Aspects relevant for functioning in patients with ankylosing spondylitis according to the health professionals: A Delphi study with the ICF as reference

Rheumatology

Volumn 48, Issue 8, 2009, Pages 997-1002

  Boonen, Annelies ^a   van Berkel, Monique ^b   Kirchberger, Inge ^c,d   Cieza, Alarcos ^c,d   Stucki, Gerald ^c,d   van der Heijde, Désirée ^a,e  

^a MAASTRICHT UNIVERSITY MEDICAL CENTER   (Netherlands)

^b MAASTRICHT UNIVERSITY   (Netherlands)

^c IMBK   (Germany)

^d UNIVERSITY OF MUNICH   (Germany)

^e LEIDEN UNIVERSITY MEDICAL CENTER   (Netherlands)

Author keywords

Ankylosing spondylitis; Attitude of health professionals; Disability evaluation; Outcome measures; Quality of life

Indexed keywords

ADULT; ANKYLOSING SPONDYLITIS; ARTICLE; COPING BEHAVIOR; DAILY LIFE ACTIVITY; DELPHI STUDY; ENVIRONMENTAL FACTOR; FEMALE; FUNCTIONAL ASSESSMENT; HEALTH PERSONNEL ATTITUDE; HUMAN; INTERNATIONAL CLASSIFICATION OF FUNCTIONING, DISABILITY AND HEALTH; MALE; NURSE; OCCUPATIONAL THERAPIST; OUTCOME ASSESSMENT; PHYSICIAN; PHYSIOTHERAPIST; PRIORITY JOURNAL; PSYCHOLOGIST; SOCIAL WORKER; CONFERENCE PAPER; CONSENSUS DEVELOPMENT; DISABILITY; GAIT; INFORMATION PROCESSING; JOINT CHARACTERISTICS AND FUNCTIONS; METHODOLOGY; PATHOPHYSIOLOGY; PERCEPTIVE THRESHOLD; RHEUMATOLOGY; SELF CARE;

ACTIVITIES OF DAILY LIVING; ATTITUDE OF HEALTH PERSONNEL; DATA COLLECTION; DELPHI TECHNIQUE; DISABILITY EVALUATION; GAIT; HUMANS; RANGE OF MOTION, ARTICULAR; RHEUMATOLOGY; SELF CARE; SENSORY THRESHOLDS; SPONDYLITIS, ANKYLOSING;

EID: 70149110020     PISSN: 14620324     EISSN: 14620332     Source Type: Journal    
DOI: 10.1093/rheumatology/kep150     Document Type: Article

References (16)

1. Khan MA. Ankylosing spondylitis: clinical features. In: Klippel JH, Dieppe PA, eds. Rheumatology. London: Mosby, 1998;6.16.1-9.
2. Khan MA. Update on spondyloarthropathies. Ann Intern Med 2002;136:896-907.
3. Sieper J, Braun J, Rudwaleit M, Boonen A, Zink A. Ankylosing spondylitis: an overview. Ann Rheum Dis 2002;61(Suppl. 3):iii8-18.
4. Chorus AMJ, Miedema HS, Boonen A, van der Linden Sj. Quality of life and work in patients with rheumatoid arthritis and ankylosing spondylitis of working age. Ann Rheum Dis 2003;62:1178-84.
5. Boonen A, Chorus A, Miedema H et al. Withdrawal from labour force due to work disability in patients with ankylosing spondylitis. Ann Rheum Dis 2001;60:1033-9.
6. Sigl T, Cieza A, van der Heijde D, Stucki G. ICF based comparison of disease specific instruments measuring physical functional ability in ankylosing spondylitis. Ann Rheum Dis 2005;64:1576-81.
7. Stucki G. International Classification of Functioning, Disability, and Health (ICF): a promising framework and classification for rehabilitation medicine. Am J Phys Med Rehabil 2005;84:733-40.
8. Cieza A, Ewert T, Ustun B, Chatterji S, Kostanjsek N, Stucki G. Development of ICF Core Sets for patients with chronic conditions. J Rehabil Med 2004;44(Suppl.):9-11.
9. Weigl M, Cieza A, Andersen C, Kollerits B, Amann E, Stucki G. Identification of relevant ICF categories in patients with chronic health conditions: a Delphi exercise. J Rehabil Med 2004;40(Suppl. 44):12-21.
10. Jones J, Hunter D. Qualitative research: consensus methods for medical and health services research. Br Med J 1995;311:376-80.
11. Cieza A, Brockow T, Ewert T et al. Linking health-status measurements to the International Classification of Functioning, Disability and Health. J Rehabil Med 2002;34:205-10.
12. Cieza A, Geyh S, Chatterji, Kostanjsek N, Ustun B, Stucki G. ICF linking rules: an update based on lessons learned. J Rehabil Med 2005;37:212-8.
13. Van Echteld I, Cieza A, Boonen A et al. Identification of the most common problems by patients with ankylosing spondylitis using the International Classification of Functioning Disability and Health. J Rheumatol 2006;33:2475-83.
14. Stamm T, Nell V, Mathis M et al. Concepts important to patients with psoriatic arthritis are not adequately covered by standard measures of functioning. Arthritis Rheum 2007;57:487-94.
15. Coenen M, Cieza A, Stamm T et al. Validation of the International Classification of Functioning Disability and Health Core Set for rheumatoid arthritis from the perspective of patients using focus groups. Arthritis Res Ther 2006;8:R84.
16. Boonen A, Braun J, van der Horst Bruinsma I et al. The ASAS/WHO ICF Core Sets for Ankylosing Spondylitis: how to classify the impact of AS on functioning and health. Ann Rheum Dis, Advance Access published March 11, 2009, doi:10.1136/ard.2008.104117.