Disparities in epilepsy: Report of a systematic review by the North American Commission of the international league against epilepsy

Epilepsia

Volumn 50, Issue 10, 2009, Pages 2285-2295

  Burneo, Jorge G ^a   Jette, Nathalie ^b   Theodore, William ^c   Begley, Charles ^d   Parko, Karen ^e   Thurman, David J ^f   Wiebe, Samuel ^b  

^a UNIVERSITY OF WESTERN ONTARIO   (Canada)

^b UNIVERSITY OF CALGARY   (Canada)

^c NATIONAL INSTITUTES OF HEALTH   (United States)

^d UNIVERSITY OF TEXAS SCHOOL OF PUBLIC HEALTH   (United States)

^e UNIVERSITY OF CALIFORNIA   (United States)

^f CENTERS FOR DISEASE CONTROL AND PREVENTION   (United States)

Author keywords

Disparity; Epilepsy; North america

Indexed keywords

ABORIGINE; ARTICLE; ATTITUDE TO HEALTH; CANADA; CENTRAL AMERICA; CHIROPRACTIC; CHRONIC DISEASE; DENTIST; EDUCATIONAL STATUS; EMERGENCY WARD; EMPLOYMENT; EPILEPSY; ETHNICITY; EVALUATION; GENDER; GENERAL PRACTITIONER; GROUPS BY AGE; HEALTH CARE ACCESS; HEALTH CARE DISPARITY; HEALTH INSURANCE; HOSPITAL ADMISSION; HUMAN; INCIDENCE; KNOWLEDGE; MEDICAL SPECIALIST; NURSE; PATIENT ATTITUDE; PHYSIOTHERAPIST; PREVALENCE; PRIORITY JOURNAL; PSYCHOLOGIST; RACE; RESOURCE ALLOCATION; SOCIAL STATUS; SYSTEMATIC REVIEW; TREATMENT OUTCOME; UNITED STATES;

ATTITUDE TO HEALTH; CANADA; CARIBBEAN REGION; CHRONIC DISEASE; EPILEPSY; ETHNIC GROUPS; FEMALE; HEALTH CARE SURVEYS; HEALTH POLICY; HEALTH SERVICES ACCESSIBILITY; HEALTH SERVICES NEEDS AND DEMAND; HEALTH STATUS; HEALTHCARE DISPARITIES; HUMANS; INCIDENCE; INTERNATIONAL AGENCIES; MALE; MINORITY GROUPS; NEUROSURGERY; NORTH AMERICA; PREVALENCE; SOCIAL CLASS; UNITED STATES;

EID: 70349330912     PISSN: 00139580     EISSN: 15281167     Source Type: Journal    
DOI: 10.1111/j.1528-1167.2009.02282.x     Document Type: Article

References (56)

1. Andersen R, Aday LA 1978) Access to medical care in the U.S.: realized and potential. Med Care 16 : 533 546. (Pubitemid 8394846)
2. Annegers JF, Dubinsky S, Coan SP, Newmark ME, Roht L 1999) The incidence of epilepsy and unprovoked seizures in multiethnic, urban health maintenance organizations. Epilepsia 40 : 502 506.
3. Baxter NN 2007) Equal for whom? Addressing disparities in the Canadian medical system must become a national priority. CMAJ 177 : 1522 1523.
4. Boehmer U, Kressin NR, Berlowitz DR, Christiansen CL, Kazis LE, Jones JA 2002) Self-reported vs administrative race/ethnicity data and study results. Am J Public Health 92 : 1471 1472.
5. Burneo JG, Martin R 2004) Reporting race/ethnicity in epilepsy clinical trials. Epilepsy Behav 5 : 743 745.
6. Burneo JG, Black L, Knowlton RC, Faught E, Morawetz R, Kuzniecky RI 2005a) Racial disparities in the use of surgical treatment for intractable temporal lobe epilepsy. Neurology 64 : 50 54.
7. Burneo JG, Knowlton RC, Martin R, Faught RE, Kuzniecky RI 2005b) Race/ethnicity: a predictor of temporal lobe epilepsy surgery outcome? Epilepsy Behav 7 : 486 490.
8. Burneo JG, Black L, Martin R, Devinsky O, Pacia S, Faught E, Vasquez B, Knowlton RC, Luciano D, Doyle W, Najjar S, Kuzniecky RI 2006) Race/ethnicity, sex, and socioeconomic status as predictors of outcome after surgery for temporal lobe epilepsy. Arch Neurol 63 : 1106 1110.
9. Carran MA, Kohler CG, O'Connor MJ, Cloud B, Sperling MR 1999) Marital status after epilepsy surgery. Epilepsia 40 : 1755 1760.
10. Carter-Pokras O, Baquet C 2002) What is a "health disparity"? Public Health Rep 117 : 426 434.
11. Caveness WF, Merritt HH, Gallup GH 1969) A survey of public attitudes toward epilepsy in 1969 with an indication of trends over the past twenty years. Epilepsia 10 : 429 440.
12. Caveness WF, Merritt HH, Gallup GH Jr. 1974) A survey of public attitudes toward epilepsy in 1974 with an indication of trends over the past twenty-five years. Epilepsia 15 : 523 536.
13. Dansky LV, Andermann E, Andermann F 1980) Marriage and fertility in epileptic patients. Epilepsia 21 : 261 271.
14. Dodrill CB, Batzel LW, Wilensky AJ, Yerby MS 1987) The role of psychosocial and financial factors in medication noncompliance in epilepsy. Int J Psychiatry Med 17 : 143 154.
15. Elliott JO, Jacobson MP, Seals BF 2006) Self-efficacy, knowledge, health beliefs, quality of life, and stigma in relation to osteoprotective behaviors in epilepsy. Epilepsy Behav 9 : 478 491.
16. Fowler RA, Sabur N, Li P, Juurlink DN, Pinto R, Hladunewich MA, Adhikari NK, Sibbald WJ, Martin CM. (2007) Sex-and age-based differences in the delivery and outcomes of critical care. CMAJ 177 : 1513 1519.
17. Gehlert S, DiFrancesco A, Chang CH 2000) Black-white differences in the psychosocial outcomes of epilepsy. Epilepsy Res 42 : 63 73.
18. Getz K, Hermann B, Seidenberg M, Bell B, Dow C, Jones J, Woodard A. (2003) Negative symptoms and psychosocial status in temporal lobe epilepsy. Epilepsy Res 53 : 240 244.
19. Green JB, Hartlage LC 1971) Comparative performance of epileptic and nonepileptic children and adolescents. (On tests of academic, communicative and social skills). Dis Nerv Syst 32 : 418 421.
20. Hamdy NA, Ginby D, Feltbower R, Ferrie CD 2007) Ethnic differences in the incidence of seizure disorders in children from Bradford, United kingdom. Epilepsia 48 : 913 916.
21. Harden CL, Kossoy A, Vera S, Nikolov B 2004) Reaction to epilepsy in the workplace. Epilepsia 45 : 1134 1140.
22. Hussain SA, Haut SR, Lipton RB, Derby C, Markowitz SY, Shinnar S 2006) Incidence of epilepsy in a racially diverse, community-dwelling, elderly cohort: results from the Einstein aging study. Epilepsy Res 71 : 195 205.
23. Institute-of-Medicine-Committee-on-the-Consequences-of-Uninsurance 2003) Hidden costs, value lost: uninsurance in America. National Academy Press, Washington, DC.
24. Jette N, Quan H, Faris P, Dean S, Li B, Fong A, Wiebe S. (2008) Health resource use in epilepsy: significant disparities by age, gender, and aboriginal status. Epilepsia 49 : 586 593.
25. Kaplan JB, Bennett T 2003) Use of race and ethnicity in biomedical publication. JAMA 289 : 2709 2716.
26. Kobau R, DiIorio C 2003) Epilepsy self-management: a comparison of self-efficacy and outcome expectancy for medication adherence and lifestyle behaviors among people with epilepsy. Epilepsy Behav 4 : 217 225.
27. Kobau R, DiIorio CA, Price PH, Thurman DJ, Martin LM, Ridings DL, Henry TR. (2004) Prevalence of epilepsy and health status of adults with epilepsy in Georgia and Tennessee: Behavioral Risk Factor Surveillance System, 2002. Epilepsy Behav 5 : 358 366.
28. Kozyrskyj AL, Prasad AN 2004) The burden of seizures in Manitoba children: a population-based study. Can J Neurol Sci 31 : 48 52.
29. Krieger N 2000) Refiguring "race": epidemiology, racialized biology, and biological expressions of race relations. Int J Health Serv 30 : 211 216.
30. LaVeist TA 2000) On the study of race, racism, and health: a shift from description to explanation. Int J Health Serv 30 : 217 219.
31. Long L, Reeves AL, Moore JL, Roach J, Pickering CT 2000) An assessment of epilepsy patients' knowledge of their disorder. Epilepsia 41 : 727 731.
32. Lu C, Wirrell E, Blackman M 2005) Where do families of children with epilepsy obtain their information? J Child Neurol 20 : 905 910.
33. McNelis AM, Dunn DW, Johnson CS, Austin JK, Perkins SM 2007) Academic performance in children with new-onset seizures and asthma: a prospective study. Epilepsy Behav 10 : 311 318.
34. Mitchell WG, Scheier LM, Baker SA 1994) Psychosocial, behavioral, and medical outcomes in children with epilepsy: a developmental risk factor model using longitudinal data. Pediatrics 94 : 471 477.
35. Mitchell WG, Scheier LM, Baker SA 2000) Adherence to treatment in children with epilepsy: who follows "doctor's orders"? Epilepsia 41 : 1616 1625.
36. Murphy CC, Trevathan E, Yeargin-Allsopp M 1995) Prevalence of epilepsy and epileptic seizures in 10-year-old children: results from the Metropolitan Atlanta Developmental Disabilities Study. Epilepsia 36 : 866 872.
37. NIH 2002) Health disparities in epilepsy panel. Available from http://www.ninds.nih.gov/news-and-events/proceedings/epilepsy-panel-2002.htm (Accessed December 16, 2008), Rockville, MD.
38. Ott D, Siddarth P, Gurbani S, Koh S, Tournay A, Shields WD, Caplan R. (2003) Behavioral disorders in pediatric epilepsy: unmet psychiatric need. Epilepsia 44 : 591 597.
39. Oyegbile TO, Dow C, Jones J, Bell B, Rutecki P, Sheth R, Seidenberg M, Hermann BP. (2004) The nature and course of neuropsychological morbidity in chronic temporal lobe epilepsy. Neurology 62 : 1736 1742.
40. Reading R, Haynes R, Beach R 2006) Deprivation and incidence of epilepsy in children. Seizure 15 : 190 193.
41. Rockefeller Foundation 2002) Challenging inequities in health: from ethics to action. Available from: http://www.rockfound.org [Accessed December 19, 2007].
42. Shore CP, Austin JK, Huster GA, Dunn DW 2002) Identifying risk factors for maternal depression in families of adolescents with epilepsy. J Spec Pediatr Nurs 7 : 71 80.
43. Sirven JI, Lopez RA, Vazquez B, Van Haverbeke P 2005) Que es la Epilepsia? Attitudes and knowledge of epilepsy by Spanish-speaking adults in the United States. Epilepsy Behav 7 : 259 265.
44. Snodgrass SR, Vedanarayanan VV, Parker CC, Parks BR 2001) Pediatric patients with undetectable anticonvulsant blood levels: comparison with compliant patients. J Child Neurol 16 : 164 168.
45. Strine TW, Kobau R, Chapman DP, Thurman DJ, Price P, Balluz LS 2005) Psychological distress, comorbidities, and health behaviors among U.S. adults with seizures: results from the 2002 National Health Interview Survey. Epilepsia 46 : 1133 1139.
46. Swarztrauber K, Dewar S, Engel J Jr. 2003) Patient attitudes about treatments for intractable epilepsy. Epilepsy Behav 4 : 19 25.
47. Szaflarski M, Szaflarski JP, Privitera MD, Ficker DM, Horner RD 2006) Racial/ethnic disparities in the treatment of epilepsy: what do we know? What do we need to know? Epilepsy Behav 9 : 243 264.
48. Tellez-Zenteno JF, Pondal-Sordo M, Matijevic S, Wiebe S 2004) National and regional prevalence of self-reported epilepsy in Canada. Epilepsia 45 : 1623 1629.
49. Theodore WH, Spencer SS, Wiebe S, Langfitt JT, Ali A, Shafer PO, Berg AT, Vickrey BG. (2006) Epilepsy in North America: a report prepared under the auspices of the global campaign against epilepsy, the International Bureau for Epilepsy, the International League Against Epilepsy, and the World Health Organization. Epilepsia 47 : 1700 1722.
50. Tse E, Hamiwka L, Sherman EM, Wirrell E 2007) Social skills problems in children with epilepsy: prevalence, nature and predictors. Epilepsy Behav 11 : 499 505.
51. West MD, Dye AN, McMahon BT 2006) Epilepsy and workplace discrimination: population characteristics and trends. Epilepsy Behav 9 : 101 105.
52. Whitehead E, Dodds L, Joseph KS, Gordon KE, Wood E, Allen AC, Camfield P, Dooley JM. (2006) Relation of pregnancy and neonatal factors to subsequent development of childhood epilepsy: a population-based cohort study. Pediatrics 117 : 1298 1306.
53. Wiebe S, Bellhouse DR, Fallahay C, Eliasziw M 1999) Burden of epilepsy: the Ontario Health Survey. Can J Neurol Sci 26 : 263 270.
54. Williams J, Phillips T, Griebel ML, Sharp GB, Lange B, Edgar T, Simpson P. (2001) Factors associated with academic achievement in children with controlled epilepsy. Epilepsy Behav 2 : 217 223.
55. Williams J, Steel C, Sharp GB, DelosReyes E, Phillips T, Bates S, Lange B, Griebel ML. (2003) Anxiety in children with epilepsy. Epilepsy Behav 4 : 729 732.
56. Young GB, Derry P, Hutchinson I, John V, Matijevic S, Parrent L, Wiebe S. (2002) An epilepsy questionnaire study of knowledge and attitudes in Canadian college students. Epilepsia 43 : 652 658.