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Volumn 16, Issue 6, 2009, Pages 743-758

Working with children in end-of-life decision making

Author keywords

Best interests; Children's autonomy; End of life care; Nurses' role; Relational ethics

Indexed keywords

ARTICLE; CHILD; CHILD ADVOCACY; DECISION MAKING; HUMAN; MEDICAL ETHICS; PARENT; PATIENT PARTICIPATION; PERSONAL AUTONOMY; PSYCHOLOGICAL ASPECT; TERMINAL CARE; TREATMENT REFUSAL;

EID: 70449433236     PISSN: 09697330     EISSN: 14770989     Source Type: Journal    
DOI: 10.1177/0969733009341910     Document Type: Article
Times cited : (19)

References (51)
  • 1
    • 70449358953 scopus 로고
    • United Nations. New York: UN, Retrieved May 30, from
    • United Nations. Convention on the rights of the child. New York: UN, 1989. Retrieved May 30, 2007, from: http://www.ohchr.org/english/law/pdf/crc.pdf.
    • (1989) Convention on the Rights of the Child
  • 3
    • 17844366895 scopus 로고    scopus 로고
    • Listening authentically to youthful voices: A conception of the moral agency of children
    • In: Storch JL, Rodney P, Starzomski R eds., Toronto, ON: Pearson Education Canada
    • Carnevale FA Listening authentically to youthful voices: a conception of the moral agency of children. In: Storch JL, Rodney P, Starzomski R eds. Toward a moral horizon: nursing ethics for leadership and practice. Toronto, ON: Pearson Education Canada, 2004: 396-413.
    • (2004) Toward a Moral Horizon: Nursing Ethics for Leadership and Practice , pp. 396-413
    • Carnevale, F.A.1
  • 4
    • 70449457225 scopus 로고    scopus 로고
    • Involving children in medical decisions
    • In: Baylis F, Downie J, Hoffmaster B, Sherwin S eds., second edition., Toronto, ON: Harcourt Brace
    • Harrison C., Kenny NP, Sidarous M., Rowell M. Involving children in medical decisions. In: Baylis F, Downie J, Hoffmaster B, Sherwin S eds. Health care ethics in Canada, second edition. Toronto, ON: Harcourt Brace, 2004: 229-33.
    • (2004) Health care Ethics in Canada , pp. 229-33
    • Harrison, C.1    Kenny, N.P.2    Sidarous, M.3    Rowell, M.4
  • 5
    • 17844384516 scopus 로고    scopus 로고
    • Ethical care of the critically ill child: A conception of a 'thick' bioethics
    • Carnevale FA Ethical care of the critically ill child: a conception of a 'thick' bioethics. Nurs Ethics. 2005; 12: 239-52.
    • (2005) Nurs Ethics , vol.12 , pp. 239-52
    • Carnevale, F.A.1
  • 6
    • 70449429130 scopus 로고    scopus 로고
    • Introduction: The adolescent alone: You got nobody in your corner
    • In: Bluestein J, Levine C, Dubler NN eds., New York: Cambridge University Press
    • Bluestein J., Levine C., Dubler NN Introduction: The adolescent alone: you got nobody in your corner. In: Bluestein J, Levine C, Dubler NN eds. The adolescent alone: decision making in health care in the United States. New York: Cambridge University Press, 2000: 1-20.
    • (2000) The Adolescent Alone: Decision Making in Health Care in the United States , pp. 1-20
    • Bluestein, J.1    Levine, C.2    Dubler, N.N.3
  • 7
    • 40349102014 scopus 로고    scopus 로고
    • Paediatric palliative care: Challenges and emerging ideas
    • Liben S., Papadatou D., Wolfe J. Paediatric palliative care: challenges and emerging ideas. Lancet 2008; 371: 852-64.
    • (2008) Lancet , vol.371 , pp. 852-64
    • Liben, S.1    Papadatou, D.2    Wolfe, J.3
  • 8
    • 70449364799 scopus 로고    scopus 로고
    • Canadian Charter of Rights and Freedom. Enacted by the Canada Act 1982 (UK), c.11 Retrieved 29 June, from
    • Canadian Charter of Rights and Freedom. Enacted by the Canada Act 1982 (UK), c.11. Retrieved 29 June, 2009, from: http://www.efc.ca/pages/law/charter/charter.text.html.
    • (2009)
  • 9
    • 0034198202 scopus 로고    scopus 로고
    • Mature minors should have the right to refuse life-sustaining medical treatment
    • Derish MT, Vanden Heuve K. Mature minors should have the right to refuse life-sustaining medical treatment. J Law Med Ethics 2000; 28: 109-24.
    • (2000) J Law Med Ethics , vol.28 , pp. 109-24
    • Derish, M.T.1    Vanden Heuve, K.2
  • 12
    • 62649112725 scopus 로고    scopus 로고
    • Canadian Nurses Association., Ottawa, ON: CNA
    • Canadian Nurses Association. Code of ethics for registered nurses. Ottawa, ON: CNA, 2008.
    • (2008) Code of Ethics for Registered Nurses
  • 13
    • 15944412648 scopus 로고    scopus 로고
    • Nursing ethics: A developing moral terrain
    • In: Baylis F, Downie J, Hoffmaster B, Sherwin S eds., second edition., Toronto, ON: Harcourt Brace
    • Storch JL Nursing ethics: a developing moral terrain. In: Baylis F, Downie J, Hoffmaster B, Sherwin S eds. Health care ethics in Canada, second edition. Toronto, ON: Harcourt Brace, 2004: 1-16.
    • (2004) Health Care Ethics in Canada , pp. 1-16
    • Storch, J.L.1
  • 15
    • 0142074351 scopus 로고    scopus 로고
    • Ethics needs principles - four can encompass the rest - and respect for autonomy should be 'first among equals
    • Gillon R. Ethics needs principles - four can encompass the rest - and respect for autonomy should be 'first among equals'. J Med Ethics 2003; 29: 307-12.
    • (2003) J Med Ethics , vol.29 , pp. 307-12
    • Gillon, R.1
  • 16
    • 0842333973 scopus 로고    scopus 로고
    • Ethical practice in nursing: Working the in-betweens
    • Varcoe C., Doane, G., Bernadette P.et al.Ethical practice in nursing: working the in-betweens. J Adv Nurs 2004; 45: 316-25.
    • (2004) J Adv Nurs , vol.45 , pp. 316-25
    • Varcoe, C.1    Doane, G.2    Bernadette, P.3
  • 17
    • 33645193967 scopus 로고    scopus 로고
    • Relational ethics: An action ethic as a foundation for healthcare
    • In: Tshudin V ed., Woburn, MA: Butterworth-Heinemann
    • Austin W., Bergum V., Dossetor J. Relational ethics: an action ethic as a foundation for healthcare. In: Tshudin V ed. Approaches to ethics. Woburn, MA: Butterworth-Heinemann, 2003: 45-52.
    • (2003) Approaches to Ethics , pp. 45-52
    • Austin, W.1    Bergum, V.2    Dossetor, J.3
  • 18
    • 58149198690 scopus 로고    scopus 로고
    • Ethics in a time of contagion: A relational perspective
    • Austin W. Ethics in a time of contagion: a relational perspective. Can J Nurs Res 2008; 40: 10-24.
    • (2008) Can J Nurs Res , vol.40 , pp. 10-24
    • Austin, W.1
  • 20
    • 17844381088 scopus 로고    scopus 로고
    • Relational ethics in nursing
    • In: Storch JL, Rodney P, Starzomski R eds., Toronto, ON: Pearson Education Canada
    • Bergum V. Relational ethics in nursing. In: Storch JL, Rodney P, Starzomski R eds. Toward a moral horizon: nursing ethics for leadership and practice. Toronto, ON: Pearson Education Canada, 2004: 485-503.
    • (2004) Toward a Moral Horizon: Nursing Ethics for Leadership and Practice , pp. 485-503
    • Bergum, V.1
  • 21
    • 33846005121 scopus 로고    scopus 로고
    • Relational ethics and advocacy in nursing: Literature review
    • MacDonald H. Relational ethics and advocacy in nursing: literature review. J Adv Nurs 2006; 57: 119-25.
    • (2006) J Adv Nurs , vol.57 , pp. 119-25
    • MacDonald, H.1
  • 22
    • 33745895292 scopus 로고    scopus 로고
    • Living in a world without closure: Reality for parents who have experienced the death of a child
    • Woodgate RL Living in a world without closure: reality for parents who have experienced the death of a child. J Palliat Care 2006; 22(2): 75-82.
    • (2006) J Palliat Care , vol.22 , Issue.2 , pp. 75-82
    • Woodgate, R.L.1
  • 24
    • 29444454249 scopus 로고    scopus 로고
    • Issues involved in promoting patient autonomy in health care
    • Hewitt-Taylor J. Issues involved in promoting patient autonomy in health care. Br J Nurs 2004; 12: 1323-30.
    • (2004) Br J Nurs , vol.12 , pp. 1323-30
    • Hewitt-Taylor, J.1
  • 25
    • 1642317568 scopus 로고    scopus 로고
    • Treatment decisions regarding infants, children and adolescents
    • Canadian Pediatric Society
    • Canadian Pediatric Society. Treatment decisions regarding infants, children and adolescents. Paediatr Child Health 2004; 9(2): 99-103.
    • (2004) Paediatr Child Health , vol.9 , Issue.2 , pp. 99-103
  • 29
    • 0036053334 scopus 로고    scopus 로고
    • Children's body knowledge: Understanding 'life' as a biological goal
    • Jaakola RO, Slaughter V. Children's body knowledge: understanding 'life' as a biological goal. Br J Dev Psychol 2002; 20: 325-42.
    • (2002) Br J Dev Psychol , vol.20 , pp. 325-42
    • Jaakola, R.O.1    Slaughter, V.2
  • 30
    • 0021511016 scopus 로고
    • Children's understanding of death: A review of three components of a death concept
    • Speece M., Brent B. Children's understanding of death: a review of three components of a death concept. Child Dev 1985; 55: 1671-85.
    • (1985) Child Dev , vol.55 , pp. 1671-85
    • Speece, M.1    Brent, B.2
  • 31
    • 0028959392 scopus 로고
    • Informed consent, parental permission, and assent in pediatric practice
    • American Academy of Pediatrics
    • American Academy of Pediatrics. Informed consent, parental permission, and assent in pediatric practice. Pediatrics 1995; 95: 314-17.
    • (1995) Pediatrics , vol.95 , pp. 314-17
  • 32
    • 0013286637 scopus 로고    scopus 로고
    • Valid consent to treatment and unsupervised adolescent
    • In: Bluestein J, Levine C, Dubler NN eds., New York: Cambridge University Press
    • Blustein J., Moreno JD Valid consent to treatment and unsupervised adolescent. In: Bluestein J, Levine C, Dubler NN eds. The adolescent alone: decision making in health care in the United States. New York: Cambridge University Press, 2000: 100-10.
    • (2000) The Adolescent Alone: Decision Making in Health Care in the United States , pp. 100-10
    • Blustein, J.1    Moreno, J.D.2
  • 33
    • 0023615286 scopus 로고
    • The child's choice: An essential component in treatment decisions
    • Erlen JA The child's choice: an essential component in treatment decisions. Child Health Care 1987; 15: 156-60.
    • (1987) Child Health Care , vol.15 , pp. 156-60
    • Erlen, J.A.1
  • 34
    • 0038582380 scopus 로고    scopus 로고
    • Ethical problems in pediatric critical care: Consent
    • Zawistowski CA, Frader JE Ethical problems in pediatric critical care: consent. Crit Care Med 2003; 31(5): S407-10.
    • (2003) Crit Care Med , vol.31 , Issue.5
    • Zawistowski, C.A.1    Frader, J.E.2
  • 35
    • 17844379530 scopus 로고    scopus 로고
    • Ethical issues in adolescent consent for research
    • Lind C., Anderson B., Oberle K. Ethical issues in adolescent consent for research. Nurs Ethics 2003; 10: 504-11.
    • (2003) Nurs Ethics , vol.10 , pp. 504-11
    • Lind, C.1    Anderson, B.2    Oberle, K.3
  • 36
    • 33644865773 scopus 로고    scopus 로고
    • Obligations of clinicians to treat unwilling children and young people: An ethical discussion
    • Zutlevics TL, Henning H. Obligations of clinicians to treat unwilling children and young people: an ethical discussion. J Pediatr Child Health 2005; 41: 677-81.
    • (2005) J Pediatr Child Health , vol.41 , pp. 677-81
    • Zutlevics, T.L.1    Henning, H.2
  • 37
    • 7644224748 scopus 로고    scopus 로고
    • Relational ethics of comfort, touch, and solace - endangered arts?
    • Benner P. Relational ethics of comfort, touch, and solace - endangered arts? Am J Crit Care 2004; 13: 346-49.
    • (2004) Am J Crit Care , vol.13 , pp. 346-49
    • Benner, P.1
  • 38
    • 4944230872 scopus 로고    scopus 로고
    • Truth-telling in clinical practice and the arguments for and against: A review of the literature
    • Tuckett AG Truth-telling in clinical practice and the arguments for and against: a review of the literature. Nurs Ethics 2004; 11: 500-13.
    • (2004) Nurs Ethics , vol.11 , pp. 500-13
    • Tuckett, A.G.1
  • 39
    • 0037220827 scopus 로고    scopus 로고
    • End-of-life issues of children
    • Gowan D. End-of-life issues of children. Pediatr Transplant 2003; 7(suppl.3): 40-43.
    • (2003) Pediatr Transplant , vol.7 , Issue.SUPPL. 3 , pp. 40-43
    • Gowan, D.1
  • 40
    • 0942268154 scopus 로고    scopus 로고
    • Communicating sad, bad, and difficult news in medicine
    • Fallowfield L., Jenkins V. Communicating sad, bad, and difficult news in medicine. Lancet 2004; 323: 312-19.
    • (2004) Lancet , vol.323 , pp. 312-19
    • Fallowfield, L.1    Jenkins, V.2
  • 42
    • 1842630508 scopus 로고    scopus 로고
    • Decision making during hospitalization: Parents' and children's involvement
    • Hallstrom I., Elander G. Decision making during hospitalization: parents' and children's involvement. J Clin Nurs 2004; 13: 367-75.
    • (2004) J Clin Nurs , vol.13 , pp. 367-75
    • Hallstrom, I.1    Elander, G.2
  • 43
    • 0001920620 scopus 로고
    • Existential advocacy: Philosophical foundations of nursing
    • In: Spicker SF, Gadow S eds., New York: Springer Publishing
    • Gadow S. Existential advocacy: philosophical foundations of nursing. In: Spicker SF, Gadow S eds. Nursing: images and ideals. New York: Springer Publishing, 1980: 79-101.
    • (1980) Nursing: Images and Ideals , pp. 79-101
    • Gadow, S.1
  • 45
    • 70449381804 scopus 로고    scopus 로고
    • Relational approach to autonomy in health care
    • In: Baylis F, Downie J, Hoffmaster B, Sherwin S eds., Toronto, ON: Harcourt Brace
    • Sherwin S. Relational approach to autonomy in health care. In: Baylis F, Downie J, Hoffmaster B, Sherwin S eds. Health care ethics in Canada, second edition. Toronto, ON: Harcourt Brace, 2004: 192-208.
    • (2004) Health Care Ethics in Canada, Second Edition , pp. 192-208
    • Sherwin, S.1
  • 46
    • 0029806864 scopus 로고    scopus 로고
    • Ethical theory, ethnography, and differences between doctors and nurses in approaches to patient care
    • Robertson DW Ethical theory, ethnography, and differences between doctors and nurses in approaches to patient care. J Med Ethics 1996; 22: 292-99.
    • (1996) J Med Ethics , vol.22 , pp. 292-99
    • Robertson, D.W.1
  • 48
    • 5744227935 scopus 로고    scopus 로고
    • Patient autonomy and medical paternity: Can nurses help doctors to listen to patients?
    • Breier-Mackie S. Patient autonomy and medical paternity: can nurses help doctors to listen to patients? Nurs Ethics 2001; 8: 510-21.
    • (2001) Nurs Ethics , vol.8 , pp. 510-21
    • Breier-Mackie, S.1
  • 50
    • 0003894007 scopus 로고    scopus 로고
    • Caring is the candle that lights the dark, that permits us to find answers where others see none
    • Benner P., Wrubel J. Caring is the candle that lights the dark, that permits us to find answers where others see none. Am J Nurs 1998; 98: 1073-75.
    • (1998) Am J Nurs , vol.98 , pp. 1073-75
    • Benner, P.1    Wrubel, J.2


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