Parents' interest in predictive genetic testing for their children when a disease has no treatment

Pediatrics

Volumn 124, Issue 3, 2009, Pages

  Tarini, Beth A ^a   Singer, Dianne ^a   Clark, Sarah J ^a   Davis, Matthew M ^a,b  

^a UNIVERSITY OF MICHIGAN MEDICAL SCHOOL   (United States)

^b UNIVERSITY OF MICHIGAN   (United States)

Author keywords

Children; Decision making; Parents; Predictive genetic testing

Indexed keywords

ADULT; ARTICLE; CONTROLLED STUDY; DISEASE SEVERITY; FEMALE; GENETIC SCREENING; HEALTH BEHAVIOR; HEALTH SURVEY; HUMAN; INTERNET; MALE; ONSET AGE; PARENTAL ATTITUDE; PRIORITY JOURNAL; RATING SCALE;

ADULT; ATTITUDE TO HEALTH; FEMALE; GENETIC TESTING; HUMANS; MALE; PARENTS;

EID: 70349260949     PISSN: 00314005     EISSN: 10984275     Source Type: Journal    
DOI: 10.1542/peds.2008-2389     Document Type: Article

References (13)

1. 23andMe. Health and traits: type 2 diabetes. Available at: www.23andme.com/health/ type2diabetes. Accessed January 9, 2009
2. Fanos JH, Gelinas DF, Miller RG. "You have shown me my end": attitudes toward presymptomatic testing for familial amyotrophic lateral sclerosis. Am J Med Genet A. 2004;129A(3): 248-253
3. Nelson RM, Botkjin JR, Kodish ED, et al. Ethical issues with genetic testing in pediatrics. Pediatrics. 2001;107(6):1451-1455 (Pubitemid 32525235)
4. American Society of Human Genetics, Board of Directors; American College of Medical Genetics, Board of Directors. Points to consider: ethical, legal, and psychosocial implications of genetic testing in children and adolescents. Am J Hum Genet. 1995;57(5):1233-1241
5. Macur J. Born to run? Little ones get test for sports gene. New York Times. November 30, 2008:A1
6. Borry P, Howard HC, Sénécal K, Avard D. Direct-to-consumer genome scanning services: also for children? Nat Rev Genet. 2009;10(1):8
7. Kalish GM, Bhargavan M, Sunshine JH, Forman HP. Self-referred whole-body imaging: where are we now? Radiology. 2004;233(2):353-358 (Pubitemid 39423791)
8. 23andMe. Core values. Available at: www.23andme.com/about/values. Accessed July 24, 2009
9. Benkendorf JL, Reutenauer JE, Hughes CA, et al. Patients' attitudes about autonomy and confidentiality in genetic testing for breast-ovarian cancer susceptibility. Am J Med Genet. 1997;73(3): 296-303
10. Gwyn K, Vernon SW, Conoley PM. Intention to pursue genetic testing for breast cancer among women due for screening mammography. Cancer Epidemiol Biomarkers Prev. 2003;12(2):96-102 (Pubitemid 36193998)
11. Singer E, Antonucci T, Van Hoewyk J. Racial and ethnic variations in knowledge and attitudes about genetic testing. Genet Test. 2004;8(1):31-43 (Pubitemid 38529667)
12. Holtzman NA, Watson MS, eds. Promoting Safe and Effective Genetic Testing in the United States: Final Report of the Task Force on Genetic Testing. Baltimore, MD: Johns Hopkins University Press; 1997
13. Tarini BA, Singer DC, Clark SJ, Davis MM. Parents' concern about their own and their children's genetic disease risk: potential effects of family history vs genetic test results. Arch Pediatr Adolesc Med. 2008;162(11):1079- 1083