Fathers' views and understanding of their roles in families with a child with acute lymphoblastic leukaemia: An interpretative phenomenological analysis

Journal of Health Psychology

Volumn 14, Issue 8, 2009, Pages 1268-1280

  Hill, Karalyn ^a,c   Higgins, Aiveen ^b   Dempster, Martin ^b   McCarthy, Anthony ^b  

^a SOUTHERN HEALTH AND SOCIAL CARE TRUST   (United Kingdom)

^b QUEEN'S UNIVERSITY BELFAST   (United Kingdom)

^c Child and Family Clinic   (United Kingdom)

Author keywords

Childhood ALL; Families; Fathers; Interpretative phenomenological analysis; Roles

Indexed keywords

ACUTE LYMPHOBLASTIC LEUKEMIA; ARTICLE; COPE REARRANGEMENT; FAMILY; HUMAN; MOTIVATION; PATERNAL ATTITUDE; PHENOMENOLOGY; PRIORITY JOURNAL; RESPONSIBILITY; SEMI STRUCTURED INTERVIEW; SOCIAL SUPPORT;

ADAPTATION, PSYCHOLOGICAL; ADULT; CAREGIVERS; CHILD; CHILD, PRESCHOOL; DEFENSE MECHANISMS; FATHER-CHILD RELATIONS; GENDER IDENTITY; HUMANS; INFANT; INTERVIEWS AS TOPIC; MALE; MARRIAGE; MATERNAL BEHAVIOR; MOTHER-CHILD RELATIONS; PATERNAL BEHAVIOR; PRECURSOR CELL LYMPHOBLASTIC LEUKEMIA-LYMPHOMA; RETROSPECTIVE STUDIES; ROLE; SOCIAL RESPONSIBILITY; SOCIAL SUPPORT; SURVIVAL;

EID: 70449408308     PISSN: 13591053     EISSN: 14617277     Source Type: Journal    
DOI: 10.1177/1359105309342291     Document Type: Article

References (27)

1. Allen, S.M., & Hawkins, A.J. (1999). Maternal gatekeeping: Mothers' beliefs and behaviours that inhibit greater father involvement in family work. Journal of Marriage and the Family, 61, 199-212.
2. Barker, C., Pistang, N., & Elliot, R. (2002). Research methods in clinical psychology: An introduction for students and practitioners. Chichester: Wiley.
3. Brocki, J.M., & Wearden, A.J. (2006). A critical evaluation of the use of interpretative phenomenological analysis (IPA) in health psychology. Psychology and Health, 21, 87-108.
4. Brown, K., & Barbarin, O. (1996). Gender differences in parenting a child with cancer. Social Work in Health Care, 22, 53-71.
5. Casey, M. (2004). Understanding adjustment in long-term paediatric cancer survivors. Unpublished D.Clin.Psych dissertation, Queen's University of Belfast, Belfast.
6. Cayse, L.N. (1994). Fathers of children with cancer: A descriptive study of their stressors and coping strategies. Journal of Pediatric Oncology Nursing, 11, 102-108.
7. Chesler, M.A., & Parry, C. (2001). Gender roles and/or styles in crisis: An integrative analysis of the experiences of fathers of children with cancer. Qualitative Health Research, 11, 363-384.
8. Cooper, C. (1999). Continuing care of sick children: Examining the impact of chronic illness. Wiltshire: Mark Allen Publishing Group.
9. Eiser, C. (1993). Growing up with a chronic disease: The impact on children and their families. London: Jessica Kingsley Publishers.
10. Elliot, R., Fischer, C., & Rennie, D. (1999). Evolving guidelines for the publication of qualitative research studies in psychology and related fields. British Journal of Clinical Psychology, 38, 215-229.
11. Gavin, L., & Wysocki, T. (2006). Associations of paternal involvement in disease management with maternal and family outcomes in families with children with a chronic illness. Journal of Pediatric Psychology, 31, 481-489.
12. Hovey, J.K. (2005). Fathers parenting chronically ill children: Concerns and coping strategies. Issues in Comprehensive Pediatric Nursing, 28, 83-95.
13. Jones, J., & Neill-Urban, S. (2003). Father to father: Focus groups of fathers of children with cancer. Social Work in Health Care, 37, 41-61.
14. Kazak, A., Segal-Andrews, A., & Johnson, K. (1995). Pediatric psychology research and practice: A family/ systems approach. In M. C. Roberts (Ed.), Handbook of pediatric psychology (pp. 84-104). New York: Guilford Press.
15. Knafl, K.A., & Deatrick, J.A. (2002). The challenge of normalisation for families of children with chronic conditions. Pediatric Nursing, 28, 49-56.
16. Larkin, M., Watts, S., & Clifton, E. (2006). Giving voice and making sense of interpretative phenomenological analysis. Qualitative Research in Psychology, 3, 102-120.
17. Matta, D.S., & Knudson-Martin, C. (2006). Father responsivity: Couple processes and the coconstruction of fatherhood. Family Process, 45, 19-37.
18. Matud, M.P. (2004). Gender differences in stress and coping styles. Personality and Individual Differences, 37, 1401-1415.
19. May, J. (1996). Fathers: The forgotten parent. Pediatric Nursing, 22, 243-247.
20. McGrath, P., & Chesler, M. (2004). Fathers' perspectives on the treatment of pediatric haematology: Extending the findings. Issues in Comprehensive Pediatric Nursing, 27, 39-61.
21. McGrath, P., & Huff, N. (2003). Including the fathers' perspective in holistic care. Part 1: Findings on the fathers' experience with childhood acute lymphoblastic leukaemia. Australian Journal of Holistic Nursing, 10, 4-12.
22. Orbuch, T., Parry, C., Chesler, M., Fritz, J., & Repetto, P. (2005). Parent-child relationships and quality of life: Resilience among childhood cancer survivors. Family Relations, 54, 171-183.
23. Phares, V., Lopez, E., Fields, S., Kamboukos, D., & Duhig, A. (2005). Are fathers involved in pediatric psychology research and treatment ? Journal of Pediatric Psychology, 30, 631-643.
24. Reid, K., Flowers, P., & Larkin, M. (2005). Interpretative phenomenological analysis: An overview and methodological review. The Psychologist, 18, 20-23.
25. Seiffge-Krenke, I. (2002). 'Come on, say something, dad!': Communication and coping in fathers of diabetic adolescents. Journal of Pediatric Psychology, 27, 439-450.
26. Smith, J.A. (2004). Reflecting on the development of interpretative phenomenological analysis and its contribution to qualitative research in psychology. Qualitative Research in Psychology, 1, 39-54.
27. Smith, J.A., & Osborn, M. (2003). Interpretative phenomenological analysis. In J. A. Smith (Ed.), Qualitative psychology: A practical guide to research methods (pp. 51-80). London: SAGE.