Psychosocial factors associated with stigma in adults with epilepsy

Epilepsy and Behavior

Volumn 16, Issue 3, 2009, Pages 484-490

  Smith, Gigi ^a   Ferguson, Pamela L ^a   Saunders, Lee L ^a   Wagner, Janelle L ^a   Wannamaker, Braxton B ^a   Selassie, Anbesaw W ^a  

^a MEDICAL UNIVERSITY OF SOUTH CAROLINA   (United States)

Author keywords

Epilepsy; Seizure worry; Self efficacy; Self management; Social support; Stigma

Indexed keywords

ADULT; ADULT DISEASE; ANXIETY; ARTICLE; ATTITUDE TO ILLNESS; CONTROLLED STUDY; DEMOGRAPHY; DISEASE SEVERITY; EMPLOYMENT STATUS; EPILEPSY; FEMALE; HEALTH CARE UTILIZATION; HUMAN; MAJOR CLINICAL STUDY; MALE; ONSET AGE; QUALITY OF LIFE; QUANTITATIVE ANALYSIS; SELF CONCEPT; SOCIAL PSYCHOLOGY; SOCIAL STATUS; SOCIAL SUPPORT; STIGMA; UNITED STATES;

ADOLESCENT; ADULT; AGED; DELIVERY OF HEALTH CARE; EMPLOYMENT; EPILEPSY; FEMALE; HUMANS; MALE; MIDDLE AGED; QUALITY OF LIFE; QUESTIONNAIRES; SELF EFFICACY; SEVERITY OF ILLNESS INDEX; SOCIOECONOMIC FACTORS; YOUNG ADULT;

EID: 70350622312     PISSN: 15255050     EISSN: 15255069     Source Type: Journal    
DOI: 10.1016/j.yebeh.2009.08.028     Document Type: Article

References (36)

1. Devinsky O., Westbrook L., Cramer J., Glassman M., Perrine K., and Camfield C. Risk factors for poor health-related quality of life in adolescents with epilepsy. Epilepsia 40 (1999) 1715-1720
2. Fisher R.S., van Emde B.W., Blume W., et al. Epileptic seizures and epilepsy: definitions proposed by the International League Against Epilepsy (ILAE) and the International Bureau for Epilepsy (IBE). Epilepsia 46 (2005) 470-472
3. De Boer H.M., Mula M., and Sander J.W. The global burden and stigma of epilepsy. Epilepsy Behav 12 (2008) 540-546
4. Jacoby A., and Austin J.K. Social stigma for adults and children with epilepsy. Epilepsia 48 (2007) 6-9
5. Fernandes P.T., Salgado P.C., Noronha A.L., et al. Prejudice towards chronic diseases: comparison among epilepsy, AIDS and diabetes. Seizure 16 (2007) 320-323
6. Collins T.B.K., Camfield P.R., Camfield C.S., and Lee K. People with epilepsy are often perceived as violent. Epilepsy Behav 10 (2007) 69-76
7. DiIorio C., Reisinger E.L., Yeager K.A., and McCarty F. A telephone-based self-management program for people with epilepsy. Epilepsia 14 (2009) 232-236
8. DiIorio C., Osborne Shafer P., Letz R., et al. The association of stigma with self-management and perceptions of health care among adults with epilepsy. Epilepsy Behav 4 (2003) 259-267
9. DiIorio C., Faherty B., and Manteuffel B. Self-efficacy and social support in self-management of epilepsy. West J Nurs Res 14 (1992) 292-303
10. Austin J.K., Dunn D.W., Perkins S.M., and Shen J. Youth with epilepsy: development of a model of children's attitudes toward their condition. Child Health Care 35 (2006) 123-140
11. Pramuka M., Hendrickson R., Zinski A., and Van Cott A.C. A psychosocial self-management program for epilepsy: a randomized pilot study in adults. Epilepsy Behav 11 (2007) 533-545
12. Living Well with Epilepsy II. Report of the 2003 National Conference on Public Health and Epilepsy: priorities for a public health agenda on epilepsy. Landover, MD: Epilepsy Foundation; 2003.
13. International Classification of Diseases, Ninth Revision, Clinical modification. 6th ed. Washington, DC: US Department of Health and Human Services; 1996.
14. DiIorio C., Faherty B., and Manteuffel B. Epilepsy self-management: partial replication and extension. Res Nurs Health 17 (1994) 167-174
15. DiIorio C., Faherty B., and Manteuffel B. The development and testing of an instrument to measure self-efficacy in individuals with epilepsy. J Neurosci Nurs 24 (1992) 9-13
16. Devinsky O., Vickrey B.G., Cramer J., et al. Development of the Quality of Life in Epilepsy inventory. Epilepsia 36 (1995) 1089-1104
17. Cramer J.A., Baker G.A., and Jacoby A. Development of a new seizure severity questionnaire: initial reliability and validity testing. Epilepsy Res 48 (2002) 187-197
18. SAS [computer program]. Version 9.1. Cary, NC: SAS Institute, Inc.; 2002.
19. Freund R.J., and Littell R.C. SAS system for regression. 3rd ed. (2000), SAS Institute Inc., Cary, NC
20. DiIorio C., Shafer P.O., Letz R., et al. Behavioral, social, and affective factors associated with self-efficacy for self-management among people with epilepsy. Epilepsy Behav 9 (2006) 158-163
21. Amir M., Roziner I., Knoll A., and Neufeld M.Y. Self-efficacy and social support as mediators in the relation between disease severity and quality of life in patients with epilepsy. Epilepsia 40 (1999) 216-224
22. Paschal A.M., Hawley S.R., and St. Romain T. Epilepsy patients' perceptions about stigma, education, and awareness: preliminary responses based on a community participatory approach. Epilepsy Behav 11 (2007) 329-337
23. Bishop M., Stenhoff D.M., Bradley K.D., and Allen C.A. The differential effect of epilepsy labels on employer perceptions: report of a pilot study. Epilepsy Behav 11 (2007) 351-356
24. Kobau R., and DiIorio C. Epilepsy self-management: a comparison of self-efficacy and outcome expectancy for medication adherence and lifestyle behaviors among people with epilepsy. Epilepsy Behav 4 (2003) 217-225
25. Robinson E., DiIorio C., DePadilla L., et al. Psychosocial predictors of lifestyle management in adults with epilepsy. Epilepsy Behav 13 (2008) 523-528
26. Koponen A., Seppala U., Eriksson K., et al. Social functioning and psychological well-being of 347 young adults with epilepsy only: population-based, controlled study from Finland. Epilepsia 48 (2007) 907-912
27. Chaplin J.E., Wester A., and Tomson T. Factors associated with the employment problems of people with established epilepsy. Seizure 7 (1998) 299-303
28. Pugh M.J., Berlowitz D.R., Montouris G., et al. What constitutes high quality of care for adults with epilepsy?. Neurology 69 (2007) 2020-2027
29. Smeets V.M., van Lierop B.A., Vanhoutvin J.P., Aldenkamp A.P., and Nijhuis F.J. Epilepsy and employment: literature review. Epilepsy Behav 10 (2007) 354-362
30. Varekamp I., Verbeek J.H.A.M., and van Dijk F.J.H. How can we help employees with chronic diseases to stay at work? A review of interventions aimed at job retention and based on an empowerment perspective. Int Arch Occup Environ Health 80 (2006) 87-97
31. Gehlert S., DiFrancesco A., and Chang C.H. Black-white differences in the psychosocial outcomes of epilepsy. Epilepsy Res 42 (2000) 63-73
32. Paschal A.M., Ablah E., Wetta-Hall R., Molgaard C.A., and Liow K. Stigma and safe havens: a medical sociological perspective on African-American female epilepsy patients. Epilepsy Behav 7 (2005) 106-115
33. Health insurance coverage of the total population, states (2006-2007), US (2007). State Health Facts 2007 [cited 2009 January 29]. Available from: URL: http://www.statehealthfacts.org/comparetable.jsp?ind=125&cat=3&sub=39&yr=85&typ=2.
34. Population distribution by race/ethnicity, states (2006-2007), US (2007). State Health Facts 2007 [cited 2009 January 29]. Available from: URL: http://www.statehealthfacts.org/comparetable.jsp?ind=6&cat=1&sub=1&yr=85&typ=2.
35. Caplin D.A., Rao J.K., Filloux F., Bale J.F., and Van O.C. Development of performance indicators for the primary care management of pediatric epilepsy: expert consensus recommendations based on the available evidence. Epilepsia 47 (2006) 2011-2019
36. Jacoby A., Gorry J., and Baker G.A. Employers' attitudes to employment of people with epilepsy: still the same old story?. Epilepsia 46 (2005) 1978-1987