Developing a descriptive system for a new preference-based measure of health-related quality of life for children

Quality of Life Research

Volumn 18, Issue 8, 2009, Pages 1105-1113

  Stevens, Katherine ^a  

^a UNIVERSITY OF SHEFFIELD   (United Kingdom)

Author keywords

Health care rationing; Paediatrics; Quality of life; Quality adjusted life years

Indexed keywords

ARTICLE; CHILD; DECISION MAKING; HEALTH STATUS; HUMAN; INTERVIEW; PRIORITY JOURNAL; QUALITY ADJUSTED LIFE YEAR; QUALITY OF LIFE; RESOURCE ALLOCATION; ADAPTIVE BEHAVIOR; CHILD WELFARE; ECONOMICS; FEMALE; HEALTH CARE POLICY; MALE; MENTAL STRESS; PATIENT SATISFACTION; PEDIATRICS; PSYCHOMETRY; QUALITATIVE RESEARCH; STATISTICS; STATISTICS AND NUMERICAL DATA; UNITED KINGDOM;

ADAPTATION, PSYCHOLOGICAL; CHILD; CHILD WELFARE; FEMALE; GREAT BRITAIN; HEALTH CARE REFORM; HUMANS; MALE; PATIENT SATISFACTION; PEDIATRICS; PSYCHOMETRICS; QUALITATIVE RESEARCH; QUALITY OF LIFE; RESOURCE ALLOCATION; STATISTICS AS TOPIC; STRESS, PSYCHOLOGICAL;

EID: 70349230788     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11136-009-9524-9     Document Type: Article

References (20)

1. NICE (National Institute for Clinical Excellence). (April 2004). Guide to the methods of technology appraisal.
2. McCabe, C. (May 2003). Estimating preference weights for a paediatric health state classification (HUI2) and a comparison of methods. Ph.D.Thesis. The University of Sheffield.
3. Stevens, K. J. (2008). Working with children to develop dimensions for a preference based generic paediatric health related quality of life measure. Health Economics and Decision Science Discussion Paper 08/04. Available from http://www.shef.ac.uk/scharr/sections/heds/discussion.html Accessed 14/08/2008.
4. Streiner, D. L., Norman, G. R., & Health Measurement Scales. (1995). A practical guide to their development and use (2nd ed.). Oxford: Oxford University Press.
5. A Tennant SP McKenna P Hagell 2004 Application of Rasch analysis in the development and application of quality of life instruments Value in Health 7 Supplement 1 S22 S26 15367240 10.1111/j.1524-4733.2004.7s106.x (Pubitemid 39390826)
6. Brazier, J. E., Ratcliffe, J., Salomon, J., & Tsuchiya, A. (2007). Measuring and valuing health benefits for economic evaluation. Oxford: Oxford University Press.
7. Kind, P., Brooks, R., & Rabin, R. (Eds.). (2005). EQ-5D concepts and methods, a developmental history. Chapter 3. Berlin: Springer.
8. C Eiser R Morse 2001 Quality-of-life measures in chronic diseases of childhood Health Technology Assessment 5 4 1 156 11262421 1:STN:280: DC%2BD3M7mtlaktw%3D%3D
9. M Apajasalo H Sintonen C Holmberg, et al. 1996 Quality of life in early adolescence: A sixteen-dimensional health-related measure (16D) Quality of Life Research 5 205 211 8998489 10.1007/BF00434742 1:STN:280:DyaK2s7gsVOjtA%3D%3D (Pubitemid 26180668)
10. Health Utilities Index. http://healthutilities.biz/ Accessed 14/07/2008.
11. GA Miller 1956 The magical number seven, plus or minus two: Some limits on our capacity for processing information Psychological Review 63 2 81 97 13310704 10.1037/h0043158 1:STN:280:DyaG28%2FmtlSksw%3D%3D
12. AW Riley CB Forrest GW Rebok, et al. 2004 The child report form of the CHIP-child edition: reliability and validity Medical Care 42 3 221 231 15076821 10.1097/01.mlr.0000114910.46921.73
13. LS Matza AR Swensen EM Flood, et al. 2004 Assessment of health related quality of life in children: A review of conceptual, methodological, and regulatory issues Value in Health 7 1 79 92 14720133 10.1111/j.1524-4733.2004. 71273.x (Pubitemid 38186287)
14. Brazier, J. E., Deverill, M., Green, C., et al. (1999). A review of the use of health status measures in economic evaluation. Health Technology Assessment, 3(9), 1-164.
15. SD Keller JE Ware B Gandek, et al. 1998 Testing the equivalence of translations of widely used response choice labels: Results from the IQOLA project Journal of Clinical Epidemiology 51 11 933 944 9817110 10.1016/S0895-4356(98)00084-5 1:STN:280:DyaK1M%2Fjt1Sjsg%3D%3D (Pubitemid 28527148)
16. Bland, M., & Peacock, J. (2001). Methods based on rank order. In statistical questions in evidence-based medicine. Oxford: Oxford Medical Publications, Oxford University Press.
17. Argyrous, G. (2006). Rank-order tests for two or more samples. In statistics for research with a guide to SPSS (2nd ed.). London: Sage.
18. Hinton, P. R. (1995). Statistics explained. A guide for social science students. London: Routledge.
19. JR Landis GG Koch 1977 The measurement of observer agreement for categorical data Biometrics 33 159 174 843571 10.2307/2529310 1:STN:280:DyaE2s7jsFWqtA%3D%3D
20. MAPI research trust. Patient-Reported Outcome and Quality of Life Instruments Database. Available from: www.proqolid.org Accessed 13/04/2006.