Caring for persons with Parkinson's disease in care homes: Perceptions of residents and their close relatives, and an associated review of residents' care plans

Journal of Research in Nursing

Volumn 14, Issue 4, 2009, Pages 333-348

  Armitage, Gerry ^a   Adams, Jenny ^b   Newell, Robert ^b   Coates, David ^b   Ziegler, Lucy ^c   Hodgson, Ian ^b  

^a BRADFORD INSTITUTE FOR HEALTH RESEARCH   (United Kingdom)

^b UNIVERSITY OF BRADFORD   (United Kingdom)

^c UNIVERSITY OF LEEDS   (United Kingdom)

Author keywords

Care homes; Effectiveness; Parkinson's disease; Users' relatives' perspectives

Indexed keywords

EID: 70349420031     PISSN: 17449871     EISSN: 1744988X     Source Type: Journal    
DOI: 10.1177/1744987109106694     Document Type: Article

References (33)

1. Barnes L Check J Nation RL Gilbert A Paradiso L Ballantyne A(2006) Making sure the residents get their tablets: medication administration in care homes for older people. J Adv Nurs 56: 190-199.
2. Boud D Feletti GI(1991) The Challenge of Problem-Based Learning. London: Kogan.
3. Buchanan RJ Simpson P Manyam BV Wang S Huang C(2002) Analyses of nursing home residents with Parkinson's disease using the minimum data set. Parkinsonism Relat Disord 8: 369-380.
4. Clarke C(2007) Parkinson's Disease in Practice, second ed. London: Royal Society of Medicine Press.
5. Commission for Social Care Inspectorate (2009) Cited in: de Bruxelles S. Care Homes: a system in crisis. Times Online. http://women.timesonline.co.uk/tol/life_and_style/women/the_way_we_live/article5511395.ece (accessed 14.01.09.).
6. Damiano AM Snyder C Strausser B Willian MK(1999) A review of health-related quality-of-life concepts and measures for Parkinson's disease. Qual Life Res 8: 235-243.
7. Darzi A(2008) High Quality Care for All. NHS Next Stage Review Final Report. London: Department of Health.
8. Davies S Nolan MR(2004) Making it better: self-perceived roles of family caregivers of older people living in care homes - a qualitative study. Int J Nurs Stud 43: 281-291.
9. Department of Health (2003) National Minimum Standards for Care Homes for Older People, third ed. London: Department of Health.
10. Department of Health (2005) National Service Framework for Long Term Conditions. NSF Team: 10.03.05.
11. Department of Health (2005a) National Service Framework for Long Term (Neurological) Conditions. London: Department of Health.
12. Department of Health (2005b) Independence, Well Being and Choice. London: Department of Health.
13. Department of Health (2006) Our Health, Our Care, Our Say. London: Department of Health.
14. Help the Aged (2006) My Home Life: The Quality of Life in Care Homes. London: Help the Aged, National Care Forum, National Care Homes Research & Development Forum.
15. Huberman AM Miles MB(2002) The Qualitative Researcher's Companion. Thousand Oaks, Sage.
16. Hughes CM(2008) Compliance with medication in nursing homes for older people: resident enforcement or resident empowerment? Drugs Aging 25: 445-454.
17. www.laingbuisson.co.uk/longtermcare.htm
18. Lang AE Lozano AM(1998) Parkinson's disease. N Engl J Med 339: 1044-1053.
19. MacMahon DG Thomas S(1998) Practical approach to quality of life in Parkinson's disease. J Neurol 245(Suppl. 1): S19-S22.
20. MacNeill V; Jenkinson C; (2008) Qualitative Study of Respite Care for People with PD and Their Carers. University of Oxford, Oxford. PDS funded study.
21. Miles MB Huberman AM(1994) Qualitative Data Analysis. London: Sage.
22. Mitchell SL Kiely DK Kiel DP Lipsitz LA(1996) The epidemiology, clinical characteristics, and natural history of older nursing home residents with a diagnosis of Parkinson's disease. J Am Geriatr Soc 44: 394-309.
23. Mozley C; Sutcliffe C; Bagley H; Cordingley L; Challis D; Huxley P; (2004) Towards Quality Care: Outcomes for Older People in Care Homes. PSSRU/Ashgate: University of Kent.
24. National Institute for Clinical Excellence (2006) The Parkinson's Disease National Clinical Guideline for Diagnosis and Management in Primary and Secondary Care. London: NICE/Royal College of Physicians.
25. National Minimum Standards (2003) Care Homes for Older People, third ed. London: Department of Health (Revised).
26. Oxtoby M Williams A(1999) Parkinson's Disease at Your Fingertips, second ed. London: Class Publishing.
27. Parkinson's Disease Society (2006) Personal Communications from PDS Member/Carers via Andrea Ttofa, Senior Media Officer, 13.10.06.
28. Parkinson's Disease Society (2008) Life with Parkinson's Today - Room for Improvement. London: Parkinson's Disease Society.
29. Rantz MJ Popejoy L Petroski GF Madsen RW(2001) Randomised control trial of quality improvement interventions in nursing homes. Gerontologist 41: 525-538.
30. Ritchie J Spencer L O'Connor W(2003b) Carrying out qualitative analysis. In: J Ritchie J Lewis. Qualitative Research Practice. London: Sage, pp. 219-262.
31. Rowles GD High DM(2003) Family involvement in nursing home facilities: a decision-making perspective. In: PB Stafford (ed), Grey Matters: Ethnographic Encounters with Nursing Home Culture. Santa Fe: School of American Research Press, pp. 173-201.
32. Sandberg J Lundh U Nolan MR(2001) Placing a spouse in a care home: the importance of keeping. [in contact]J Clin Nurs 10: 406-416.
33. Thomas S MacMahon DG Maguire J(2006) Moving and Shaping: a Guide to Community Integrated Services for People with Parkinson's Disease. London: Parkinson's Disease Society.