Cancer genetic predisposition: Information needs of patients irrespective of risk level

Familial Cancer

Volumn 8, Issue 4, 2009, Pages 403-412

  Metcalfe, Alison ^a   Werrett, Julie ^a   Burgess, Lucy ^b   Chapman, Cyril ^b   Clifford, Collette ^a  

^a UNIVERSITY OF BIRMINGHAM   (United Kingdom)

^b BIRMINGHAM WOMEN S HOSPITAL   (United Kingdom)

Author keywords

Familial cancer; Genetic counselling; Genetic predisposition; Information; Patient education

Indexed keywords

ADULT; AGED; ARTICLE; BREAST CANCER; CANCER SUSCEPTIBILITY; COLORECTAL CANCER; FAMILIAL CANCER; FEMALE; GENETIC PREDISPOSITION; GENETIC RISK; HUMAN; INHERITANCE; MAJOR CLINICAL STUDY; MALE; MEDICAL DECISION MAKING; MEDICAL INFORMATION; OVARY CANCER; PATIENT ATTITUDE; PATIENT EDUCATION; PATIENT REFERRAL; PRIORITY JOURNAL; RISK ASSESSMENT;

ADOLESCENT; ADULT; AGED; FEMALE; GENETIC PREDISPOSITION TO DISEASE; GENETIC TESTING; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; MALE; MIDDLE AGED; MOTIVATION; NEOPLASMS; PATIENT EDUCATION AS TOPIC; PATIENT PARTICIPATION; QUESTIONNAIRES; RISK; YOUNG ADULT;

EID: 70449530603     PISSN: 13899600     EISSN: None     Source Type: Journal    
DOI: 10.1007/s10689-009-9256-6     Document Type: Article

References (25)

1. E Claus N Risch W Thompson 1991 Genetic analysis of breast cancer in the cancer and steroid study Am J Med Genet 48 232 242 1:STN:280: DyaK3M7hvV2gsA%3D%3D
2. M Dunlop S Farrington A Carothers, et al. 1997 Cancer risk associated with germline DNA mismatch repair gene mutations Hum Mol Genet 6 105 110 10.1093/hmg/6.1.105 10.1093/hmg/6.1.105 1:CAS:528:DyaK2sXlslCmtg%3D%3D 9002677 (Pubitemid 27033972)
3. H Hampel K Sweet JA Westman, et al. 2004 Referral for cancer genetics consultation: a review and compiliation of risk assessment criteria J Med Genet 41 81 91 10.1136/jmg.2003.010918 10.1136/jmg.2003.010918 1:STN:280: DC%2BD2c%2Fls1Kmug%3D%3D 14757853
4. V Collins J Halliday, et al. 2000 Assessment of education and counselling offered by a familial colorectal cancer clinic Clin Genet 57 48 55 10.1034/j.1399-0004.2000.570107.x 10.1034/j.1399-0004.2000.570107.x 1:STN:280:DC%2BD3c7psFeksQ%3D%3D 10733235 (Pubitemid 30105560)
5. N Hallowell F Murton, et al. 1997 Women's needs for information before attending genetic counselling for familial breast or ovarian cancer: a questionnaire, interview and observational study BMJ 314 281 1:STN:280:DyaK2s7nsVygtg%3D%3D 9022494
6. KI Chalmers KA Luker 2001 Information and support needs of women with primary relatives with breast cancer. Development of the information and support needs questionnaire J Adv Nurs 35 4 497 507 10.1046/j.1365-2648.2001.01866.x 10.1046/j.1365-2648.2001.01866.x 1:STN:280:DC%2BD3MvpsFSisA%3D%3D 11529948 (Pubitemid 33609418)
7. CJ Van Asperen S van Dijk MW Zoeteweij, et al. 2002 What do women really want to know? Motives for attending familial breast cancer clinics J Med Genet 39 410 414 10.1136/jmg.39.6.410 10.1136/jmg.39.6.410 12070250
8. P Hopwood D Wonderling M Watson, et al. 2004 A randomised comparison of UK genetic risk counseling services for familial cancer: psychosocial outcomes Br J Cancer 91 884 892 1:STN:280:DC%2BD2cvitF2qsA%3D%3D 15305197
9. T Marteau J Weinman 2006 Self-regulation and the behavioural response to DNA risk information: a theoretical analysis and framework for future research Soc Sci Med 6 6 1360 1368 10.1016/j.socscimed.2005.08.005 10.1016/j.socscimed. 2005.08.005 (Pubitemid 43204245)
10. S Holloway M Porteous R Cetnarskyj, et al. 2005 Referrals of patients to colorectal cancer genetics services in south-east Scotland Fam Cancer 4 2 151 161 10.1007/s10689-004-4488-y 10.1007/s10689-004-4488-y 15951967 (Pubitemid 40897817)
11. K Nordin A Liden M Hansson R Rosenquist G Berglund 2002 Coping style, psychological distress, risk perception and satisfaction in subjects attending genetic counselling for hereditary cancer J Med Genet 39 43 689 694 10.1136/jmg.39.9.689 1:STN:280:DC%2BD38vkvVWqtw%3D%3D 12205115
12. M Stadler J Mulvihill 1998 Cancer risk assessment and genetic counselling in an academic medical centre: consultants' satisfaction, knowledge and behaviour in the first year J Genet Couns 7 3 279 297 10.1023/A:1022847323935 (Pubitemid 28285464)
13. Silverman D (2001) Interpreting qualitative data. Methods for analysing talk, text and interaction. Sage Publications, London
14. JA Werrett RH Helm R Carnwell 2001 The primary and secondary care interface: the educational needs of nursing staff for the provision of seamless care J Adv Nurs 34 5 629 638 10.1046/j.1365-2648.2001.01792.x 10.1046/j.1365-2648.2001.01792.x 1:STN:280:DC%2BD3Mzks1Srsw%3D%3D 11380731 (Pubitemid 33659483)
15. K Glanz J Grove C Lerman C Gotay L Le Marchand 1999 Correlates of intentions to obtain genetic counseling and colorectal cancer gene testing among at-risk relatives from three ethnic groups Cancer Epidemiol Biomarkers Prev 8 329 336 1:STN:280:DyaK1M3isVSntg%3D%3D 10207637
16. Lwanga SK, Lemeshow S (1991) Sample size determination in health studies. World Health Organisation, Geneva
17. Altman D (1991) Practical statistics for medical research. Chapman & Hall, London
18. A Metcalfe J Werrett L Burgess C Clifford 2007 Psychosocial impact of the lack of information given at referral about familial risk for cancer Psychooncology 16 5 458 465 10.1002/pon.1081 10.1002/pon.1081 16933207 (Pubitemid 46840057)
19. RC Unkelbach K Fiedler M Bayer M Stegmüller D Danner 2008 Why positive information is processed faster: the density hypothesis J Pers Soc Psychol 95 1 36 49 10.1037/0022-3514.95.1.36 10.1037/0022-3514.95.1.36 18605850
20. P Slovic ML Finucane E Peters DG Macgregor 2004 Risk as analysis and risk as feelings: some thoughts about affect, reason, risk and rationality Risk Anal 24 2 311 322 10.1111/j.0272-4332.2004.00433.x 10.1111/j.0272-4332.2004.00433.x 15078302 (Pubitemid 38620129)
21. S Sivell R Iredale J Gray B Coles 2007 Cancer genetic risk assessment for individuals at risk of familial breast cancer Cochrane Database Syst Rev 18 2 CD003721
22. CJ Armitage P Norman M Conner 2002 Can the theory of planned behaviour mediate the effects of age, gender and multidimensional health locus of control? Br J Health Psychol 7 299 316 10.1348/135910702760213698 10.1348/ 135910702760213698 12614502 (Pubitemid 34975965)
23. CE Ross J Mirowsky 2002 Age and the gender gap in the sense of personal control Soc Psychol Q 65 2 125 145 10.2307/3090097 10.2307/3090097
24. AH Pieterse MG Ausems AM Van Dulmen FA Beemer JM Bensing 2005 Initial cancer genetic counseling consultation: change in counselees' cognitions and anxiety, and association with addressing their needs and preferences Am J Med Genet A 137 27 35 10.1002/ajmg.a.30839 16007615 (Pubitemid 41105531)
25. AH Pieterse AM Van Dulmen MGEM Ausems FA Beemer JM Bensing 2005 Communication in cancer genetic counselling: does it reflect counselees' previsit needs and preferences? Br J Cancer 92 1671 1678 10.1038/sj.bjc.6602570 10.1038/sj.bjc.6602570 1:STN:280:DC%2BD2M3jsV2juw%3D%3D 15841073 (Pubitemid 40756477)