Living and doing with chronic pain: Narratives of pain program participants

Disability and Rehabilitation

Volumn 31, Issue 24, 2009, Pages 2031-2040

  Huet, Helen Van ^a   Innes, Ev ^b   Whiteford, Gail ^c  

^a CHARLES STURT UNIVERSITY   (Australia)

^b SOUTHERN CROSS UNIVERSITY   (Australia)

^c MACQUARIE UNIVERSITY   (Australia)

Author keywords

Behavioural interventions; Chronic pain; Long term pain management; Narrative methods

Indexed keywords

ADULT; AGED; ARTICLE; AUSTRALIA; CHRONIC PAIN; COGNITIVE THERAPY; CONTROLLED STUDY; DAILY LIFE ACTIVITY; FEMALE; HEALTH PROGRAM; HUMAN; INTERVIEW; MAJOR CLINICAL STUDY; MALE; PRIORITY JOURNAL;

ACTIVITIES OF DAILY LIVING; ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; CHRONIC DISEASE; COGNITIVE THERAPY; FEMALE; HUMANS; MALE; MIDDLE AGED; NEW SOUTH WALES; PAIN; QUALITATIVE RESEARCH; QUALITY OF LIFE;

EID: 70449116202     PISSN: 09638288     EISSN: 14645165     Source Type: Journal    
DOI: 10.3109/09638280902887784     Document Type: Article

References (54)

1. Turk DC, Meichenbaum D, Genest M. Pain and behavioural medicine: a cognitive behavioural perspective. New York: Guilford Press; 1983.
2. Turner JA, Holtzman S, Mancl L. Mediators, moderators and predictors of therapeutic change in cognitive-behavioural therapy for chronic pain. Pain 2007;127:276-286.
3. Turner JA, Ersek M, Kemp C. Self-efficacy for managing pain is associated with disability, depression and pain coping among retirement community residents with chronic pain. J Pain 2005;6:471-479.
4. McCracken LM, Turk DC. Behavioural and cognitivebehavioural treatment for chronic pain. Spine 2002;27: 2564-2573.
5. Morley S, Eccleston C, Williams A. Systematic review and meta-analysis of randomized control trials of cognitive behavioural therapy and behavioural therapy for chronic pain in adults excluding headache. Pain 1999;80:1-13.
6. Vlaeyen JWS, Morley S. Cognitive-behavioural treatments for chronic pain: what works for whom? Clin J Pain 2005; 21:1-8.
7. Hayes SC. Acceptance and commitment therapy, relational frame theory and the third wave of behavioural and cognitive therapies. Behav Ther 2004;35:639-665.
8. Holloway I, Sofaer-Bennett B, Walker J. The stigmatisation of people with chronic back pain. Disabil Rehab 2007;29: 1456-1464.
9. Frank AW. The wounded storyteller. Chicago: The University of Chicago Press; 1995.
10. Kleinman A. The illness narratives. New York: Basic Books; 1988.
11. Corbett M, Foster, NE, Ong BN. Living with low back pain -Stories of hope and despair. Social Sci Med 2007;65: 1584-1594.
12. Bullington J, Nordemar R, Nordemar K, Sjostrom- Flanaghan C. Meaning out of chaos: a way to understand chronic pain. Scand J Caring Sci 2003;17:325-331.
13. Bendelow GA, Williams SJ. The end of the road? Lay views on a pain-relief clinic. Social Sci Med 1996;43:1127-1136.
14. Kugelmann R. Complaining about chronic pain. Social Sci Med 1999;49:16-63.
15. Peolsson M, Hyden LC, Satterlund Larsson U. Living with chronic pain: a dynamic learning process. Scand J Occup Ther 2000;7:114-125.
16. Harding G, Parsons S, Rahman A, Underwood M. It struck me that they didn't understand pain: the specialist pain clinic experience of patients with chronic musculoskeletal pain. Arthrit Rheum (Arthrit Care Res) 2005;53:691-696.
17. Martensson L, Dahlin-Ivanoff S. Experiences of a primary health care rehabilitation programme. A focus group study of persons with chronic pain. Disabil Rehab 2006;28: 985-995.
18. Frank AW. The standpoint of storyteller. Qualit Health Res 2000;10:354-365.
19. Cohn ES, Lyons KD. The perils of power in interpretive research. Am J Occup Ther 2003;57:40-48.
20. Polkinghorne DE. Transformative narratives: From victimic to agentic life plots. Am J Occup Ther 1995;50:299-305.
21. Jensen IB, Bergstrom G, Ljungquist T, Bodin L. A 3-year follow-up of a multidisciplinary rehabilitation programme for back and neck pain. Pain 2005;115:273-283.
22. Walton JA, Madjar I. Phenomenology and nursing. In: Walton IMJA, editor. Nursing and the experience of illness. Phenomenology in practice. Sydney, NSW: Allen and Unwin; 1999.
23. Bailey D, Jackson JM. Qualitative data analysis: challenges and dilemmas related to theory and method. Am J Occup Ther 2003;57:57-65.
24. Rice PL, Ezzy D. Qualitative research methods: a health focus. Victoria, Australia: Oxford University Press; 1999.
25. Kaur S, Stechuchak KM, Coffman CJ, Allen KD, Bastian LA. Gender differences in health care utilization among veterans with chronic pain. J Gen Intern Med 2007;22:228-233.
26. Miller C, Newton SE. Pain perception and expression: the influence of gender, personal self-efficacy, and lifespan socialisation. Pain Manage Nurs 2006;7:148-152.
27. Dalton CC, Gottlieb LN. The concept of readiness to change. J Adv Nurs 2003;42:108-117.
28. Fordyce WE. Behavioural methods in chronic pain and illness. St Louis, MO: Mosby; 1976.
29. Birkholtz M, Aylwin L, Harman RM. Activity pacing in chronic pain management. One aim, but which method? Part II: National activity pacing survey. Br J Occup Ther 2004;67: 481-487.
30. Zenker S, Petraschka M, Schenk M, ReiBhauer A, Newie T, Hermanns K, Wernecke K, Spies C. Adjustment to chronic pain in back pain patients classified according to the motivational stages of chronic pain management. J Pain 2006;7: 417-427.
31. Prochaska JO, DiClemente CC. Stages of change in modification of problem behaviours. Prog Behav Modif 1992;28: 183-218.
32. Kerns RB, Rosenberg R. Predicting responses to self-management treatments for chronic pain: application of the pain stages of change model. Pain 2000;84:49-55.
33. Glenn B, Burns JW. Pain self-management in the process and outcome of multidisciplinary treatment of chronic pain: Evaluation of a stage of change model. J Behav Med 2003; 26:417-433.
34. Hadjistavropoulos H, Shymkiw J. Predicting readiness to selfmanage pain. Clin J Pain 2007;23:259-266.
35. Jensen MP, Nielson WR, Turner JA, Romano JM, Hill ML. Readiness to self-manage pain is associated with coping and with psychological and physical functioning among patients with chronic pain. Pain 2003;104:1456-1464.
36. Rankin J, Holttum, SE. The relationship between acceptance and cognitive representations of pain in participants of a pain management programme. Psychol Health Med 2003;8: 329-334.
37. McCracken LM. Learning to live with the pain: acceptance of pain predicts adjustment in persons with chronic pain. Pain 1998;74:21-27.
38. McCracken LM, Vowles KE. Acceptance of chronic pain. Curr Pain Headache Rep 2006;10:90-94.
39. Keefe FJ, Rumble ME, Scipio CD, Giordano LA, Perri LM. Psychological aspects of persistent pain: current state of the science. J Pain 2004;5:195-211.
40. McCracken LM. Contextual cognitive-behavioural therapy for chronic pain. Seattle: IASP Press; 2005.
41. Nielson WR, Jensen MP, Hill ML. An activity pacing scale for the chronic pain coping inventory: development in a sample of patients with fibromyalgia syndrome. Pain 2001;89:11-115.
42. Sofaer B, Moore AP, Holloway I, Lamberty JM, Thorp TAS, O'Dwyer JO. Chronic pain as perceived by older people: a qualitative study. Age Aging 2005;34:462-466.
43. Engel JM. Cognitive-behavioural treatment of chronic recurrent pain. Occup Ther Int 1994;1:82-89.
44. Townsend E, Editor. Enabling occupation: an occupational therapy perspective. Ottowa: CAOT; 1997.
45. Wilcock AA. Reflections on doing, being and becoming. Aus Occup Ther J 1999;46:1-11.
46. Wilcock AA. Occupation for health. Vol.1. London: College of Occupational Therapists; 2001.
47. Wilcock AA. Occupation for Health. Vol.2. London: College of Occupational Therapists; 2002.
48. Wilcock AA. Occupational science: bridging occupation and health. Can J Occup Ther 2005;72:5-12.
49. Wilcock AA. An occupational perspective of health. Thorofare, NJ: Slack; 1998.
50. World Health Organisation. 1986. Ottowa Charter for Health Promotion: An International Conference on Health
51. Promotion. World Health Organisation 5http://www.who. int/healthpromotion/conferences/oreviousowwawa/en/index.html4. Accessed 2008 15th January.
52. Bloom FR. New beginnings A case study in gay men's changing perception of quality of life during the course of HIV infection. Med Anthropol Quart 2001;15:38-57.
53. Clark F, Carlson M, Polkinghorne D. The legitimacy of life history and narrative approaches to the study of occupation. Am J Occup Ther 1997;51:313-317.
54. Biller N, Arnstein P, Caudill MA, Federman C, Guberman C. Predicting completion of a cognitive-behavioural pain management program by initial measures of a chronic pain patient's readiness for change. Clin J Pain 2000;16: 352-359.