Training communication partners of people with traumatic brain injury: Reporting the protocol for a clinical trial

Brain Impairment

Volumn 10, Issue 2, 2009, Pages 188-204

  Togher, Leanne ^a   McDonald, Skye ^b   Tate, Robyn ^c,d   Power, Emma ^a   Rietdijk, Rachel ^a  

^a UNIVERSITY OF SYDNEY   (Australia)

^b UNIVERSITY OF NEW SOUTH WALES   (Australia)

^c University of Sydney   (Australia)

^d ROYAL REHABILITATION CENTRE SYDNEY   (Australia)

Author keywords

Cognitive communication deficits; Communication partner training; Rehabilitation; Social skills; Traumatic brain injury (TBI)

Indexed keywords

EID: 70349829493     PISSN: 14439646     EISSN: 18395252     Source Type: Journal    
DOI: 10.1375/brim.10.2.188     Document Type: Article

References (78)

1. Adamovich, B., & Henderson, J. (1992). Scales of Cognitive Ability for Traumatic Brain Injury (SCATBI). Texas: Pro-ed.
2. Bellon, M. L., & Rees, R. J. (2006). The effect of context on communication: a study of the language and communication skills of adults with acquired brain injury. Brain Injury, 20(10), 1069-1078.
3. Benton, A. L., Hamsher, K., & Sivan, A. B. (1994). Multilingual Aphasia Examination. Iowa City, IA: AJA Associates.
4. Blascovish, J., & Tomaka, J. (1991). Measures of self-esteem. In J. P. Robinson, P. R. Shaver, L. S. Wrightsman & F. M. Andrews (Eds.), Measures of personality and social psychological attitudes (pp. 115-160). San Diego: Academic Press.
5. Bond, F., & Godfrey, H. P. D. (1997). Conversation with traumatically brain-injured individuals: A controlled study of behavioural changes and their impact. Brain Injury, 11(5), 319-329.
6. Bruns, T. J., & Hauser, W. A. (2003). The epidemiology of traumatic brain injury: A review. Epilepsia, 44, 2-10.
7. Bute, J. J., Donovan-Kicken, E., & Martins, N. (2007). Effects of communication-debilitating illnesses and injuries on close relationships: A relational maintenance perspective. Health Communication, 21(3), 235-246.
8. Cannizzaro, M. S., & Coelho, C. A. (2002). Treatment of story grammar following traumatic brain injury: A pilot study. Brain Injury, 16(12), 1065-1073.
9. Carney, N., Chesnut, R., Maynard, H., Mann, N., Patterson, P., & Helfand, M. (1999). Effect of cognitive rehabilitation on outcomes for persons with traumatic brain injury: A systematic review. Journal of Head Trauma Rehabilitation, 14(3), 277-307.
10. Coopersmith, S. (1987). Self-esteem inventories. Palo Alto, CA: Consulting Psychologists Press.
11. Cramon, D., & Cramon, G. M.-v. (1992). Reflections on the treatment of brain injured patients suffering from problem-solving disorders. Neuropsychological Rehabilitation, 2, 207-230.
12. Creswell, J. W. (2003). Research design: Qualitative, quantitative, and mixed methods approaches (2nd ed.). Thousand Oaks, Calif.: Sage Publications.
13. Dahlberg, C. A., Cusick, C. P., Hawley, L. A., Newman, J. K., Morey, C. E., Harrison-Felix, C. L., et al. (2007). Treatment efficacy of social communication skills training after traumatic brain injury: A randomized treatment and deferred treatment controlled trial. Archives of Physical Medicine and Rehabilitation, 88(12), 1561-1573.
14. Demo, D. H. (1985). The measurement of self-esteem - Refining our methods. Journal of Personality and Social Psychology, 48(6), 1490-1502.
15. Douglas, J. M., Bracy, C. A., & Snow, P. C. (2007). Exploring the factor structure of the La Trobe communication questionnaire: Insights into the nature of communication deficits following traumatic brain injury. Aphasiology, 21(12), 1181-1194.
16. Douglas, J. M., O'Flaherty, C. A., & Snow, P. C. (2000). Measuring perception of communicative ability: The development and evaluation of the La Trobe communication questionnaire. Aphasiology, 14(3), 251-268.
17. Eggins, S., & Slade, D. (1997). Analysing Casual Conversation. London: Cassell.
18. Elsass, L., & Kinsella, G. (1987). Social interaction after severe closed head injury. Psychological Medicine, 17, 67-78.
19. Flanagan, S., McDonald, S., & Togher, L. (1995). Evaluating social skills following traumatic brain injury: The BRISS as a clinical tool. Brain Injury, 9(4), 321-338.
20. Gajar, A., Schloss, P., Schloss, C., & Thompson, C. (1984). Effects of feedback and self-monitoring on head trauma youth's conversation skills. Journal of Applied Behavior Analysis, 17, 353-358.
21. Galski, T., Tompkins, C., & Johnston, M. V. (1998). Competence in discourse as a measure of social integration and quality of life in persons with traumatic brain injury. Brain Injury, 12(9), 769-782.
22. Glaser, B. G., & Strauss, A. L. (1967). The discovery of grounded theory; strategies for qualitative research. Chicago: Aldine Pub. Co.
23. Godfrey, H., & Shum, D. (2000). Executive functioning and the application of social skills following traumatic brain injury. Aphasiology, 14(4), 433-444.
24. Godlee, F. (2001). Publishing study protocols: making them visible will improve registration, reporting and recruitment. BMC News and Views, 2(1), 4.
25. Halliday, M. A. K. (1994). An introduction to functional grammar (2nd ed.). London: Edward Arnold.
26. Heaton, R. K., Chelune, G. J., Talley, J. L., Kay, G. G., & Curtiss, G. (1993). Wisconsin Card Sorting Test. Philadelphia: Psychological Assessment Resources.
27. Helffenstein, D. A., & Wechsler, F. S. (1982). The use of Interpersonal Process Recall (IPR) in the remediation of interpersonal and communication skill deficits in the newly brain-injured. Clinical Neuropsychology, 4, 139-143.
28. Holland, D., & Shigaki, C. (1998). Educating families and caretakers of traumatically brain injured patients in the new health care environment: A three-phase model and bibliography. Brain Injury, 12(12), 993-1009.
29. Hollis, S., & Campbell, F. (1999). What is meant by intention to treat analysis? Survey of published randomised controlled trials. British Medical Journal, 319(7211), 670-674.
30. Justice, L. M., & Snell, M. E. (2007). Illustration of a three-step process for identifying the level and qual- ity of empirical support for manualized treatments. Evidence-Based Communication Assessment and Intervention, 1(1), 37-47.
31. Kagan, A., Black, S. E., Duchan, J. F., Simmons-Mackie, N., & Square, P. (2001). Training volunteers as conversational partners using 'Supported Conversation with Adults with Aphasia' (SCA): A controlled trial. Journal of Speech, Language and Hearing Research, 44, 624-638.
32. Kagan, A., Winckel, J., Black, S., Duchan, J. F., Simmons-Mackie, N., & Square, P. (2004). A set of observational measures for rating support and participation in conversation between adults with aphasia and their conversation partners. Topics in Stroke Rehabilitation, 11(1), 67-83.
33. Kilov, A., Togher, L., & Grant, S. (in press). Problem solving with friends: Discourse participation and performance of individuals with and without traumatic brain injury. Aphasiology.
34. Kovarsky, D., & Curran, M. (2007). A missing voice in the discourse of evidence-based practice. Topics in Language Disorders, 27(1), 50-61.
35. Legg, C., Young, L., & Bryer, A. (2005). Training sixth-year medical students in obtaining case-history information from adults with aphasia. Aphasiology, 19(6), 559-575.
36. MAA. (1998). Training needs of attendant carers. Sydney, Australia: Motor Accidents Authority.
37. MacDonald, S. (2005). Functional assessment of verbal reasoning and executive strategies. Ontario, Canada: CCD Publishing.
38. Machamer, J., Temkin, N., & Dikmen, S. (2002). Significant other burden and factors related to it in traumatic brain injury. Journal of Clinical and Experimental Neuropsychology, 24(4), 420-433.
39. Maher, C. G., Sherrington, C., Herbert, R. D., Moseley, A. M., & Elkins, M. (2003). Reliability of the PEDro scale for rating quality of randomized controlled trials. Physical Therapy, 83(8), 713-721.
40. McDonald, S., Bornhofen, C., Shum, D., Long, E., Saunders, C., & Neulinger, K. (2006). Reliability and validity of 'The Awareness of Social Inference Test' (TASIT): A clinical test of social perception. Disability and Rehabilitation, 28, 1529-1542.
41. McDonald, S., Flanagan, S., & Rollins, J. (2002). The Awareness of Social Inference Test. Edmonds, England: Thames Valley Test Company.
42. McDonald, S., Tate, R., Togher, L., Bornhofen, C., Long, E., Gertler, P., et al. (2008). Social skills treatment for people with severe, chronic acquired brain injuries: A multicenter trial. Archives of Physical Medicine and Rehabilitation, 89(9), 1648-1659.
43. Medd, J., & Tate, R. (2000). Evaluation of an anger management therapy programme following acquired brain injury: A preliminary study. Neuropsychological rehabilitation, 10(2), 185-201.
44. Meyers, J., & Meyers, K. (1995). Rey complex figure and recognition trial. Odessa, FL: Psychological Assessment Resources.
45. O'Flaherty, C. A., & Douglas, J. M. (1997). Living with cognitive-communicative difficulties following traumatic brain injury: Using a model of interpersonal communication to characterize the subjective experience. Aphasiology, 11 (9), 889-911.
46. Prigatano, G., & Fordyce, D. (1985). Neuropsychological Rehabilitation Program. Presbyterian Hospital, Oklahoma City, Oklahoma. In B. Caplan & G. Bray (Eds.), Handbook of contemporary rehabilitation psychology. Springfield, IL: Charles Thomas Publishing Co.
47. Reitan, R. M. (1958). Validity of the trail making test as an indication of brain damage. Perceptual and Motor Skills, 8, 271-276.
48. Rosenberg, M. (1965). Society and the adolescent self-image. Princeton, NJ: Princeton University Press.
49. Shahani, C., Dipboye, R. L., & Phillips, A. P. (1990). Global self-esteem as a correlate of work-related attitudes: A question of dimensionality. Journal of Personality Assessment, 54(1-2), 276-288.
50. Shelton, C., & Shryock, M. (2007). Effectiveness of communication/interaction strategies with patients who have neurological injuries in a rehabilitation setting. Brain Injury, 21(12), 1259-1266.
51. Snow, P., Douglas, J., & Ponsford, J. (1995). Discourse assessment following traumatic brain injury: A pilot study examining some demographic and methodological issues. Aphasiology, 9(4), 365-380.
52. Snow, P. C., Douglas, J. M., & Ponsford, J. L. (1999). Narrative discourse following severe traumatic brain injury: A longitudinal follow-up. Aphasiology, 13(7), 529-551.
53. SPSS Inc. (2008). SPSS Statistics Release 17.0.1. Upper Saddle River, NJ: Prentice Hall.
54. Tate, R. (1987). Behaviour management techniques for organic psychosocial deficit incurred by severe head injury. Scandinavian Journal of Rehabilitation Medicine, 19, 19-24.
55. Tate, R., Hodgkinson, A., Veerabangsa, A., & Maggiotto, S. (1999). Measuring psychosocial recovery after traumatic brain injury: Psychometric properties of a new scale. Journal of Head Trauma Rehabilitation, 14(6), 543-557.
56. Tate, R. L., Lulham, J. M., Broe, G. A., Strettles, B., & Pfaff, A. (1989). Psychosocial outcome for the survivors of severe blunt head injury: The results from a consecutive series of 100 patients. Journal of Neurology, Neurosurgery, and Psychiatry, 52, 1128-1134.
57. Tate, R. L., Pfaff, A., Veerabangsa, A., & Hodgkinson, A. E. (2004). Measuring psychosocial recovery after brain injury. Archives of Physical Medicine and Rehabilitation, 85, 538-545.
58. Teri, L., Logsdon, R. G., Uomoto, J., & McCurry, S. M. (1997). Behavioral treatment of depression in dementia patients: A controlled clinical trial. Journals of Gerontology Series B-Psychological Sciences and Social Sciences, 52(4), P159-P166.
59. Togher, L. (2000). Giving information: the importance of context on communicative opportunity for people with traumatic brain injury. Aphasiology, 14(4), 365-390.
60. Togher, L. (2004). Assessing communication after traumatic brain injury (TBI): Discourse tasks are not all created equal. Brain Impairment, 5, 13.
61. Togher, L., & Grant, S. (1998). Community policing: A training program for police in how to communicate with people with traumatic brain injury. Unpublished manuscript.
62. Togher, L., & Grant, S. (2001). Communication training program for carers. Sydney, Australia: University of Sydney.
63. Togher, L., & Hand, L. (1998). Use of politeness markers with different communication partners: An investigation of five subjects with traumatic brain injury. Aphasiology, 12 (7/8), 491-504.
64. Togher, L., Hand, L., & Code, C. (1996). A new perspective in the relationship between communication impairment and disempowerment following head injury in information exchanges. Disability and Rehabilitation, 18 (11), 559-566.
65. Togher, L., Hand, L., & Code, C. (1997a). Analysing discourse in the traumatic brain injury popula-tion:telephone interactions with different communication partners. Brain Injury, 11 (3), 169-189.
66. Togher, L., Hand, L., & Code, C. (1997b). Measuring service encounters in the traumatic brain injury population. Aphasiology, 11 (4/5), 491-504.
67. Togher, L., McDonald, S., Code, C., & Grant, S. (2004). Training communication partners of people with traumatic brain injury: A randomised controlled trial. Aphasiology, 18(4), 313-335.
68. Turner, S., & Whitworth, A. (2006). Conversational partner training programmes in aphasia: A review of key themes and participants' roles. Aphasiology, 20(6), 483-510.
69. Ventola, E. (1979). The structure of casual conversation in English. Journal of Pragmatics, 3, 267-298.
70. Visser-Meily, J. M. A., Post, M. W., Riphagen, II, & Lindeman, E. (2004). Measures used to assess burden among caregivers of stroke patients: A review. Clinical Rehabilitation, 18(6), 601-623.
71. Wechsler, D. (1997a). Wechsler Adult Intelligence Scale - Third Edition (WAIS-III). San Antonio, TX: The Psychological Corporation.
72. Wechsler, D. (1997b). Wechsler Memory Scale - Third Edition (WMS-III). San Antonio, TX: The Psychological Corporation.
73. Wedcliffe, T., & Ross, E. (2001). The psychological effects of traumatic brain injury on the quality of life of a group of spouses/partners. South African Journal of Communication Disorders [die Suid-Afrikaanse Tydskrif vir Kommunikasieafwykings], 48, 77-99.
74. WHO. (2001). The International Classification of Functioning, Disability and Health - ICF. Geneva: Switzerland: Author.
75. Ylvisaker, M., Feeney, T. J., & Urbanczyk, B. (1993). Developing a positive communication culture for rehabilitation: Communication training for staff and family members. In C. J. Durgin, N. D. Schmidt & L. J. Fryer (Eds.), Staff development and clinical intervention in brain injury rehabilitation (pp. 57-81). Gaithersburg, MD: Aspen.
76. Ylvisaker, M., Jacobs, H. E., & Feeney, T. (2003). Positive supports for people who experience behavioral and cognitive disability after brain injury: A review. Journal of Head Trauma Rehabilitation, 18(1), 7-32.
77. Ylvisaker, M., Sellars, C., & Edelman, L. (1998). Rehabilitation after traumatic brain injury in preschoolers. In M. Ylvisaker (Ed.), Traumatic brain injury rehabilitation. Children and adolescents (pp. 303-329). Newton, MA: Butterworth-Heinemann.
78. Zarit, S. H., Reever, K. E., & Bachpeterson, J. (1980). Relatives of the impaired elderly: Correlates of feelings of burden. Gerontologist, 20(6), 649-655.