Psychological outcome and quality of life in children born with congenital diaphragmatic hernia

Archives of Disease in Childhood

Volumn 94, Issue 11, 2009, Pages 834-840

  Peetsold, M G ^a   Huisman, J ^a   Hofman, V E ^a   Heij, H A ^a   Raat, H ^b   Gemke, R J ^a  

^a VU UNIVERSITY MEDICAL CENTER   (Netherlands)

^b ERASMUS MEDICAL CENTER   (Netherlands)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ARTICLE; ATTENTION; CHILD; CHILD BEHAVIOR CHECKLIST; CLINICAL ARTICLE; COGNITIVE DEFECT; CONGENITAL DIAPHRAGM HERNIA; CONTROLLED STUDY; DISEASE SEVERITY; FEMALE; FOLLOW UP; HEALTH STATUS; HUMAN; INTELLIGENCE QUOTIENT; LEARNING DISORDER; LENGTH OF STAY; MALE; OUTCOME ASSESSMENT; PRESCHOOL CHILD; PRIORITY JOURNAL; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; QUESTIONNAIRE; RESPIRATORY DISTRESS; SCHOOL CHILD; SOCIAL INTERACTION; VISUOMOTOR COORDINATION; WECHSLER INTELLIGENCE SCALE;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; CHILD; CHILD BEHAVIOR DISORDERS; COGNITION DISORDERS; CROSS-SECTIONAL STUDIES; FEMALE; FOLLOW-UP STUDIES; HEALTH STATUS; HERNIA, DIAPHRAGMATIC; HUMANS; LEARNING DISORDERS; MALE; NETHERLANDS; NEUROPSYCHOLOGICAL TESTS; QUALITY OF LIFE; SELF CONCEPT; SOCIAL BEHAVIOR;

EID: 70350447797     PISSN: 00039888     EISSN: 14682044     Source Type: Journal    
DOI: 10.1136/adc.2008.156158     Document Type: Article

References (42)

1. Stege G, Fenton A, Jaffray B. Nihilism in the 1990s: the true mortality of congenital diaphragmatic hernia. Pediatrics 2003;112(3 Pt 1):532-535 (Pubitemid 37082102)
2. Colvin J, Bower C, Dickinson JE, et al. Outcomes of congenital diaphragmatic hernia: a population-based study in Western Australia. Pediatrics 2005;116:e356-e363. (Pubitemid 44339431)
3. Vanamo K. A 45-year perspective of congenital diaphragmatic hernia. Br J Surg 1996;83:1758-1762 (Pubitemid 26421881)
4. Ijsselstijn H, Tibboel D, Hop WJ, et al. Long-term pulmonary sequelae in children with congenital diaphragmatic hernia. Am J Respir Crit Care Med 1997;155:174-180 (Pubitemid 27053160)
5. Muratore CS, Kharasch V, Lund DP, et al. Pulmonary morbidity in 100 survivors of congenital diaphragmatic hernia monitored in a multidisciplinary clinic. J Pediatr Surg 2001;36:133-140 (Pubitemid 32044329)
6. Vanamo K, Rintala RJ, Lindahl H, et al. Long-term gastrointestinal morbidity in patients with congenital diaphragmatic defects. J Pediatr Surg 1996;31:551-554 (Pubitemid 26115645)
7. Kamata S, Usui N, Kamiyama M, et al. Long-term follow-up of patients with high-risk congenital diaphragmatic hernia. J Pediatr Surg 2005;40:1833-1838 (Pubitemid 41774160)
8. Davenport M, Rivlin E, D'Souza SW, et al. Delayed surgery for congenital diaphragmatic hernia: neurodevelopmental outcome in later childhood. Arch Dis Child 1992;67:1353-1356
9. Glass P, Miller M, Short BL. Morbidity for survivors of extracorporal membrane oxygenation: neurodevelopmental outcome at 1 year of age. Pediatrics 1989;83:72-78 (Pubitemid 19023614)
10. Krummel TM, Greenfield LJ, Kirkpatrick BV, et al. The early evaluation of survivors after extracorporeal membrane oxygenation for neonatal pulmonary failure. J Pediatr Surg 1984;19:585-590
11. Schumacher RE, Palmer TW, Roloff DW, et al. Follow-up of infants treated with extracorporeal membrane oxygenation for newborn respiratory failure. Pediatrics 1991;87:451-457
12. Towne BH, Lott IT, Hicks DA, et al. Long-term follow-up of infants and children treated with extracorporeal membrane oxygenation (ECMO): a preliminary report. J Pediatr Surg 1985;20:410-414
13. Andrews AF, Nixon CA, Cilley RE, et al. One- to three-year outcome for 14 neonatal survivors of extracorporeal membrane oxygenation. Pediatrics 1986;78:692-698 (Pubitemid 16006403)
14. Anon. The collaborative UK ECMO (Extracorporeal Membrane Oxygenation) trial: follow-up to 1 year of age. Pediatrics 1998;101:E1.
15. Marlow N, Rose AS, Rands CE, et al. Neuropsychological and educational problems at school age associated with neonatal encephalopathy. Arch Dis Child Fetal Neonatal Ed 2005;90:F380-F387. (Pubitemid 41224071)
16. McGahren ED, Mallik K, Rodgers BM. Neurological outcome is diminished in survivors of congenital diaphragmatic hernia requiring extracorporeal membrane oxygenation. J Pediatr Surg 1997;32:1216-1220 (Pubitemid 27475901)
17. Van Meurs KP, Robbins ST, Reed VL, et al. Congenital diaphragmatic hernia: long-term outcome in neonates treated with extracorporeal membrane oxygenation. J Pediatr 1993;122:893-899 (Pubitemid 23158426)
18. Bouman NH, Koot HM, Tibboel D, et al. Children with congenital diaphragmatic hernia are at risk for lower levels of cognitive functioning and increased emotional and behavioral problems. Eur J Pediatr Surg 2000;10:3-7. (Pubitemid 30167680)
19. Poley MJ, Stolk EA, Tibboel D, et al. Short term and long term health related quality of life after congenital anorectal malformations and congenital diaphragmatic hernia. Arch Dis Child 2004;89:836-841 (Pubitemid 39165952)
20. Koivusalo A, Pakarinen M, Vanamo K, et al. Health-related quality of life in adults after repair of congenital diaphragmatic defects - a questionnaire study. J Pediatr Surg 2005;40:1376-1381 (Pubitemid 41247998)
21. De Bruin E, VanderSteene G, van Haasen P. WISC-R: Wechsler Intelligence Scale for Children-Revised (Dutch version), manual. Lisse, The Netherlands: Swets & Zeitlinger, 1986.
22. VanderSteene G, Haasen PP, De Bruyn EEJ, et al. Wechsler Intelligence Scale for Children-Revised. Nederlandse uitgave (WISC-RN). Lisse, The Netherlands: Swets & Zeitlinger, 1986.
23. Vos P. Bourdon Vos Handleiding [Manual Bourdon Vos]. Lisse: Swets & Zeitlinger, 1992.
24. Van Evers A. Documentation of tests and test research in the Netherlands. Assen, The Netherlands: van Gorcum, 1992.
25. Beery KE. Administration, scoring and teaching manual for the Developmental Test of Visual-Motor Integration. Toronto: Modern Curriculum Press, 1982.
26. Beery KE. The Beery-Buktenica Developmental Test of visual-motor integration. 4th edn. Parsippany, NJ: Modern Curriculum Press, 1997.
27. Verhulst FC, Akkerhuis GW. Agreement between parents' and teachers' ratings of behavioral/emotional problems of children aged 4-12. J Child Psychol Psychiatry 1989;30:123-136
28. Raat H, Mohangoo AD, Grootenhuis MA. Pediatric health-related quality of life questionnaires in clinical trials. Curr Opin Allergy Clin Immunol 2006;6:180-185 (Pubitemid 44510200)
29. Raat H, Bonsel GJ, Essink-Bot ML, et al. Reliability and validity of comprehensive health status measures in children: the Child Health Questionnaire in relation to the Health Utilities Index. J Clin Epidemiol 2002;55:67-76. (Pubitemid 34037038)
30. Raat H, Mangunkusumo RT, Landgraf JM, et al. Feasibility, reliability, and validity of adolescent health status measurement by the Child Health Questionnaire Child Form (CHQ-CF): internet administration compared with the standard paper version. Qual Life Res 2007;16:675-685 (Pubitemid 46474954)
31. Cohen J. Statistical power analysis for the behavioral sciences. Revised edn. New York: Academic Press, 1977.
32. Verhulst FC, Koot JM, Akkerhuis GW, et al. Praktische handleiding voor de CBCL. Assen: van Gorcum, 1990.
33. Breaux CW Jr, Rouse TM, Cain WS, et al. Improvement in survival of patients with congenital diaphragmatic hernia utilizing a strategy of delayed repair after medical and/or extracorporeal membrane oxygenation stabilization. J Pediatr Surg 1991;26:333-336
34. The Congenital Diaphragmatic Hernia Study Group. Does extracorporeal membrane oxygenation improve survival in neonates with congenital diaphragmatic hernia? J Pediatr Surg 1999;34:720-724
35. Cowan F, Rutherford M, Groenendaal F, et al. Origin and timing of brain lesions in term infants with neonatal encephalopathy. Lancet 2003;361:736-742 (Pubitemid 36293628)
36. Hunt RW, Kean MJ, Stewart MJ, et al. Patterns of cerebral injury in a series of infants with congenital diaphragmatic hernia utilizing magnetic resonance imaging. J Pediatr Surg 2004;39:31-36
37. Gonzalez FF, Miller SP. Does perinatal asphyxia impair cognitive function without cerebral palsy? Arch Dis Child Fetal Neonatal Ed 2006;91:F454-F459.
38. Ginn-Pease ME, King DR, Tarnowski KJ, et al. Psychosocial adjustment and physical growth in children with imperforate anus or abdominal wall defects. J Pediatr Surg 1991;26:1129-1135
39. Tarnowski KJ, King DR, Green L, et al. Congenital gastrointestinal anomalies: psychosocial functioning of children with imperforate anus, gastroschisis, and omphalocele. J Consult Clin Psychol 1991;59:587-590
40. Bouman NH, Koot HM, Hazebroek FW. Long-term physical, psychological, and social functioning of children with esophageal atresia. J Pediatr Surg 1999;34:399-404.
41. Feeny D, Furlong W, Torrance GW, et al. Multiattribute and single-attribute utility functions for the health utilities index mark 3 system. Med Care 2002;40:113-128
42. Raat H, Botterweck AM, Landgraf JM, et al. Reliability and validity of the short form of the child health questionnaire for parents (CHQ-PF28) in large random school based and general population samples. J Epidemiol Community Health 2005;59:75-82. (Pubitemid 40037090)