Disparate routes through support: Negotiating the sites, stages and support of informal dementia care

Health and Place

Volumn 16, Issue 1, 2010, Pages 101-107

  Egdell, Valerie ^a   Bond, John ^b   Brittain, Katie ^b   Jarvis, Helen ^a  

^a NEWCASTLE UNIVERSITY   (United Kingdom)

^b NEWCASTLE UNIVERSITY   (United Kingdom)

Author keywords

Care; Dementia; Household resources; Support networks

Indexed keywords

AGING POPULATION; COPING STRATEGY; HEALTH CARE; INFORMAL SECTOR;

ADULT; AGED; ARTICLE; CAREGIVER; CAREGIVER BURDEN; CAREGIVER SUPPORT; COMMUNITY CARE; COPING BEHAVIOR; DEMENTIA; ELDERLY CARE; FAMILY COPING; FEMALE; HEALTH CARE NEED; HOME CARE; HUMAN; HUMAN RELATION; LONG TERM CARE; MALE; NORMAL HUMAN; PRIORITY JOURNAL; SOCIAL ISOLATION; SUPPORT GROUP;

EID: 70350769102     PISSN: 13538292     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.healthplace.2009.09.002     Document Type: Article

References (82)

1. Aboderin, I., 2005. Conditionality' and 'Limits' of Filial Obligation: Conceptual Levers for Developing a Better Understanding of the Motivational Basis and Societal Shifts or Patterns in Old Age Family Support Working Paper No. 205. Institute of Ageing, Oxford.
2. Allan G. Insiders and outsiders: boundaries around the home. In: Allan G., and Crow G. (Eds). Home and Family. Creating the Domestic Sphere (1989), Macmillan, Houndmills, Basingstoke, Hampshire 141-158
3. Aneshensel C., Pearlin L., Mulla J., Zarit S., and Whitlatch C. Profiles in Caregiving. The Unexpected Career (1995), Academic Press, San Diego, New York, Boston, London, Sydney, Tokyo, Toronto
4. Angus J., Kontos P., Dyck I., McKeever P., and Poland B. The personal significance of home: habitus and the experience of receiving long-term home care. Sociology of Health and Illness 27 2 (2005) 161-187
5. Bell J. Doing Your Research Project. A Guide for First-Time Researchers in Education, Health and Social Science. fourth ed. (2005), Open University Press, Maidenhead
6. Biggs S., and Powell J. A Foucauldian analysis of old age and the power of social welfare. Journal of Aging and Social Policy 12 2 (2001) 93-112
7. Blunt A., and Dowling R. Home (2006), Routledge, London and New York
8. Bond J., Stave C., Sganga A., O'Connell B., and Stanley R. Inequalities in dementia care across Europe: key findings of the facing dementia survey. International Journal of Clinical Practice 59 (2005) 8-14
9. Bourdieu P. Outline of a Theory of Practice (1977), Cambridge University Press, Cambridge, New York
10. Bourdieu P. The Logic of Practice (1992), Polity Press, Cambridge, Oxford
11. Bywaters P., and Harris A. Supporting carers: is practice still sexist?. Health and Social Care in the Community 6 6 (1998) 458-463
12. Carpentier N., and Ducharme F. Care-giver network transformations: the need for an integrated perspective. Ageing and Society 23 4 (2003) 507-525
13. Charmaz K. Constructing Grounded Theory. A Practical Guide through Qualitative Analysis (2006), Sage Publications, London
14. Clarke C. Risk: constructing care and care environments in dementia. Health, Risk and Society 2 1 (2000) 83-93
15. COREC, June 2005. Standard Operating Procedures for Research Ethics Committees. Version 3.0. Available at: 〈http://www.corec.org.uk/applicants/help/docs/SOPs.doc〉 (Accessed: 20.11.06).
16. COREC, March 2006. Question-Specific Guidance on the NHS REC Application Form. Available at: 〈http://www.corec.org.uk/applicants/apply/docs/Question-specific_Guidance.doc〉 (Accessed: 20.11.06).
17. Crooks V., and Chouinard V. An embodied geography of disablement: chronically ill women's struggles for enabling places in spaces of health care and daily life. Health and Place 12 3 (2006) 345-352
18. Crow G. The post-war development of the modern domestic ideal. In: Allan G., and Crow G. (Eds). Home and Family. Creating the Domestic Sphere (1989), Macmillan, Houndmills, Basingstoke, Hampshire 14-32
19. Daly M., and Lewis J. The concept of social care and the analysis of contemporary welfare states. British Journal of Sociology 51 2 (2000) 281-298
20. Department of Work and Pensions, May 2009. Carer's Allowance. Available at: 〈http://www.direct.gov.uk/en/CaringForSomeone/MoneyMatters/DG_10012522〉 (accessed: 07.07.09).
21. Dyck I. Hidden geographies-the changing lifeworlds of women with multiple-sclerosis. Social Science and Medicine 40 3 (1995) 307-320
22. Dyck I., Kontos P., Angus J., and McKeever P. The home as a site for long-term care: meanings and management of bodies and space. Health and Place 11 2 (2005) 173-185
23. England P. Emerging theories of care work. Annual Review of Sociology 31 (2005) 381-399
24. Fast J., Keating N., Otfinowski P., and Derksen L. Characteristics of family/friend care networks of frail seniors. Canadian Journal on Aging-Revue Canadienne Du Vieillissement 23 1 (2004) 5-19
25. Ferri C.P., Prince M., Brayne C., Brodaty H., Fratiglioni L., Ganguli M., Hall K., Hasegawa K., Hendrie H., Huang Y.Q., Jorm A., Mathers C., Menezes P.R., Rimmer E., and Scazufca M. Global prevalence of dementia: a Delphi consensus study. The Lancet 366 9503 (2005) 2112-2117
26. Finch J., and Groves D. Community care and the family: a case for equal opportunities?. Journal Social Policy 9 4 (1980) 487-511
27. Folbre N. The Invisible Heart: Economics and Family Values (2001), New Press, New York
28. Gilbert T., and Powell J. Family, caring and ageing in the United Kingdom. Scandinavian Journal of Caring Sciences 19 1 (2005) 53-57
29. Goffman E. Asylums: Essays on the Social Situation of Mental Patients and Other Inmates (1968), Penguin, Harmondsworth, New York
30. Himmelweit S. The discovery of "unpaid work": the social consequences of the expansion of "work". Feminist Economics 1 (1995) 1-19
31. Jacelon C., and Imperio K. Participant diaries as a source of data in research with older adults. Qualitative Health Research 15 7 (2005) 991-997
32. Jarvis H. Home truths about care-less competitiveness. International Journal of Urban and Regional Research 31 1 (2007) 207-214
33. Jenkins R. Pierre Bourdieu (2002), Routledge, London, New York
34. Johnson J., and Bytheway B. An evaluation of the use of diaries in a study of medication in later life. International Journal of Social Research Methodology 4 3 (2001) 183-204
35. Kane N., and Saltman R. Comparative experience in home care and pharmaceutical policy. Health Policy 41 Suppl. 1 (1997) S1-S7
36. Katbamna S., Ahmad W., Bhakta P., Baker R., and Parker G. Do they look after their own? Informal support for South Asian carers. Health and Social Care in the Community 12 5 (2004) 398-406
37. Kirsi T., Hervonen A., and Jylha M. Always one step behind: husbands' narratives about taking care of their demented wives. Health 8 2 (2004) 159-181
38. Kittay E. A feminist public ethic of care meets the new communitarian family policy. Ethics 111 3 (2001) 523-547
39. Knapp M., Prince M., Albanese E., Banerjee S., Dhanasiri S., Fernandez J.-L., Ferri C., McCrone P., Snell T., and Stewart R. Dementia UK (2007), Alzheimer's Society, London
40. Leonard M. Old wine in new bottles? Women working inside and outside the household. Women's Studies International Forum 24 1 (2001) 67-78
41. Lewis J. The concepts of community care and primary care in the UK: the 1960s to the 1990s. Health and Social Care in the Community 7 5 (1999) 333-341
42. Lewis J. Choice, needs and enabling: the new community care. In: Oakley A., and Williams S. (Eds). The Politics of the Welfare State (1994), UCL Press Limited, London, Bristol, PA 147-180
43. Mackenzie J. Stigma and dementia: east European and South Asian family carers negotiating stigma in the UK. Dementia 5 2 (2006) 233-247
44. Macmillan R., and Townsend A. A 'new institutional fix'? The 'community turn' and the changing role of the voluntary sector. In: Milligan C., and Conradson D. (Eds). Landscapes of Voluntarism. New Spaces of Health, Welfare and Governance (2006), Policy Press, Bristol 15-32
45. McDowell L. Work, workfare, work/life balance and an ethic of care. Progress in Human Geography 28 2 (2004) 145-163
46. McNamee P., Bond J., and Buck D. Costs of dementia in England and Wales in the 21st century. British Journal of Psychiatry 179 (2001) 261-266
47. Meth P. Entries and omissions: using solicited diaries in geographical research. Area 35 2 (2003) 195-205
48. Miller J., and Glassner B. The "inside" and the "outside". Finding realities in interviews. In: Silverman D. (Ed). Qualitative Research. Theory, Method and Practice (2004), SAGE Publications, London 125-139
49. Milligan C. 'Bearing the burden': towards a restructured geography of caring. Area 32 1 (2000) 49-58
50. Milligan C. Geographies of Care, Space, Place and the Voluntary Sector (2001), Ashgate Publishing Limited, Burlington, VT
51. Milligan C. From home to 'home': situating emotions within the caregiving experience. Environment and Planning A 37 12 (2005) 2105-2120
52. Milligan C. Caring for older people in the 21st century: notes from a small island. Health and Place 12 3 (2006) 320-331
53. Mills J., Bonner A., and Francis K. The development of constructivist grounded theory. International Journal of Qualitative Methods 5 1 (2006) 1-10
54. Mills J., Bonner A., and Francis K. Adopting a constructivist approach to grounded theory: implications for research design. International Journal of Nursing Practice 12 1 (2006) 8-13
55. Moss P. Negotiating spaces in home environments: older women living with arthritis. Social Science and Medicine 45 1 (1997) 23-33
56. Oakley A. Introduction. In: Oakley A., and Williams S. (Eds). The Politics of the Welfare State (1994), UCL Press Limited, London, Bristol, PA 1-17
57. Oliver J. The caring wife. In: Finch J., and Groves D. (Eds). A Labour of Love: Women, Work and Caring (1983), Routledge and Kegan Paul, London, Boston 72-88
58. Pacolet J., Bouten R., Lanoye H., and Versieck K. Social Protection for Dependency in Old Age: A Study of the Fifteen EU Member States and Norway (2000), Ashgate, Aldershot
59. Parker G. With this Body. Caring and Disability in Marriage (1993), Open University Press, Buckingham, Philadelphia
60. Parker G., and Clarke H. Making the ends meet: do, carers and disabled people have a common agenda?. Policy and Politics 30 3 (2002) 347-359
61. Parr H., and Philo C. Rural mental health and social geographies of caring. Social and Cultural Geography 4 4 (2003) 471-488
62. Phillipson C., and Powell J. Risk, social welfare and old age. In: Tulle E. (Ed). Old Age and Agency (2004), Nova Science Publishers, Inc., New York 17-26
63. Powell J., and Biggs S. Managing old age: the disciplinary web of power, surveillance and normalization. Journal of Aging and Identity 5 1 (2000) 3-13
64. Powell M. New labour and the third way in the British welfare state: a new and distinctive approach?. Critical Social Policy 20 1 (2000) 39-60
65. Rees Jones I., Hyde M., Victor C., Wiggins R., Gilleard C., and Higgs P. Ageing in a Consumer Society. From Passive to Active Consumption in Britain (2008), Policy Press, Bristol
66. Robinson L., Hutchings D., Corner L., Finch T., Hughes J., Brittain K., and Bond J. Balancing rights and risks: conflicting perspectives in the management of wandering in dementia. Health, Risk and Society 9 4 (2007) 389-406
67. Russell R. The work of elderly men caregivers-From public careers to an unseen world. Men and Masculinities 9 3 (2007) 298-314
68. Silverstein M., Parrott T., and Bengtson V. Factors that predispose middle-aged sons and daughters to provide social support to older parents. Journal of Marriage and the Family 57 2 (1995) 465-475
69. Strauss A., and Corbin J. Basics of Qualitative Research. Grounded Theory Procedures and Techniques (1990), SAGE Publications, Newbury Park, CA
70. Strauss A., and Corbin J. Basics of Qualitative Research. Techniques and Procedures for Developing Grounded Theory. second ed. (1998), SAGE Publications, Thousand Oaks
71. Symonds A. The social reconstruction of care: from the state to the 'community'. In: Symonds A., and Kelly A. (Eds). The Social Construction of Community Care (1998), Macmillan, Houndsmill, Basingstoke 33-50
72. Taraborrelli P. Exemplar A. Becoming a carer. In: Gilbert N. (Ed). Researching Social Life (1993), SAGE Publications, London, Newbury Park, CA 172-186
73. Twigg J. The spatial ordering of care: public and private in bathing support at home. Sociology of Health and Illness 21 4 (1999) 381-400
74. Valentine G. Negotiating and managing multiple sexual identities: lesbian time-space strategies. Transactions of the Institute of British Geographers 18 2 (1993) 237-248
75. Varley A. A place like this? Stories of dementia, home, and the self. Environment and Planning D: Society and Space 26 1 (2008) 47-67
76. Weber, M., 1948. From Max Weber: essays in sociology. Translated, edited, and with an introduction by Gerth, H.H., Wright Mills, C. Routledge and Kegan Paul, London.
77. Wenger G. Help in Old Age: Facing Up to Change-A Longitudinal Network Study (1992), Liverpool UP, Liverpool
78. Wenger G. Support network variation and informal participation in community care. In: Scharf T., and Wenger G. (Eds). International Perspectives on Community Care for Older People (1995), Avebury, Aldershot 41-58
79. Wenger G. Social networks and the prediction of elderly people at risk. Aging and Mental Health 1 4 (1997) 311-320
80. Wiles J. Daily geographies of caregivers: mobility, routine, scale. Social Science and Medicine 57 7 (2003) 1307-1325
81. Williams A. Changing geographies of care: employing the concept of therapeutic landscapes as a framework in examining home space. Social Science and Medicine 55 1 (2002) 141-154
82. Yantzi N., and Rosenberg M. The contested meanings of home for women caring for children with long-term care needs in Ontario, Canada. Gender, Place and Culture 15 3 (2008) 301-315