The Madison clinic: Evaluation of a collaborative outpatient paediatric palliative care clinic

Paediatrics and Child Health

Volumn 14, Issue 6, 2009, Pages 379-384

  Siden, Harold ^a,b,c,d   Straatman, Lynn ^a,c   Miller, Tanice ^c   Ham, Jennifer ^c  

^a UNIVERSITY OF BRITISH COLUMBIA   (Canada)

^b BC CHILDREN S HOSPITAL   (Canada)

^c Canuck Place Children's Hospice ^*  (Canada)

^d CHILDREN S AND WOMEN S HEALTH CENTRE OF BRITISH COLUMBIA   (Canada)

Author keywords

Ambulatory care facilities; Continuity of patient care; Paediatrics; Palliative care

Indexed keywords

ARTICLE; CHILD CARE; CONSULTATION; FUNDING; HEALTH PROGRAM; HOSPICE CARE; OUTPATIENT DEPARTMENT; PALLIATIVE THERAPY; PATIENT SATISFACTION; PEDIATRIC PALLIATIVE CARE CLINIC; VIDEOCONFERENCING;

EID: 70350338695     PISSN: 12057088     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (22)

1. ChiPPS Administrative/Policy Workgroup, National Hospice and Palliative Care Organization. Children's International Project on Palliative/ Hospice Services (ChiPPS): A call for change: Recommendations to improve the life of children living with life-threatening conditions. (Version current at February 24, 2009).
2. Canadian Hospice Palliative Care Association, Canadian Network of Palliative Care for Children. Pediatric Hospice Palliative Care: Guiding Principles and Norms of Practice, 2006.
3. Hays RM, Valentine J, Haynes G, et al. The Seattle Pediatric Palliative Care Project: Effects on family satisfaction and health-related quality of life. J Palliat Med 2006;9:716-28.
4. Association for Children with Life-Threatening or Terminal Conditions and their Families (ACT), Royal College of Paediatrics and Child Health. A Guide to the Development of Children's Palliative Care Services, 2003.
5. Lickiss JN. Approaching death in multicultural Australia. Med J Aust 2003;179:S14-6.
6. Zhukovsky DS. A model of palliative care: The palliative medicine program of the Cleveland Clinic Foundation. A World Health Organization Demonstrations Project. Support Care Cancer 2000;8:268-77.
7. Rabow MW, Dibble SL, Pantilat SZ, McPhee SJ. The comprehensive care team: A controlled trial of outpatient palliative medicine consultation. Arch Intern Med 2004;164:83-91.
8. Casarett DJ, Hirschman KB, Coffey JF, Pierre L. Does a palliative care clinic have a role in improving end-of-life care? Results of a pilot program. J Palliat Med 2002;5:387-96.
9. Davies B, Steele R, Collins JB, Cook K, Smith S. The impact on families of respite care in a children's hospice program. J Palliat Care 2004;20:277-86.
10. Zwerdling T, Davies S, Lazar L, et al. Unique aspects of caring for dying children and their families. Am J Hosp Palliat Care 2000;17:305-11.
11. Burne SR, Dominica F, Baum JD. Helen House - a hospice for children: Analysis of the first year. Br Med J 1984;289:1665-8.
12. Danvers L, Freshwater D, Cheater F, Wilson A. Providing a seamless service for children with life-limiting illness: Experiences and recommendations of professional staff at the Diana Princess of Wales Children's Community Service. J Clin Nurs 2003;12:351-9.
13. Vickers J, Thompson A, Collins GS, Childs M, Hain R, Paediatric Oncology Nurses' Forum/United Kingdom Children's Cancer Study Group Palliative Care Working Group. Place and provision of palliative care for children with progressive cancer: A study by the Paediatric Oncology Nurses' Forum/United Kingdom Children's Cancer Study Group Palliative Care Working Group. J Clin Oncol 2007;25:4472-6.
14. Fine RL. The imperative for hospital-based palliative care: Patient, institutional, and societal benefits. Proc (Bayl Univ Med Cent) 2004;17:259-64.
15. Dangel T. The status of pediatric palliative care in Europe. J Pain Symptom Manage 2002;24:160-5.
16. Feudtner C, Silveira MJ, Christakis DA. Where do children with complex chronic conditions die? Patterns in Washington State, 1980-1998. Pediatrics 2002;109:656-60.
17. Oliver D. The development of an interdisciplinary outpatient clinic in specialist palliative care. Int J Palliat Nurs 2004;10:446-8.
18. Haggerty JL, Reid RJ, Freeman GK, Starfield BH, Adair CE, McKendry R. Continuity of care: A multidisciplinary review. BMJ 2003;327:1219-21.
19. Rahi JS, Manaras I, Tuomainen H, Hundt GL. Meeting the needs of parents around the time of diagnosis of disability among their children: Evaluation of a novel program for information, support, and liaison by key workers. Pediatrics 2004;114:e477-82.
20. Perley CM, Physician use of the curbside consultation to address information needs: Report on a collective case study. J Med Libr Assoc 2006;94:137-44.
21. Gattuso J, Hinds P, Tong X, Srivastava K. Monitoring child and parent refusals to enroll in clinical research protocols. J Adv Nurs 2006;53:319-26.
22. National Hospice and Palliative Care Organization. Standards of Practice for Hospice Programs. Alexandria, Virginia, 2005.