Use of neurodevelopmental delay in pediatric solid organ transplant listing decisions: Inconsistencies in standards across major pediatric transplant centers

Pediatric Transplantation

Volumn 13, Issue 7, 2009, Pages 843-850

  Richards, Christopher T ^a   Crawley, Lavera M ^a   Magnus, David ^a  

^a STANFORD UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

Cognitive; Decision making; Medical ethics; Neurodevelopmental delay; Pediatric transplantation; Solid organ transplantation

Indexed keywords

ADMINISTRATIVE PERSONNEL; ARTICLE; DEVELOPMENTAL DISORDER; HUMAN; MEDICAL DECISION MAKING; NERVOUS SYSTEM DEVELOPMENT; ORGAN TRANSPLANTATION; PEDIATRIC SURGERY; STANDARD; TREATMENT INDICATION; UNITED STATES;

ADOLESCENT; CHILD; CHILD, PRESCHOOL; DEVELOPMENTAL DISABILITIES; GRAFT SURVIVAL; HUMANS; INFANT; INTELLIGENCE TESTS; ORGAN TRANSPLANTATION; PATIENT SELECTION; QUESTIONNAIRES; TISSUE AND ORGAN PROCUREMENT; UNITED STATES; WAITING LISTS;

EID: 70350001833     PISSN: 13973142     EISSN: 13993046     Source Type: Journal    
DOI: 10.1111/j.1399-3046.2008.01072.x     Document Type: Article

References (18)

1. Hillerman WL, Russell CL, Barry D, et al. Evaluation guidelines for adult and pediatric kidney transplant programs: The Missouri experience. Prog Transplant 2002 : 12 : 30 35.
2. Wray J, Radley-Smith R. Developmental and behavioral status of infants and young children awaiting heart or heart-lung transplantation. Pediatrics 2004 : 1 : 488 495.
3. Allee MR, Shapiro M. Report of the OPTN/UNOS Ethics Committee to the Board of Directors. Richmond, Virgina, VA : OPTN/UNOS, 2007 June 26, 2007.
4. National Work Group on Disability and Transplantation. Individual and Family Disability Survey: Final Results: The ArcLink Incorporated. 2004 16 April 2004. Bloomington, IN : ArcLink Incorporated.
5. Levenson JL, Olbrisch ME. Psychosocial evaluation of organ transplant candidates. A comparative survey of process, criteria, and outcomes in heart, liver, and kidney transplantation. Psychosomatics 1993 : 34 : 314 323.
6. Canter CE, Shaddy RE, Bernstein D, et al. Indications for heart transplantation in pediatric heart disease: A scientific statement from the American Heart Association Council on Cardiovascular Disease in the Young; the Councils on Clinical Cardiology, Cardiovascular Nursing, and Cardiovascular Surgery and Anesthesia; and the Quality of Care and Outcomes Research Interdisciplinary Working Group. Circulation 2007 : 115 : 658 676.
7. Luckasson R, Borthwith-Duffy S, et al. Mental Retardation: Definiton, Classification, and Systems of Support. 9th ed. Washington, DC : American Association on Mental Retardation, 1992.
8. Martens MA, Jones L, Reiss S. Organ transplantation, organ donation and mental retardation. Pediatr Transplant 2006 : 10 : 658 664.
9. Ohta T, Motoyama O, Takahashi K, et al. Kidney transplantation in pediatric recipients with mental retardation: Clinical results of a multicenter experience in Japan. Am J Kidney Dis 2006 : 47 : 518 527.
10. Beauchamp TL, Childress JF. Principles of Biomedical Ethics. 5th ed. New York, NY : Oxford University Press, 2001.
11. Orentlicher D. Psychosocial assessment of organ transplant candidates and the Americans with Disabilities Act. Gen Hosp Psychiatry 1996 : 6 (Suppl. 5S 12S.
12. Scott H. Are people with Down's syndrome denied care? Br J Nurs 2000 : 9 : 2000.
13. Leonard H, Eastham K, Dark J. Heart and heart-lung transplantation in Down's syndrome. The lack of supportive evidence means each case must be carefully assessed. BMJ 2000 : 320 : 816 817.
14. Collins TL, Holden EW, Scheel JN. Cognitive functioning as a contraindication to organ transplant surgery: Dilemmas encountered in medical decision making. J Clin Psychol Med Settings 1996 : 45 : 413 422.
15. Copeland JG, Salomon NW. Recipient selection for cardiac transplantation. Ariz Med 1980 : 37 : 758 760.
16. House RM, Thompson TL II. Psychiatric aspects of organ transplantation. JAMA 1988 : 260 : 535 539.
17. Savulescu J. Resources, Down's syndrome, and cardiac surgery. BMJ 2001 : 322 : 875 876.
18. Stolberg SG. Ideas and Trends: The Unlisted; Live and Let Die Over Transplants. New York City, NY : New York Times, 1998. April 5, 1998.