Who rules rare disease associations? A framework to understand their action

Sociology of Health and Illness

Volumn 31, Issue 7, 2009, Pages 979-993

  Huyard, Caroline ^a  

^a ÉCOLE DES HAUTES ÉTUDES EN SCIENCES SOCIALES   (France)

Author keywords

Advocacy; Health consumer organisations; Patient organisations; Rare disorders; Representation

Indexed keywords

ADULT; ARTICLE; BOARD OF TRUSTEES; FEMALE; HEALTH CARE ORGANIZATION; HUMAN; MALE; MEDICAL RESEARCH; MIDDLE AGED; ORGANIZATION AND MANAGEMENT; RARE DISEASE;

ADULT; BIOMEDICAL RESEARCH; FEMALE; GOVERNING BOARD; HUMANS; MALE; MIDDLE AGED; RARE DISEASES; SOCIETIES;

EID: 70350503347     PISSN: 01419889     EISSN: 14679566     Source Type: Journal    
DOI: 10.1111/j.1467-9566.2009.01177.x     Document Type: Article

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