Perceived benefits of online support groups for women with metastatic breast cancer

Women and Health

Volumn 49, Issue 5, 2009, Pages 381-404

  Vilhauer, Ruvanee P ^a  

^a Felician College   (United States)

Author keywords

Computer mediated support; Disclosure; Metastatic breast cancer; Online support groups; Peer support; Self help; Therapeutic factors

Indexed keywords

ARTICLE; BREAST TUMOR; COST OF ILLNESS; FEMALE; HUMAN; INTERNET; METASTASIS; MIDDLE AGED; PATIENT PARTICIPATION; PATIENT SATISFACTION; PATIENT SELECTION; PEER GROUP; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; SATISFACTION; SELF DISCLOSURE; SELF HELP;

BREAST NEOPLASMS; COST OF ILLNESS; FEMALE; HUMANS; INTERNET; MIDDLE AGED; NEOPLASM METASTASIS; PATIENT PARTICIPATION; PATIENT SATISFACTION; PATIENT SELECTION; PEER GROUP; PERSONAL SATISFACTION; QUESTIONNAIRES; SELF DISCLOSURE; SELF-HELP GROUPS;

EID: 70350774366     PISSN: 03630242     EISSN: 15410331     Source Type: Journal    
DOI: 10.1080/03630240903238719     Document Type: Article

References (47)

1. Aranda, S., P. Schofield, L. Weih, P. Yates, D. Milne, R. Faulkner, and N. Voudouris. 2005. Mapping the quality of life and unmet needs of urban women with metastatic breast cancer. Euro J Cancer Care 14:211-22.
2. Bernard, H. R. 2000. Social research methods: Qualitative and quantitative ap- proaches. Thousand Oaks, CA: Sage.
3. Bloch, S., and E. Crouch. 1985. Therapeutic factors in group psychotherapy. New York: Oxford University Press.
4. Butler, T., and A. Fuhriman. 1983. Curative factors in group therapy: A review of the recent literature. Small Group Behav 14:131-42.
5. Corey, G. 1990. Theory and practice of group counseling (3rd ed.). Pacific Grove, CA: Brooks/Cole.
6. Edelman, S., D. R. Bell, and A. D. Kidman. 1999. A group cognitive behavior therapy programme with metastatic breast cancer patients. Psycho-Oncology 8:295-305.
7. Edmonds, C. V. I., G. A. Lockwood, and A. J. Cunningham. 1999. Psychological response to long term group therapy: A randomized trial with metastatic breast cancer patients. Psycho-Oncology 8:74-91.
8. Eysenbach, G., J. Powell, M. Engelsakis, C. Rizo, and A. Stern. 2004. Health related virtual communities and electronic support groups: Systematic review of the effects of online peer to peer interactions. Br Med J 328:1166.
9. Finfgeld, D. 2000. Therapeutic groups online: The good, the bad and the unknown. Iss Mental Health Nurs 21:241-55.
10. Goodman, G., and M. Jacobs. 1994. The self-help mutual support group. In Hand- book of Group Psychotherapy, eds. A. Fuhriman and G. Burlingame. New York: Wiley.
11. Gray, R., M. Fitch, C. Davis, and C. Phillips. 1997. A qualitative study of breast cancer self-help groups. Psycho-Oncology 6:279-89.
12. Hoybye, M. T., C. Johansen, and T. Tjornhoj-Thomsen. 2005. Online interaction. Effects of storytelling in an internet breast cancer support group. Psycho-Oncology 14:211-20.
13. Hsieh, H., and S. E. Shannon. 2005. Three approaches to qualitative content analysis. Qualitative Health Res 15:1277.
14. Kurtz, L. F. 1997. Self-help and support groups: A handbook for practitioners. Thousand Oaks, CA: Sage.
15. Lepore, S. J. 1997. Expressive writing moderates the relation between intrusive thoughts and depressive symptoms. J Person & Social Psychol 73:1030-7.
16. Lese, K. P., and R. R. MacNair-Semands. 2000. The Therapeutic Factors Inventory: Development of a scale. Group 24:303-17.
17. Lewis, O. 2008. Welcome to the club no one wants to join: Cyberspace support groups aid the dying and the bereaved. Pew Internet and American Life Project. Retrieved November 21, 2008, from http://www.pewinternet.org/PPF/r/24/presentation_display.asp
18. Lieberman, M. 2007. The role of insightful disclosure in outcomes for women in peerdirected breast cancer groups: A replication study. Psychooncology 16:961-4. Lieberman, M. A., and L. Borman. 1979. Self-help groups for coping in crisis. San Francisco, CA: Jossey-Bass.
19. Lieberman, M. A., M. Golant, J. Giese-Davis, A. Winzenberg, H. Benjamin, K. Humphreys, C. Kronen-Wetter, S. Russo, and D. Spiegel. 2003. Electronic support groups for breast carcinoma: A clinical trial of effectiveness. Cancer 97:920-5.
20. Lieberman, M. A., and B. A. Goldstein. 2005. Self-help online: An outcome evaluation of breast cancer bulletin boards. J Health Psychol 10:855-62.
21. Lieberman, M. A., and B. A. Goldstein. 2006. Not all negative emotions are equal: The role of emotional expression in online support groups for women with breast cancer. Psycho-Oncology 15:160-8.
22. Love, S. 2005. Dr. Susan Love's breast book (2nd ed.). Reading, MA: Addison-Wesley.
23. Magen, R. H., and M. Glajchen. 1999. Cancer support groups: Client outcome and the context of group process. Res Soc Work Pract 95:541-54.
24. Mahon, S. M., D. F. Cella, and M. I. Donovan. 1990. Psychosocial adjustment to recurrent cancer. Oncol Nurs Forum 1(Suppl):47-54.
25. Mayer, M. 1998. Advanced breast cancer: A guide to living with metastatic disease. Beijing; Cambridge, MA: Patient-Centered Guides.
26. McKenna, K. Y. A., and A. S. Green. 2002. Virtual group dynamics. Group Dyn: Theory, Res & Pract 6:116-27.
27. Pennebaker, J. W. 1997a. Writing about emotional experiences as a therapeutic process. Psychol Sci 8:162-6.
28. Pennebaker, J. W. 1997b. Opening up: The healing power of expressing emotions. New York: Guilford.
29. Pew Internet & American Life Project. 2008. Internet activities. Retrieved April 2, 2008, from http://www.pewinternet.org/trends/Internet_Activities_2.15.08.htm
30. Posthuma, B. W. 1999. Small groups in counseling and therapy: Process and lead- ership (3rd ed.). Boston: Allyn and Bacon.
31. Price, J. E. 2004. Concepts and mechanisms of breast cancer metastasis. In The breast: Comprehensive management of benign and malignant disorders (3rd ed.), eds. K. I. Bland and E. M. Copeland. St. Louis, MO: Elsevier.
32. Rodgers, S., and Q. Chen. 2005. Internet community group participation: Psychosocial benefits for women with breast cancer. J Computer-Mediated Commun 10: Article 5. Retrieved March 17, 2008, from http://jcmc.indiana.edu/vol10/issue4/rodgers.html
33. Rootes, M. S., and D. L. Aanes. 1992. A conceptual framework for understanding self-help groups. Hosp & Commun Psych 43:379-81.
34. Sandaunet, A.-G. 2008. The challenge of fitting in: Non-participation and withdrawal from an online self-help group for breast cancer patients. Sociol Health & Illness 30:131-44.
35. Sharf, B. F. 1997. Communicating breast cancer online: Support and empowerment on the Internet. Women & Health 26:65-84.
36. Shaw, B., R. P. Hawkins, F. McTavish, S. Pingree, and D. Gustafson. 2006. Effects of insightful disclosure within computer-mediated support groups on women with breast cancer. Health Commun 19:133-42.
37. Shaw, B., F. McTavish, R. P. Hawkins, D. Gustafson, and S. Pingree. 2000. Experiences of women with breast cancer: Exchanging social support over the CHESS computer network. J Health Commun 5:135-49.
38. Singer, B. A. 1983. Psychosocial trauma, defense strategies, and treatment considerations in cancer patients and their families. Am J Fam Ther 11:15-21.
39. Spiegel, D., J. R. Bloom, and I. D. Yalom. 1981. Group support for patients with metastatic breast cancer. Archives Gen Psych 38:527-33.
40. Spiegel, D., J. R. Bloom, H. C. Kramer, and E. Gottheil. 1989. Effect of psychosocial treatment on survival of patients with metastatic breast cancer. Lancet 2:888-91.
41. Stevens, M. J., and J. E. Duttlinger. 1998. Correlates of participation in a breast cancer support group. J Psychosomatic Res 45:263-275.
42. van Uden-Kraan, C. F., C. H. C. Drossaert, E. Taal, C. E. I. Lebrun, K. W. Drossaers- Bakker, W. M. Smit, E. R. Seydel, and M. A. F. J. van de Laar. 2008. Coping with somatic illnesses in online support groups: Do the feared disadvantages actually occur? Comput Human Behav 24:309-24.
43. Vilhauer, R. 2008. A qualitative study of the experiences of women with metastatic breast cancer. Palliat & Support Care 6:249-58.
44. Weinberg, N., J. S. Uken, J. Schmale, and M. Adamek. 1995. Therapeutic factors: Their presence in a computer-mediated support group. Social Work with Groups 18:57-69.
45. Winzelberg, A. 1997. The analysis of an electronic support group for individuals with eating disorders. Comput Human Behav 13:393-407.
46. Winzelberg, A. J., C. Classen, G. W. Alpers, H. Roberts, C. Koopman, R. E. Adams, H. Ernst, P. Dev, and C. B. Taylor. 2003. Evaluation of an Internet support group for women with primary breast cancer. Cancer 97:1164-73.
47. Yalom, I. D. 1995. Theory and practice of group psychotherapy, 4th ed. New York: Basic Books.