What, if anything, is specific about having a rare disorder? Patients' judgements on being ill and being rare

Health Expectations

Volumn 12, Issue 4, 2009, Pages 361-370

  Huyard, Caroline ^a  

^a ÉCOLE DES HAUTES ÉTUDES EN SCIENCES SOCIALES   (France)

Author keywords

Illness experience; Moral expectations; Rare diseases

Indexed keywords

ARTICLE; CLINICAL ARTICLE; CYSTIC FIBROSIS; DAILY LIFE ACTIVITY; FRAGILE X SYNDROME; HEALTH PRACTITIONER; HUMAN; MASTOCYTOSIS; PRIORITY JOURNAL; RARE DISEASE; SEMI STRUCTURED INTERVIEW; WILSON DISEASE;

CHILD; CHILD, PRESCHOOL; FEMALE; FRANCE; HUMANS; INTERVIEWS AS TOPIC; JUDGMENT; MALE; PARENTS; PATIENTS; RARE DISEASES;

EID: 70449503966     PISSN: 13696513     EISSN: 13697625     Source Type: Journal    
DOI: 10.1111/j.1369-7625.2009.00552.x     Document Type: Article

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