Issue 12, 2009, Pages 2671-2679

  Magro, F ^a,b   Portela, F ^a   Lago, P ^a   Deus, J ^a   Cotter, J ^a   Cremers, I ^a   Vieira, A ^a   Peixe, P ^a   Caldeira, P ^a   Lopes, H ^a   Goncalves R ^a   Reis, J ^a   Cravo, M ^a   Barros, L ^a   Ministro, P ^a   Lurdes Tavares, M ^a   Duarte, A ^a   Campos, M ^a   Carvalho, L ^a  

^a Portuguese Group of Studies of IBD   (Portugal)

^b University of Porto   (Portugal)

Author keywords

Caregiver's perspective of life; Crohn's disease; Inflammatory bowel disease; Patient's perspective of life; Quality of life; Ulcerative colitis

Indexed keywords

ANTIBIOTIC AGENT; AZATHIOPRINE; BUDESONIDE; EUDRAGIT; MESALAZINE; METHOTREXATE; METHYLPREDNISOLONE; PREDNISOLONE; SALAZOSULFAPYRIDINE;

ACADEMIC ACHIEVEMENT; ADULT; AGED; ANXIETY; ARTICLE; CANCER RISK; CAREGIVER; CONTROLLED STUDY; CROHN DISEASE; DAILY LIFE ACTIVITY; DEPRESSION; DISEASE EXACERBATION; EMPLOYMENT; FEMALE; GROUPS BY AGE; HUMAN; HUMAN RELATION; JOB PERFORMANCE; MAJOR CLINICAL STUDY; MALE; MOBILIZATION; PAIN; PATIENT ATTITUDE; PATIENT CARE; PERSONAL HYGIENE; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; SEX RATIO; ULCERATIVE COLITIS;

ACTIVITIES OF DAILY LIVING; ADAPTATION, PSYCHOLOGICAL; ADULT; ANXIETY; CAREGIVERS; COLITIS, ULCERATIVE; COST OF ILLNESS; CROHN DISEASE; DRUG INFORMATION SERVICES; EMPLOYMENT; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEALTH SURVEYS; HUMANS; HYGIENE; MALE; MOBILITY LIMITATION; PAIN; PATIENT EDUCATION AS TOPIC; PHYSICIAN-PATIENT RELATIONS; PORTUGAL; QUALITY OF HEALTH CARE; QUALITY OF LIFE; QUESTIONNAIRES; REGISTRIES; YOUNG ADULT;

EID: 70450231939     PISSN: 01632116     EISSN: None     Source Type: Journal    
DOI: 10.1007/s10620-008-0658-3     Document Type: Article

References (21)

1. GR Lichtenstein S Yan M Bala, et al. 2004 Remission in patients with Crohn's disease is associated with improvement in employment and quality of life and a decrease in hospitalizations and surgeries Am J Gastroenterol 99 1 91 96 10.1046/j.1572-0241.2003.04010.x 10.1046/j.1572-0241.2003.04010.x 14687148 (Pubitemid 38679108)
2. N Westwood SP Travis 2008 What do patients with inflammatory bowel disease want for their clinical management? Aliment Pharmacol Ther 27 Suppl 1 1 8 18307643
3. RJ Stephens P Hopwood DJ Girling 1997 Randomized trials with quality of life endpoints: are doctors' ratings of patients' physical symptoms interchangeable with patients' self-ratings? Qual Life Res 6 225 236 10.1023/A:1026458604826 10.1023/A:1026458604826 1:STN:280:DyaK2szntVKqtg%3D%3D 9226980
4. DR Calkins LV Rubenstein PD Cleary, et al. 1991 Failure of physicians to recognize functional disability in ambulatory patients Ann Intern Med 114 451 454 1:STN:280:DyaK3M7js1Snuw%3D%3D 1825267
5. JW Garrett DA Drossman 1990 Health status in inflammatory bowel disease. Biological and behavioral considerations Gastroenterology 99 1 90 96 1:STN:280:DyaK3c3mtlylug%3D%3D 2188874
6. I van der Eijk R Stockbrügger M Russel 2000 Influence of quality of care on quality of life in inflammatory bowel disease Eur J Intern Med 11 4 228 234 10.1016/S0953-6205(00)00095-9 10.1016/S0953-6205(00)00095-9 10967512 (Pubitemid 30680180)
7. Magro F, Portela P, Lago P, et al. A pharmacoepidemiological approach to estimate the prevalence and incidence of inflammatory bowel disease (IBD) in Portugal. J Crohns Colitis. 2008;2:P099.
8. S Ghosh R Mitchell 2007 Impact of inflammatory bowel disease on quality of life: results of the European Federation of Crohn's and Ulcerative Colitis Associations (EFCCA) patient survey J Crohn's Colitis 1 10 20 10.1016/j.crohns.2007.06.005 10.1016/j.crohns.2007.06.005 (Pubitemid 350265728)
9. S Levenstein Z Li S Almer, et al. 2001 Cross-cultural variation in disease-related concerns among patients with inflammatory bowel disease Am J Gastroenterol 96 6 1822 1830 10.1111/j.1572-0241.2001.03878.x 10.1111/j.1572-0241.2001.03878.x 1:STN:280:DC%2BD3MzlvFSqtg%3D%3D 11419836
10. HC Traue P Kosarz 1999 Everyday stress and Crohn's disease activity. A time series analysis of 20 single cases Int J Behav Med 6 2 101 119 10.1207/s15327558ijbm0602-1 10.1207/s15327558ijbm0602-1 1:STN:280: DC%2BD2Mrntlyjuw%3D%3D 16250682 (Pubitemid 29379106)
11. E Fuller-Thomson J Sulman 2006 Depression and inflammatory bowel disease: findings from two nationally representative Canadian surveys Inflamm Bowel Dis 12 8 697 707 10.1097/00054725-200608000-00005 10.1097/00054725-200608000-00005 16917224 (Pubitemid 44253753)
12. F Casellas JL Vivancos M Sampedro, et al. 2005 Relevance of the phenotypic characteristics of Crohn's disease in patient perception of health-related quality of life Am J Gastroenterol 100 12 2737 2742 10.1111/j.1572-0241.2005.00360.x 10.1111/j.1572-0241.2005.00360.x 16393228 (Pubitemid 43919643)
13. EJ Irvine 1995 Quality of life in inflammatory bowel disease: biases and other factors affecting scores Scand J Gastroenterol Suppl 208 136 140 10.3109/00365529509107776 10.3109/00365529509107776 1:STN:280: DyaK2M3ps1Khug%3D%3D 7777795
14. I van der Eijk IG Vlachonikolis P Munkholm, et al. 2004 The role of quality of care in health-related quality of life in patients with IBD Inflamm Bowel Dis 10 4 392 398 10.1097/00054725-200407000-00010 10.1097/00054725- 200407000-00010 15475747 (Pubitemid 39036127)
15. GK Turnbull TM Vallis 1995 Quality of life in inflammatory bowel disease: the interaction of disease activity with psychosocial function Am J Gastroenterol 90 9 1450 1454 1:STN:280:DyaK2MzptVamsA%3D%3D 7661168
16. M MacPhee EJ Hoffenberg A Feranchak 1998 Quality-of-life factors in adolescent inflammatory bowel disease Inflamm Bowel Dis 4 1 6 11 1:STN:280:DyaK1c7nslKntQ%3D%3D 9552222
17. JE Helzer S Chammas CC Norland, et al. 1984 A study of the association between Crohn's disease and psychiatric illness Gastroenterology 86 2 324 330 1:STN:280:DyaL2c%2FosFOiuw%3D%3D 6690360
18. G Moser W Tillinger G Sachs, et al. 1995 A disease-related worries and concerns: a study on out-patients with inflammatory bowel disease Eur J Gastroenterol Hepatol 7 9 853 858 1:STN:280:DyaK287gs1Knuw%3D%3D 8574717
19. RG Kinash DG Fischer BE Lukie, et al. 1993 Coping patterns and related characteristics in patients with IBD Rehabil Nurs 18 1 12 19 1:STN:280:DyaK3s7lslOhtw%3D%3D 8430257
20. CD Sherbourne LS Meredith W Rogers, et al. 1992 Social support and stressful life events: age differences in their effects on health-related quality of life among the chronically ill Qual Life Res 1 4 235 246 10.1007/BF00435632 10.1007/BF00435632 1:STN:280:DyaK3s3jtVWqsg%3D%3D 1299454
21. AN Ananthakrishnan LR Weber JF Knox, et al. 2008 Permanent work disability in Crohn's disease Am J Gastroenterol 103 1 154 161 10.1111/j.1572-0241.2008.02054.x 18076736