Receiving information on fertility- and menopause-related treatment effects among women who undergo hematopoietic stem cell transplantation: Changes in perceived importance over time

Biology of Blood and Marrow Transplantation

Volumn 15, Issue 11, 2009, Pages 1465-1474

  Nakayama, Kazutaka ^a   Liu, Ping ^a   Detry, Michelle ^b   Schover, Leslie R ^a   Milbourne, Andrea ^a   Neumann, Joyce ^a   Rondon, Gabriela ^a   Thewes, Belinda ^c   Champlin, Richard E ^a   Ueno, Naoto T ^a  

^a UNIVERSITY OF TEXAS MD ANDERSON CANCER CENTER   (United States)

^b UNIVERSITY OF WISCONSIN SCHOOL OF MEDICINE AND PUBLIC HEALTH   (United States)

^c UNIVERSITY OF SYDNEY   (Australia)

Author keywords

Hematopoeitic stem cell transplantation; Infertility; Information provision; Premature ovarian failure; Questionnarie survey

Indexed keywords

IMMUNOSUPPRESSIVE AGENT;

ADOLESCENT; ADULT; ANXIETY; ARTICLE; ATTITUDE TO PREGNANCY; CHILD; CHILDLESSNESS; DEMOGRAPHY; FEMALE; FEMALE FERTILITY; FEMALE INFERTILITY; GRAFT VERSUS HOST REACTION; HEALTH CARE PERSONNEL; HEMATOLOGIC MALIGNANCY; HEMATOPOIETIC STEM CELL TRANSPLANTATION; HUMAN; INFORMATION DISSEMINATION; INTERPERSONAL COMMUNICATION; MAJOR CLINICAL STUDY; MEDICAL INFORMATION; MENOPAUSAL SYNDROME; MENOPAUSE; MYELOABLATIVE CONDITIONING; PATIENT CARE; PATIENT COUNSELING; PATIENT EDUCATION; PREMATURE OVARIAN FAILURE; QUALITY OF LIFE; QUESTIONNAIRE; REDUCED INTENSITY CONDITIONING; SCHOOL CHILD; SCORING SYSTEM; SEXUAL DYSFUNCTION; STATE TRAIT ANXIETY INVENTORY;

EID: 70350614908     PISSN: 10838791     EISSN: 15236536     Source Type: Journal    
DOI: 10.1016/j.bbmt.2009.07.019     Document Type: Article

References (30)

1. Tyndall A, Saccardi R. Haematopoietic stem cell transplantation in the treatment of severe autoimmune disease: results from phase I/II studies, prospective randomized trials and future directions. Clin Exp Immunol. 2005;141:1-9.
2. Childs R, Chernoff A, Contentin N, et al. Regression of metastatic renal-cell carcinoma after nonmyeloablative allogeneic peripheral-blood stem-cell transplantation. N Engl J Med. 2000;343:750-758.
3. Ueno NT, Cheng YC, Rondon G, et al. Rapid induction of complete donor chimerism by the use of a reduced-intensity conditioning regimen composed of fludarabine and melphalan in allogeneic stem cell transplantation for metastatic solid tumors. Blood. 2003;102:3829-3836.
4. McQuellon RP, Craven B, Russell GB, et al. Quality of life in breast cancer patients before and after autologous bone marrow transplantation. Bone Marrow Transplant. 1996;18:579-584.
5. Socie G, Salooja N,Cohen A, et al. Nonmalignant late effects after allogeneic stem cell transplantation. Blood. 2003;101:3373-3385.
6. Nakayama K, Milbourne A, Schover LR, Champlin RE, Ueno NT. Gonadal failure after treatment of hematologic malignancies: from recognition to management for health-care providers. Nat Clin Pract Oncol. 2008;5:78-89.
7. Chatterjee R, Kottaridis PD. Treatment of gonadal damage in recipients of allogeneic or autologous transplantation for haematological malignancies. Bone Marrow Transplant. 2002;30: 629-635.
8. Syrjala KL, Kurland BF, Abrams JR, Sanders JE, Heiman JR. Sexual function changes during the 5 years after high-dose treatment and hematopoietic cell transplantation for malignancy, with case-matched controls at 5 years. Blood. 2008; 111:989-996.
9. Syrjala KL, Langer SL, Abrams JR, Storer BE, Martin PJ. Late effects of hematopoietic cell transplantation among 10-year adult survivors compared with case-matched controls. J Clin Oncol. 2005;23:6596-6606.
10. Dow KH. Having children after breast cancer. Cancer Pract. 1994;2:407-413.
11. Schover LR, Rybicki LA, Martin BA, Bringelsen KA. Having children after cancer. A pilot survey of survivors' attitudes and experiences. Cancer. 1999;86:697-709.
12. Surbone A, Petrek JA. Childbearing issues in breast carcinoma survivors. Cancer. 1997;79:1271-1278.
13. Schover LR. Motivation for parenthood after cancer: a review. J Natl Cancer Inst Monogr. 2005;2-5.
14. Duffy CM, Allen SM, Clark MA. Discussions regarding reproductive health for young women with breast cancer undergoing chemotherapy. J Clin Oncol. 2005;23:766-773.
15. Partridge AH, Gelber S, Peppercorn J, et al. Web-based survey of fertility issues in young women with breast cancer. J Clin Oncol. 2004;22:4174-4183.
16. Butow PN, Maclean M, Dunn SM, Tattersall MH, Boyer MJ. The dynamics of change: cancer patients' preferences for information, involvement and support. Ann Oncol. 1997;8:857-863.
17. Degner LF, Kristjanson LJ, Bowman D, et al. Information needs and decisional preferences in women with breast cancer. JAMA. 1997;277:1485-1492.
18. Thewes B, Meiser B, Taylor A, et al. Fertility- and menopause-related information needs of younger women with a diagnosis of early breast cancer. J Clin Oncol. 2005;23:5155-5165.
19. Lee SJ, Schover LR, Partridge AH, et al. American Society of Clinical Oncology recommendations on fertility preservation in cancer patients. J Clin Oncol. 2006;24:2917-2931.
20. Belec RH. Quality of life: perceptions of long-term survivors of bone marrow transplantation. Oncol Nurs Forum. 1992;19: 31-37.
21. Hammond C, Abrams JR, Syrjala KL. Fertility and risk factors for elevated infertility concern in 10-year hematopoietic cell transplant survivors and case-matched controls. J Clin Oncol. 2007;25:3511-3517.
22. Cheng YC, Saliba RM, Rondon G, et al. Low prevalence of premature ovarian failure in women given reduced-intensity conditioning regimens for hematopoietic stem-cell transplantation. Haematologica. 2005;90:1725-1726.
23. Thewes B, Meiser B, Rickard J, Friedlander M. The fertility- and menopause-related information needs of younger women with a diagnosis of breast cancer: a qualitative study. Psychooncology. 2003;12:500-511.
24. Marteau TM, Bekker H. The development of a six-item short-form of the state scale of the Spielberger State-Trait Anxiety Inventory (STAI). Br J Clin Psychol. 1992;31(Pt 3):301-306.
25. Greene JG. Constructing a standard climacteric scale. Maturitas. 1998;29:25-31.
26. McQuellon RP, Russell GB, Cella DF, et al. Quality of life measurement in bone marrow transplantation: development of the Functional Assessment of Cancer Therapy-Bone Marrow Transplant (FACT-BMT) scale. Bone Marrow Transplant. 1997;19:357-368.
27. Hjermstad M, Holte H, Evensen S, Fayers P, Kaasa S. Do patients who are treated with stem cell transplantation have a health-related quality of life comparable to the general population after 1 year? Bone Marrow Transplant. 1999;24:911-918.
28. Heinonen H, Volin L, Uutela A, Zevon M, Barrick C, Ruutu T. Quality of life and factors related to perceived satisfaction with quality of life after allogeneic bone marrow transplantation. Ann Hematol. 2001;80:137-143.
29. Zittoun R, Suciu S, Watson M, et al. Quality of life in patients with acute myelogenous leukemia in prolonged first complete remission after bone marrow transplantation (allogeneic or autologous) or chemotherapy: a cross-sectional study of the EORTC-GIMEMA AML 8A trial. Bone Marrow Transplant. 1997;20:307-315.
30. Schover LR, Brey K, Lichtin A, Lipshultz LI, Jeha S. Knowledge and experience regarding cancer, infertility, and sperm banking in younger male survivors. J Clin Oncol. 2002;20: 1880-1889.