Breast cancer-related lymphedema: Implications for family leisure participation

Family Relations

Volumn 58, Issue 4, 2009, Pages 445-459

  Radina, M Elise ^a  

^a MIAMI UNIVERSITY   (United States)

Author keywords

Chronic illness; Families and health illness; Family systems theory; Qualitative studies in the area of families

Indexed keywords

EID: 70349312838     PISSN: 01976664     EISSN: 17413729     Source Type: Journal    
DOI: 10.1111/j.1741-3729.2009.00565.x     Document Type: Article

References (47)

1. Agate, S. T., & Covey, C. D. (2007). Family camps: An overview of benefits and issues of camps and programs for families. Child and Adolescent Psychiatric Clinics of North America, 16, 921 937.
2. American Cancer Society 2007). Cancer deaths drop for second consecutive year. Retrieved February 23, 2007, from http://www.cancer.org/docroot/MED/ content/MED-2-1x-Cancer-Deaths-Drop-for-Second-Consecutive-Year.asp.
3. Armer, J. M., Radina, M. E., Porock, D., & Culbertson, S. D. (2003). Predicting breast cancer related lymphedema using self-reported symptoms. Nursing Research, 52, 370 379.
4. Berne, R. M., & Levy, M. N. (1996). Principles of physiology (2nd ed.). St. Louis, MO : Mosby.
5. Bethune-Davies, P., McWilliam, C. L., & Berman, H. (2006). Living with the health and social inequalities of a disability: A critical feminist study. Health Care for Women International, 27, 204 222.
6. Bosompra, K., Ashikaga, T., O'Brien, P. J., Nelson, L., Skelly, J., & Beatty, D. J. (2002). Knowledge about preventing and managing lymphedema: A survey of recently diagnosed and treated breast cancer patients. Patient Education and Counseling, 47, 155 163.
7. Casley-Smith, J. R. (1992). Modern treatment of lymphoedema. Modern Medicine of Australia, 35, 70 83.
8. Clark, B., Sitzia, J., & Harlow, W. (2005). Incidence and risk of arm oedema following treatment for breast cancer: A three-year follow-up study. QJM: An International Journal of Medicine, 98, 343 348.
9. Coster, S., Poole, K., & Fallowfield, L. J. (2001). The validation of a quality of life scale to assess the impact of arm morbidity in breast cancer patients post-operatively. Breast Cancer Research and Treatment, 68, 273 282.
10. Ferrans, C. E. (1997). Development of a conceptual model of quality of life. In A. G. Gift (Ed.), Clarifying concepts in nursing research (pp. 293 304). New York : Springer.
11. Gasson, S. (2004). Rigor in grounded theory research: An interpretive perspective on generating theory from qualitative field notes. In M. Whitman & A. B. Woszcynski (Eds.), The handbook of information systems research (pp. 79 102). Hershey, PA : Idea Group.
12. Guerin, N., & Dattilo, J. (2001). Family leisure in the context of a chronic disabling condition. Annual in Therapeutic Recreation, 10, 73 82, 84-85, 93.
13. Henderson, K. A., Bialeschki, M.D., Shaw, S. M., & Freysiner, V. J. (1996). Both gains and gaps: Feminist perspectives on women's leisure. State College, PA : Venture Publishing.
14. Hill, C. E., Thompson, B. J., & Williams, E. N. (1997). A guide to conducting consensual qualitative research. The Counseling Psychologist, 25, 517 572.
15. Jo, S., Kosciulek, J. F., Huh, C., & Holecek, D. F. (2004). Comparison of travel patterns of families with and without a member with a disability. Journal of Rehabilitation, 70, 34 45.
16. Kwan, W., Jackson, J., Weir, L. M., Dingee, C., McGregor, G., & Olivotto, I. A. (2002). Chronic arm morbidity after curative breast cancer treatment: Prevalence and impact on quality of life. Journal of Clinical Oncology, 20, 4242 4248.
17. Lloyd, C., King, R., Lampe, J., & McDougall, S. (2001). The leisure satisfaction of people with psychiatric disabilities. Psychiatric Rehabilitation Journal, 25, 107 113.
18. Lymphnotes 2006). Infections related to lymph- edema. Retrieved February 11, 2008, from http://www.lymphnotes.com/article.php/id/10/.
19. Markowski, J., Wilcox, J. P., & Phala, A. H. (1981). Lymphedema incidence after specific postmastectomytherapy. Rehabilitation, 63, 449 452.
20. Maunsell, E., Brisson, J., & Deschenes, L. (1993). Arm problems and psychological distress after surgery for breast cancer. Canadian Journal of Surgery, 36, 315 320.
21. McCubbin, M. A., & McCubbin, H. I. (1993). Families coping with illness: The resiliency model of family stress, adjustment, and adaptation. In C. Danielson, B. P. H. Bissell, & P. Winstead-Fry (Eds.), Families, health, and illness: Perspectives on coping and intervention (pp. 21 63). St. Louis, MO : Mosby.
22. McCubbin, H. I., Thompson, A. I., & McCubbin, M. A. (1996). Resiliency in families: A conceptual model of family adjustment and adaptation in response to stress and crisis. In H. I. McCubbin, A. I. Thompson, & M.A. McCubbin (Eds.), Family assessment: Resiliency, coping and adaptation: Inventories for research and practice (pp. 1 63). Madison : University of Wisconsin Press.
23. Medline Plus 2006). Cellulitis. Retrieved February 11, 2008, from http://www.nlm.nih.gov/medlineplus/ency/article/000855.htm.
24. Morrow, S. L. (2005). Quality and trustworthiness in qualitative research in counseling psychology. Journal of Counseling Psychology, 52, 250 260.
25. Olsen, D. H. (1986). Circumplex model VII: Validation studies and Faces III. Family Process, 25, 337 351.
26. Orthner, D. K., & Mancini, J. A. (1990). Leisure impact on family interaction and cohesion. Journal of Leisure Research, 22, 125 137.
27. Passik, S. D., & McDonald, M. V. (1998). Psychosocial aspects of upper extremity lymphedema in women treated for breast carcinoma. Cancer, 83, 2817 2820.
28. Passik, S. D., Newman, M., Brennan, M., & Tunkel, R. (1995). Predictors of psychological distress, sexual dysfunction and physical functioning among women with upper extremity lymphedema related to breast cancer. Psycho-Oncology, 4, 255 263.
29. Patton, M. Q. (2002). Qualitative research & evaluation methods (3rd ed.). Thousand Oaks, CA : Sage.
30. Pondé, M. P., & Santana, V. S. (2000). Participation in leisure activities: Is it a protective factor for women's mental health? Journal of Leisure Research, 32, 457 472.
31. Purcell, R., & Keller, J. (1989). Characteristics of leisure activities which may lead to leisure satisfaction among older adults. Activities, Aging & Adaptation, 13, 17 29.
32. Radina, M. E., & Armer, J. M. (2001). Post-breast cancer lymphedema and the family: A qualitative investigation of families coping with chronic illness. Journal of Family Nursing, 7, 281 299.
33. Radina, M. E., & Armer, J. M. (2004). Surviving breast cancer and living with lymphedema: Resiliency among women in the context of their families. Journal of Family Nursing, 10, 485 505.
34. Ridner, S. H. (2002). Breast cancer lymphedema: Pathophysiology and risk reduction guidelines. Oncology Nursing Forum, 29, 1285 1293.
35. Ries, L. A. G., Melbert, D., Krapcho, M., Mariotto, A., Miller, B. A., Feuer, E. J., Clegg, L., Horner, M. J., Howlader, N., Eisner, M. P., Reichman, M., & Edwards, B. K. (Eds.). (2007). SEER Cancer Statistics Review, 1975-2004, National Cancer Institute. Bethesda, MD.
36. Rowe, J., & Kahn, R. (1998). Successful aging. New York : Random House.
37. Smith, R. A. (1998). Introduction: American Cancer Society workshop on breast cancer treatment-related lymphedema. Cancer, 83 (12 Suppl. 2775.
38. Stalp, M. C., Radina, M. E., & Lynch, A. (2008). "We do it cuz it's fun": Creating women's leisure space through Red Hat Society membership. Sociological Perspectives, 51, 325 348.
39. Stone, A. A. (1987). Event content in a daily survey is differentially associated with concurrent mood. Journal of Personality and Social Psychology, 52, 56 58.
40. Thomas-MacLean, R., Miedema, B., & Tatemichi, S. R. (2005). Breast cancer-related lymphedema: Women's experiences with an underestimated condition. Canadian Family Physician, 51, 246 247.
41. Walker, G. J., Deng, J., & Dieser, R. B. (2001). Ethnicity, acculturation, self-construal, and motivations for outdoor recreation. Leisure Sciences, 23, 263 283.
42. White, J. M., & Klein, D. M. (2002). Family theories (2nd ed.). Thousand Oaks, CA : Sage.
43. Zabriskie, R. (2000). An examination of family and leisure behaviors among families with middle school aged children. Unpublished dissertation, Indiana University, Bloomington.
44. Zabriskie, R., Lundberg, N. R., & Groff, D. G. (2005). Quality of life and identity: The benefits of a community-based therapeutic recreation and adaptive sports program. Therapeutic Recreation Journal, 39, 176 191.
45. Zabriskie, R., & McCormick, B. (2001). The influences of family leisure patterns on perceptions of family functioning. Family Relations, 50, 66 74.
46. Zabriskie, R., & McCormick, B. (2003). Parent and child perspectives of family leisure involvement and satisfaction with family life. Journal of Leisure Research, 35, 163 189.
47. Zabriskie, R., McCormick, B., & Austin, D. (2001). The relationship of family leisure to family functioning and satisfaction. Abstracts from the 2001 Symposium on Leisure Research, 77. Ashburn, VA : National Recreation and Park Association.