Designing social support online services for communities of family caregivers

Lecture Notes in Business Information Processing

Volumn 37 LNBIP, Issue , 2009, Pages 336-347

  Tixier, Matthieu ^a   Lewkowicz, Myriam ^a  

^a UNIVERSITÉ DE TECHNOLOGIE DE TROYES   (France)

Author keywords

Alzheimer's disease; Community of Family Caregivers; Design; Healthcare Network; Social Capital; Social Support; Support Group

Indexed keywords

INTERNET; TECHNICAL PRESENTATIONS;

ALZHEIMER'S DISEASE; COMMUNITY OF FAMILY CAREGIVERS; DESIGN APPROACHES; INFORMATION AND COMMUNICATION; ON-LINE SERVICE; SOCIAL CAPITAL; SOCIAL CAPITALS; SOCIAL SUPPORT;

HEALTH CARE;

EID: 70349976488     PISSN: 18651348     EISSN: None     Source Type: Book Series    
DOI: 10.1007/978-3-642-03424-4_41     Document Type: Conference Paper

References (24)

1. Adler, P.S., Kwon, S.: Social Capital: Prospects for a New Concept. The Academy of Management Review 27, 17-40 (2002)
2. Barnes, M.K., Duck, S.: Everyday communicative contexts for social support. In: Burleson, B.R., Albrecht, T.L., Sarason, I.G. (eds.) Communication of social support: Messages, interactions, relationships and community, pp. 175-194. Sage, Thousand Oaks (1994)
3. Bourdieu, P.: The forms of capital. In: Richardson, J.G. (ed.) Handbook of theory and research for the sociology of education, pp. 241-258. Greenwood, New York (1986)
4. Cheng, L., Stone, L., Farnham, S., Clark, A.M., Zaner, M.: HutchWorld: Lessons Learned-A Collaborative Project: Fred Hutchsinson Cancer Research Center & Microsoft Research. In: Heudin, J.-C. (ed.) VW 2000. LNCS, vol.1834, pp. 12-23. Springer, Heidelberg (2000)
5. Coenen, T.: Structural aspects of online social networking systems and their influence on knowledge sharing. In: Proceedings Web Based Communities. San Sebastian, Spain (2006)
6. Gottlieb, B.: Social Support and the Study of Personal Relationships. Journal of Social and Personal Relationships 2, 351-375 (1985)
7. Gustafson, D.H., Hawkins, R.P., Boberg, E.W., McTavish, F., Owens, B., Wise, M.: CHESS: 10 years of research and development in consumer health informatics for broad populations, including the underserved. International Journal of Medical Informatics 65, 169-177 (2002)
8. Huysman, M., Wulf, V.: IT to support knowledge sharing in communities, towards a social capital analysis. Journal of Information Technology 21(1), 40-51 (2006)
9. IFOP: Etude nationale Connaître les aidants et leurs attentes (2008), http://www.aveclesaidants.fr/ index.php?rub=alaune&ssrub= enbref&lid=522
10. Josefsson, U.: Patients' Online Communities Experiences of Emergent Swedish Self-help on the Internet. In: Huysman, M.H., Wenger, E., Wulf, V. (eds.) Proceedings of the First Communities and Technologies Conference C&T 2005, pp. 369-390. Springer, Heidelberg (2003)
11. Leimeister, J.M., Krcmar, H.: Acceptance and Utility of a Systematically Designed Virtual Community for Cancer Patients. In: van der Besselaar, P., de Michelis, G., Preece, J., Simone, C. (eds.) Proceedings of the Second Communities and Technologies Conference C&T 2005, pp. 129-149. Springer, Heidelberg (2005)
12. Lewkowicz, M., Marcoccia, M., Atifi, H., Bénel, A., Gaglio, G., Gauducheau, N., Tixier, M.: Online Social Support: Benefits of an Interdisciplinary Approach for Studying and Designing Cooperative Computer-Mediated Solutions. In: Proceedings of the 8th Conference on the Design of Cooperative Systems COOP 2008, pp. 99-110 (2008)
13. Maloney-Krichmar, D., Preece, J.: A Multilevel Analysis of Sociability, Usability, and Community Dynamics in an Online Health Community. ACM Transactions on Computer- Human Interaction 12, 201-232 (2005)
14. Nahapiet, J., Ghoshal, S.: Social Capital, Intellectual Capital, and the Organizational Advantage. The Academy of Management Review 23, 242-266 (1998)
15. Nguyen, D., Thompson, S., Hoile, C.: Hubbub - An innovative customer support forum. In: BIS 2008 Workshop Proceedings, 2nd Workshop on Social Aspects of the Web (SAW 2008), pp. 55-67 (2008)
16. Norman, D.A.: Affordance, conventions, and design. Interactions 6, 38-43 (1999)
17. PIXEL Novartis: Etude PIXEL - L'entourage familial des patients atteints de la maladie d'Alzheimer (2000), http://www.mediathequenovartis.fr/novartis/ spip.php?article107
18. Pillemer, K., Suitor, J.J.: Peer Support for Alzheimer's Caregivers: Is it Enough to Make a Difference? Research on Aging 24, 171-192 (2002)
19. Portes, A.: Social Capital: Its Origins and Applications in Modern Sociology. Annual Review of Sociology 24, 1-24 (1998)
20. Salem, D.A., Bogat, G.A., Reid, C.: Mutual help goes online. Journal of Community Psychology 25, 189-207 (1998)
21. Schank, R.C., Abelson, R.: Scripts, Plans, Goals, and Understanding. Erlbaum Assoc., Hillsdale (1977)
22. Schumpeter, J.A.: The theory of economic development: An inquiry into profits, capital, credit, interest and the business cycle. Harvard University Press, Cambridge (1934) (reprinted in 1962)
23. Thomas, P., Hazif-Thomas, C., Lalloué, F., Preux, P.-M.: Dementia patients caregivers quality of life: the PIXEL study. International Journal of Geriatric Psychiatry 21, 50-56 (2006)
24. Xie, B.: Multimodal Computer-Mediated Communication and Social Support among Older Chinese Internet Users. Journal of Computer-Mediated Communication 13, 751-767 (2008)