Collaborating to bring new therapies to the patient - The TREAT-NMD model

Acta Myologica

Volumn 28, Issue 1, 2009, Pages 12-15

  Bushby, K ^a   Lynn, S ^a   Straub, V ^a  

^a NEWCASTLE UNIVERSITY   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

SURVIVAL MOTOR NEURON PROTEIN;

ARTICLE; DATA BASE; EDUCATION PROGRAM; ETHICS; FINANCIAL MANAGEMENT; HEALTH CARE ORGANIZATION; HUMAN; NEUROMUSCULAR DISEASE; NONHUMAN; PATIENT ASSESSMENT;

ANIMALS; BIOMEDICAL RESEARCH; DISEASE MODELS, ANIMAL; EUROPE; HUMANS; INFORMATION SERVICES; INTERNATIONAL COOPERATION; MODELS, ORGANIZATIONAL; NEUROMUSCULAR DISEASES; OUTCOME ASSESSMENT (HEALTH CARE); PATIENT CARE MANAGEMENT; REGISTRIES;

EID: 70349599869     PISSN: 11282460     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (4)

1. Mercuri E, Mayhew A, Muntoni F, et al. TREAT-NMD Neuromuscular Network. Towards harmonisation of outcome measures for DMD and SMA within TREAT-NMD; report of three expert workshops: TREAT-NMD/ENMC workshop on outcome measures, 12th-13th May 2007, Naarden, The Netherlands; TREAT-NMD workshop on outcome measures in experimental trials for DMD, 30th June-1st July 2007, Naarden, The Netherlands; conjoint Institute of Myology TREAT-NMD meeting on physical activity monitoring in neuromuscular disorders, 11th July 2007, Paris, France. Neuromuscul Disord 2008;18:894-903.
2. Willmann R, Possekel S, Dubach-Powell J, et al. Mammalian animal models for Duchenne muscular dystrophy. Neuromuscul Disord 2009;19:241-249
3. Sárközy A, Bushby K, Béroud C, et al. 157th ENMC International Workshop: patient registries for rare, inherited muscular disorders 25-27 January 2008, Naarden, The Netherlands. Neuromuscul Disord 2008;18:997-1001.
4. Butcher J. Cooperation is key, say neuromuscular-disease researchers. Lancet Neurol 2007;6:298-299