Cerebral Palsy

Physical Health of Adults with Intellectual Disabilities

Volumn , Issue , 2008, Pages 63-87

  Rapp, Clyde E ^a   Torres, Margarita ^b  

^a ALBERT EINSTEIN MEDICAL CENTER   (United States)

^b EINSTEIN MEDICAL CENTER   (United States)

Author keywords

Cerebral palsy; Dystonia; Epidemiology; Patients; Spastic paraparesis

Indexed keywords

EID: 70350562300     PISSN: None     EISSN: None     Source Type: Book    
DOI: 10.1002/9780470776216.ch4     Document Type: Chapter

References (63)

1. Alesu, F. (1990) Nature and prognosis of seizures in patients with cerebral palsy. Developmental Medicine and Child Neurology, 32, 661-68.
2. American Dental Association (1992) Oral Health Care Guidelines: Patients With Physical and Mental Disabilities. American Dental Association Council on Com- munity Health Hospital, Institutional and Medical Affairs, Chicago, IL.
3. Amir, R.E., Van den Veyver, I.B., Wan, M., Tran, C.Q., Francke, U. & Zoghbi H.Y. (1999) Rett syndrome is caused by mutations in X-linked MECP2, encoding methyl-CpG-binding protein 2. Nature Genetics, 23, 185-188.
4. Ashworth, B. (1964) Preliminary trial of carisoprodol in multiple sclerosis. The Practitioner, 192, 540-542.
5. Badawi, N., Watson, L., Petterson, B., Blair, E., Slee, J., Haan, E. & Stanley, F. (1998) What constitutes cerebral palsy? Developmental Medicine and Child Neurology, 40, 520-527.
6. Bandin, L.G., Schoeller, D.A., Fukagawa, N.K., Wykes, L.J. & Dietz, W.H. (1991) Body composition and energy expenditure in adolescents with cerebral palsy or myelodysplasia. Pediatric Research, 29, 70-77.
7. Bhushan, V., Paneth, N. & Kiely, J.L. (1993) Impact of improved survival of very low birthweight infants on recent secular trends in the prevalence of cerebral palsy. Pediatrics, 91, 1094-1100.
8. Biotte, M.J., Nidral, V.L. & Akeson, W.H. (1988) Spasticity and contracture: physiologic aspects of formation. Clinical Orthopedics and Related Research, 233, 7-18.
9. Blair, E., Watson, L., Badawi, N. & Stanley, F.J. (2001) Life expectancy among people with cerebral palsy in Western Australia. Developmental Medicine and Child Neurology, 43, 509-515.
10. Bottos, M., Granato, T., Guiseppa, A., Giocchia, C. & Puato, M.L. (1999) Prevalence of cerebral palsy in northeast Italy from 1965 to 1989. Developmental Medicine and Child Neurology, 41, 26-39.
11. Bottos, M., Felklangeli, A., Gericke, C. & Vianello, A. (2001) Functional status of adults with cerebral palsy and implications for treatment. Developmental Medicine and Child Neurology, 43, 516-528.
12. Bradshaw, D., Elkins, T.E. & Quint, E.H. (1996) The Gynecologic Exam in the Patient with Mental Retardation: a Continuing Education Monograph. University of Texas Medical Center at Dallas.
13. Brin, M.F. & Younger, D. (1988) Neurologic disorders and aspiration. Otolaryngologic Clinics of North America, 21, 691-699.
14. Brodak, P.P., Scherz, H.C., Packer, M.G. & Kaplan, G.W. (1994) Is urinary tract screening necessary for patients with cerebral palsy? The Journal of Urology, 152, 1586-1587.
15. Brown, M.C., Bontempo, A. & Turk, M.A. (1992) Secondary Consequences of Cerebral Palsy: Adults With Cerebral Palsy in New York State. Developmental Disabilities Planning Council, Albany, NY.
16. Burke, R.E., Fahn, S. & Gold, A.P. (1980) Delayed onset dystonia in patients with static encephalopathy. Journal of Neurology, Neurosurgery, and Psychiatry, 43, 789-797.
17. Crichton, J., MacKinney, M. & Light, C.P. (1995) The life expectancy of persons with cerebral palsy. Developmental Medicine and Child Neurology, 37, 567-576.
18. Currie, D.M., Gershkoft, A.M. & Cofu, D.X. (1993) Geriatric rehabilitation: mid and late life effects of early life disabilities. Archives of Physical Medicine and Rehabilitation, 74, 5413-5415.
19. Drewitz, D.J., Sanpliner, R.E. & Gasewal, H.J. (1997) The incidence of adeno- carcinoma in Barretts esophagus: a prospective study of 170 patients followed 4.8 years. The American Journal of Gastroenterology, 92, 212-215.
20. Evans, P.M., Evans, S.J.W. & Alberman, E. (1990) Cerebral palsy: why we must plan for survival. Archives of Disease in Childhood, 65, 1325-1333.
21. Ferling, T.M., Johnson, R.K. & Ferarra, M.S. (1992) Dietary and anthropometric assessment of adults with cerebral palsy. Journal of the American Dietetic Association, 92, 1083-1086.
22. Finucaine, T.E. & Bynum, J.P.W. (1996) Use of tube feeding to prevent aspiration pneumonia. Lancet, 348, 1421-1423.
23. Gage, J.R., Fabian, D., Hicks, R. & Tashman, S. (1984) Pre- and postoperative gait analysis in patients with spastic diplegia: a preliminary report. Developmental Medicine and Child Neurology, 4, 715-725.
24. Garrard, S.D. (1982) Health services for mentally retarded people in community residences: problems and questions. American Journal of Public Health, 72, 1226-1228.
25. Gisel, E.G. & Patrick, J. (1988) Identification of children with cerebral palsy unable to maintain a sound nutritional state. Lancet, 6, 238-284.
26. Giudice, E.D. (1997) Cerebral palsy and gut-functions. Journal of Pediatric Gastro- enterology and Nutrition, 24, 522-523.
27. Goldenberg, R.L. & Rouse, D.J. (1998) Prevention of premature birth. The New England Journal of Medicine, 339, 801-817.
28. Gooch, J.L. & Sandell, T.V. (1996) Botulinum toxin for spasticity and athetosis in children with cerebral palsy. Archives of Physical Medicine and Rehabilitation, 77, 508-511.
29. Granet, K.M., Balaghi, M. & Jaeger, J. (1997) Adults with cerebral palsy. New Jersey Medicine: The Journal of the Medical Society of New Jersey, 94, 51-54.
30. Grether, J.K., Nelson, K.B., Emory, E.S. & Cummins, S.K. (1996) Prenatal and perinatal factors in cerebral palsy in very low birthweight infants. The Journal of Pediatrics, 90, 171-176.
31. Gustafson, P.M. & Tibbling, L. (1994) Gastroesophageal reflux and esophageal dysfunction in children and adolescents with brain damage. Acta Paediatrica Scandinavica, 83, 1081-1085.
32. Hack, M., Flannery, D.J., Schlucter, M., Carter L., Borawski E. & Klein N. (2002) Outcomes in young adulthood for very low birthweight infants. New England Journal of Medicine, 346, 149-157.
33. Harum, K.H., Hoon, A.H. & Casella, J.F. (1999) Factor V Leiden: a risk factor for cerebral palsy. Developmental Medicine and Child Neurology, 41, 781-785.
34. Hufschmidt, A. & Mauritz, K.H. (1985) Chronic transformation of muscle in spasticity: a peripheral contribution to increased tone. Journal of Neurology, Neurosurgery and Psychiatry, 48, 676-685.
35. Ingram, T.T.S. (1964) Pediatric Aspects of Cerebral Palsy. E & S Livingstone, Ltd, Edinburgh, Scotland.
36. Jahnsen R. & Holm, I. (2001) Life span development of locomotion in persons with cerebral palsy. Developmental Medicine and Child Neurology, 43, Supplement No. 88, 9.
37. Janicki, M.P. (1989) Aging, cerebral palsy, and older persons with mental retar- dation. The Australian and New Zealand Journal of Developmental Disabilities, 15, 311-330.
38. Johnson, R.K., Goran, M.I., Ferrara, M.S. & Poehlman, E.T. (1996) Athetosis increases resting metabolic rate in adults with cerebral palsy. Journal of the American Dietetic Association, 96, 145-148.
39. Kiely, M., Lubin, R.A. & Kiely, J.L. (1984) Descriptive epidemiology of cerebral palsy. Public Health Reviews, 12, 79-101.
40. Kuruvilla, J. & Trenby, P.N. (1989) Gastroesophageal disorders in adults with severe mental impairment. British Medical Journal, 98, 95-96.
41. Lee, J.K. & Lyne, E.A. (1990) Pathologic fractures in severely handicapped chil- dren and young adults. Journal of Pediatric Orthopedics, 10, 497-500.
42. Lewin, T. (1990) As the retarded live longer, anxiety grips again parents [special report]. New York Times, 28 October, 1 and 32.
43. Logemann, J.A. (1988) Swallowing physiology and pathophysiology. Otolar- yngologic Clinics of North America, 21, 613-623.
44. MacDonald, E.P. (1985) Medical needs of severely developmentally disabled persons residing in the community. American Journal of Mental Retardation, 90, 171-176.
45. Majd, M.E., Muldowney, D.S. & Holt, R. (1997) Natural history of scoliosis in the institutionalized adult cerebral palsy population. Spine, 22, 1461-1466.
46. Moeschler, J.B., Charman, C.E., Berg, S.Z. & Graham, J.M. (1988) Rett Syndrome: Natural History and Management. Pediatrics, 82, 1-9.
47. Murphy, K.P., Molnar, G.E. & Lankasky, K. (1995) Medical and functional status of adults with cerebral palsy. Developmental Medicine and Child Neurology, 37, 1075-1084.
48. Naeye, R.L., Peters, E.C., Bartholomew, M. & Landis, R. (1989) Origins of cerebral palsy. American Journal of Diseases of Children, 143, 1154-1161.
49. Nelson, K.B. & Ellenberg, J. (1986) Antecedents of cerebral palsy: multivariate analysis of risk. The New England Journal of Medicine, 315, 81-86.
50. Nelson, K.B., Dawbrosia, J.M., Grether, J.K. & Phillips T.M. (1998) Neonatal cytokines and coagulation factors in children with cerebral palsy. Annals of Neurology, 44, 665-675.
51. O'Dwyer, N.J., Neilson, P.D. & Nosh, J. (1989) Mechanisms of muscle growth related to muscle contracture in cerebral palsy. Developmental Medicine and Child Neurology, 31, 543-552.
52. Oxford Register of Early Childhood Impairment: Annual Report (1998) National Perinatal Epidemiology Unit, Oxford, England.
53. Powell, T.G., Pharoah, P.O.D., Cooke, R.W.I. & Rosenbloom, L. (1988) Cerebral palsy in low birthweight infants II: spastic diplegia: associations with fetal immaturity. Developmental Medicine and Child Neurology, 30, 19-25.
54. Scoles, P. (1982) Pediatric Orthopedics in Clinical Practice. Yearbook Medical Pub- lishers, Chicago, IL.
55. Siddiqui, S.V., Van Dyke, D.L., Donohue, P. & McBrien, D.M. (1999) Premature sexual development in individuals with neurodevelopmental disabilities. Developmental Medicine and Child Neurology, 41, 392-395.
56. Smith, J.A., Hutson, J.M., Beasley, S.W. & Reddihough, D.S. (1989) The relation- ship between cerebral palsy and cryptorchidism. Journal of Pediatric Surgery, 24, 1303-1306.
57. Stallings, V.A., Cronk, C.E., Zomel, B.S. & Charney, E.B. (1995) Body composition in children with spastic quadriplegic cerebral palsy. The Journal of Pediatrics, 126, 833-839.
58. Strauss, D & Shavelle R. (1998) Life expectancy of adults with cerebral palsy. Developmental Medicine and Child Neurology, 40, 369-75.
59. Strauss, D., Cable W. & Shavelle R. (1999) Causes of excess mortality in cerebral palsy. Developmental Medicine and Child Neurology, 41, 580-585.
60. Taylor, P. (1996) Agents acting at the neuromuscular junction and autonomic ganglia. In: Goodman and Gilmans The Pharmacological Basis of Therapeutics (eds J.G. Hardman, L.E. Limbird, P.B. Molinott & R.W. Ruddon) 9th edn, pp. 185- 186. McGraw-Hill, New York.
61. Thomas, A.P., Bax, M.C.O. & Smyth, D.P.L. (1989) The health and social needs of young adults with physical disabilities. In: Clinics in Developmental Medicine, no. 106, p. 7. Blackwell Publishing, Oxford, England.
62. Treves, T. & Korczyn A.D. (1986) Progressive dystonia and paraparesis in cerebral palsy. European Neurology, 25, 148-153.
63. Winters, T.F., Gage, J.R. & Hicks, R. (1987) Gait patterns in spastic hemiplegia. The Journal of Bone and Joint Surgery, 69, 437-441.