AsktheGeneticistSM: Five years of online experience

Genetics in Medicine

Volumn 11, Issue 4, 2009, Pages 294-304

  Tesla, Catherine ^a   Korf, Bruce R ^a   Holt, Lynn ^a   Prucka, Sandra ^a   Robin, Nathaniel H ^a   Descartes, Maria ^a   Lose, Edward ^a   Stembridge, Adrya ^a   Epstein, Michael ^a   Warren, Stephen ^a  

^a EMORY UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

Education; Genetic literacy; Internet; Online genetics information; Public health genetics

Indexed keywords

ADOLESCENT; ADULT; AGED; ARTICLE; GENETIC COUNSELING; HEALTH EDUCATION; HUMAN; INTERNET; METHODOLOGY; MIDDLE AGED; QUESTIONNAIRE; STATISTICS; UTILIZATION REVIEW;

ADOLESCENT; ADULT; AGED; GENETIC COUNSELING; HEALTH EDUCATION; HUMANS; INTERNET; MIDDLE AGED; QUESTIONNAIRES; YOUNG ADULT;

EID: 70349314505     PISSN: 10983600     EISSN: 15300366     Source Type: Journal    
DOI: 10.1097/GIM.0b013e31819b2441     Document Type: Article

References (33)

1. Baker L, Wagner T, Singer S, Bundorf SS. Use of the internet and e-mail for health care information: results from a national survey. JAMA 2003;289:2400-2406.
2. Statistics Canada: Canadian Internet Use Survey: January 15, 2008. Available at: http://www.statcan.ca/Daily/English/060815/d060815b.htm.
3. Jeannot J-G, Froehlich F, Wietlisbach V, Burnand B, Terraz O, Vader J-P. Patient use of the internet for health care information in Sweden. Swiss Med Wkly 2004;134:307-312.
4. Fox S. Health information online: eight in ten users have looked for health information online, with increased interest in diet, fitness, drugs, health insurance, experimental treatments, and particular doctors and hospitals. Pew Internet and American Life Project. May 17, 2005. Available at: http://pewinternet.org/.
5. The Harris Poll®: Number of “cyberchondriacs” - adults who have ever done online for health information - increases to an estimated 160 million nationwide. HarrisInteractive®. April 3, 2008. Available at: http://www.harrisinteractive.com/harris_poll/index.asp?PID686.
6. Taylor MRG, Alman A, Manchester DKM. Use of the internet by patients and their families to obtain genetics-related information. Mayo Clin Proc 2001;76:772-776.
7. Christian SM, Kieffer SA, Leonard NJ. Medical genetics and patient use of the Internet. Clin Genet 2001;60:232-236.
8. Bansil P, Keenan NL, Ziot AI, Gilliland JC. Health-related information on the web: Results from the HealthStyles survey, 2003-2003 [serial online]. Prev Chronic Dis 2006 April. Available from: http://www.cdc.gov/pcd/issues/2006/apr/05_0155htm.
9. Murray E, Lo B, Pollack L, et al. The impact of health information on the Internet on health care and the physician-patient relationship: national U.S. survey among 1,050 U.S. physicians. J Med Internet Res 2003;5:e17.
10. Powell JA, Darvell M, Gray JAM. The doctor, the patient, and the world-wide web: how the internet is changing healthcare. J R Soc Med 2003;96:74-76.
11. Madden M, Fox S. Finding answers online in sickness and in health. Pew Internet & American Life Project. Available at: http://www.pewinternet.org/. Accessed May 2, 2006.
12. Diaz JA, Griffith RA, Ng JJ, Reinert SE, Friedmann PD, Moulton AW. Patient’s use of the internet for medical information. J Gen Intern Med 2002;17:180-185.
13. Fox S, Rainie L. Vital decisions: how internet users decide what information to trust when they or their loved ones are sick. Pew Internet & American Life Project. Available at: http://www.pewinternet.org/. Accessed May 22, 2002.
14. Shuyler KS, Knight KM. What are patients seeking when they turn to the internet? Qualitative content analysis of questions asked by visitors to an orthopaedics website. J Med Internet Res 2003;5:e24.
15. Google™ Directory. Available at: http://directory.google.com/Top/Health/Conditions_and_Diseases/. Accessed September 13, 2007.
16. Fox S. Health information online: eight in ten users have looked for health information online, with increased interest in diet, fitness, drugs, health insurance, experimental treatments, and particular doctors and hospitals. Pew Internet and American Life Project: May 17, 2005. Available at: http://pewinternet.org/.
17. Internet Archive. Available at: http://www.archive.org/web/web.php. Accessed September 27, 2007.
18. Fox S, Rainie L, Horrigan J, et al. The online health care revolution: how the web helps Americans take better care of themselves. Pew Internet and American Life Project: November 26, 2000. Available at: http://www.pewinternet.org.
19. Janet M. Morahan-Martin. CyberPsychology & Behavior 2004;7:497-510. Available at: http://www.pewinternet.org/pdfs/PIP_Online_Health_2006.pdf.
20. Leggat, Helen. Women rely on Internet for health information. July 7, 2008. Available at: http://www.comscore.com/press/release.asp?press=2012.
21. BizReport.com; Women More Likely to Turn to Internet than Friends or Family for Health Information. January 22, 2008. Available at: http://www.bizreport.com/2008/07/women_rely_on_internet_for_health_information.html.
22. Nicholson W, Grason H, Powe NR; Academy for Health Services Research and Health Policy. Meeting. The Relation of Race to Women’s Use of Health Information Resources. Abstr Acad Health Serv Res Health Policy Meet. 2002;19: 2. Available at: http://gateway.nlm.nih.gov/MeetingAbstracts/ma?f=102274273.html.
23. Berthold J. Email in demand, but cost, security worry physicians. Nov/Dec 2007, American College of Physicians Observer Newsletter. Available at: http://www.acponline.org/clinical_information/journals_publications/acp_internist/nov07/email.htm.
24. EbizMBA; February 2008. Available at: http://www.ebizmba.com/articles/health.
25. Community of Genetic Educators; https://www.coge.nih.gov/Default.aspx. Accessed June 30, 2008.
26. Genetic Alliance. Available at: http://www.geneticalliance.org/ws_display.asp?filter=listserv&char=A&s_Diseases=. Accessed June 30, 2008.
27. Medical News Today. Available at: http://www.medicalnewstoday.com/sections/genetics/. Accessed June 30, 2008.
28. Technology Review. Available at: http://www.technologyreview.com/Biotech/. Accessed June 30, 2008.
29. Nature News. Available at: http://www.nature.com/news/index.html. Accessed June 30, 2008.
30. TM. Available at: http://www.youtube.com/. Accessed May 13, 2008.
31. Alexa Rank®. Available at: http://www.alexa.com/. Accessed May 13, 2008.
32. Cooksey JA, Forte BA, Benkendorf J, Blitzer MG. The state of the medical geneticist workforce: Findings of the 2003 survey of American Board of Medical Genetics certified geneticists. Genet Med 2005;7:439-443.
33. Korf BR, Feldman G, Wiesner GL. Report of the Banbury Summit meeting on training of physicians in medical genetics, October 20-22, 2004. Genet Med 2005;7:433-438.