Using quality of life to evaluate outcomes and measure effectiveness

Journal of Policy and Practice in Intellectual Disabilities

Volumn 6, Issue 1, 2009, Pages 40-51

  Kober, Ralph ^b   Eggleton, Ian R C ^a  

^a UNIVERSITY OF WAIKATO   (New Zealand)

^b MONASH UNIVERSITY   (Australia)

Author keywords

Employment; Family quality of life; Intellectual disabilities; Outcome evaluation; Performance measurement; Program evaluation; Quality of life

Indexed keywords

EID: 69949140282     PISSN: 17411122     EISSN: 17411130     Source Type: Journal    
DOI: 10.1111/j.1741-1130.2008.00194.x     Document Type: Article

References (50)

1. Baker, F., & Intagliata, J. (1982). Quality of life in the evaluation of community support systems. Evaluation and Program Planning, 5, 69-79.
2. Brown, I., Neikrug, S., & Brown, R. (2000). Family quality of life survey. Toronto, Canada: Centre for Health Promotion, University of Toronto.
3. Brown, I., Brown, R. I., Baum, N. T., Isaacs, B. J., Myerscough, T., Neikrug, S., et al. (2006). Family quality of life survey: Main caregivers of people with intellectual or developmental disabilities. Toronto, Canada: Surrey Place Centre.
4. Brown, R. I., MacAdam-Crisp, J., Wang, M., & Iarocci, G. (2006). Family quality of life when there is a child with a developmental disability. Journal of Policy and Practice in Intellectual Disabilities, 3, 238-245.
5. Brown, R. I., Schalock, R. L., & Brown, I. (2009). The concept of quality of life and its application to persons with intellectual disabilities and their families: Introduction and overview. Journal of Policy and Practice in Intellectual Disabilities, 6, 1-5.
6. Caballo, C., Crespo, M., Jenaro, C., Verdugo, M. A., & Martinez, J. L. (2005). Factor structure of the Schalock and Keith quality of life questionnaire (QoL-Q): Validation on Mexican and Spanish samples. Journal of Intellectual Disability Research, 49, 773-776.
7. Camp, R. C. (1989). Benchmarking: The search for industry best practices that lead to superior performance. Milwaukee, WI: Quality Press.
8. Crewe, N. M., & Athelstan, G. T. (1984). Functional assessment inventory manual. Menomonie: Stout Vocational Rehabilitation Institute, University of Wisconsin-Stout.
9. Cummins, R. A. (1995). On the trail of the gold standard for life satisfaction. Social Indicators Research, 35, 179-200.
10. Cummins, R. A. (1998). The second approximation to an international standard for life satisfaction. Social Indicators Research, 43, 307-334.
11. Cummins, R. A. (2000). Personal income and subjective well-being: A review. Journal of Happiness Studies, 1, 133-158.
12. Cummins, R. A., & Baxter, C. (1994). Choice of outcome measures in service evaluations for people with an intellectual disability. Evaluation Journal of Australasia, 6, 22-30.
13. DeStefano, L. (1990). Designing and implementing program evaluation. In F. Rusch (Ed.), Supported employment: Models, methods, & issues (pp. 229-246). Sycamore, IL: Sycamore Publishing Company.
14. Edgerton, R. B. (1990). Quality of life from a longitudinal research perspective. In R. L. Schalock (Ed.), Quality of life: Perspectives and issues (pp. 149-160). Washington, DC: American Association on Mental Retardation.
15. Eggleton, I. R. C. (1991). Performance measurement for public sector organisations. Perth, Australia: Decision Consulting Training and Research & New Zealand Society of Accountants.
16. Eggleton, I. R. C. (1994). A benchmarking methodology for the Australian water industry. Urban Water Research Association of Australia, Research Report No. 77, Melbourne, Victoria, Australia.
17. Eggleton, I. R. C., Robertson, S., Ryan, J., & Kober, R. (1999). The impact of employment on the quality of life of people with an intellectual disability. Journal of Vocational Rehabilitation, 13, 95-107.
18. Eggleton, I. R. C., Silalahi, S., Chong, V. K., & Kober, R. (2005). Antecedents and consequences of performance indicators in the public sector. Waikato, New Zealand: Waikato Management School, University of Waikato.
19. Gray, E. (2002). Ten years on: A longitudinal study of families of children with autism. Journal of Intellectual and Developmental Disability, 27, 215-222.
20. Hassall, R., Rose, J., & McDonald, J. (2005). Parenting stress in mothers of children with an intellectual disability: The effects of parental cognitions in relation to child characteristics and family support. Journal of Intellectual Disability Research, 49, 405-418.
21. Hastings, R. (2002). Parental stress and behaviour problems of children with developmental disability. Journal of Intellectual and Developmental Disability, 27, 149-160.
22. Hatton, C. (1998). Whose quality of life is it anyway? Some problems with the emerging quality of life consensus. Mental Retardation, 36, 104-115.
23. Hayes, A. (1996). Family life in a community context. In B. Stratford & P. Gunn (Eds.), Approaches to Down syndrome (pp. 367-404). London: Cassell.
24. James, T., & Brown, R. I. (1992). Prader-Willi syndrome: Home school and community. London: Chapman & Hall.
25. Keith, K. D. (2001). International quality of life: Current conceptual, measurement, and implementation issues. International Review of Research in Mental Retardation, 24, 49-74.
26. Keith, K. D., & Bonham, G. S. (2005). The use of quality of life data at the organization and systems level. Journal of Intellectual Disability Research, 49, 799-805.
27. Kober, R., & Eggleton, I. R. C. (2002). Factor stability of the Schalock and Keith (1993) quality of life questionnaire. Mental Retardation, 40, 157-165.
28. Kober, R., & Eggleton, I. R. C. (2005). The effects of different types of employment on quality of life. Journal of Intellectual Disability Research, 49, 756-760.
29. Kober, R., & Eggleton, I. R. C. (2006). Using quality of life to assess performance in the disability services sector. Applied Research in Quality of Life, 1, 63-77.
30. Kraus, M. W., Seltzer, M. M., & Jacobson, H. T. (2005). Adults with autism living at home or in non-family settings: Positive and negative aspects of residential status. Journal of Intellectual Disability Research, 49, 111-124.
31. Landesman, S. (1986). Quality of life and personal life satisfaction: Definition and measurement. Mental Retardation, 33, 141-143.
32. McVilly, K. R., & Rawlinson, R. B. (1998). Quality of life issues in the development and evaluation of services for people with intellectual disability. Journal of Intellectual and Developmental Disability, 23, 199-218.
33. Modell, S. (2005). Performance management in the public sector: Past experiences, current practices and future challenges. Australian Accounting Review, 37, 56-66.
34. Murrell, S. A., & Norris, F. H. (1983). Quality of life as the criterion for need assessment and community psychology. Journal of Community Psychology, 11, 88-97.
35. Rapley, M., & Lobley, J. (1995). Factor analysis of the Schalock and Keith (1993) quality of life questionnaire: A replication. Mental Handicap Research, 8, 194-202.
36. Schalock, R. L. (1999). Could Mother Teresa survive an outcomes-oriented world? Paper presented at the annual conference of the Australian Society for the Study of Intellectual Disabilities, Sydney, NSW, Australia.
37. Schalock, R. L. (2004). The concept of quality of life: What we know and do not know. Journal of Intellectual Disability Research, 48, 203-216.
38. Schalock, R. L. (in press). The measurement and use of quality of life related personal outcomes. In R. Kober (Ed.), Enhancing the quality of life of people with intellectual disability: From theory to practice. Dordrecht, The Netherlands: Springer.
39. Schalock, R. L., & Keith, K. D. (1993). Quality of life manual. Unpublished manuscript, Hastings College, Hastings, Nebraska.
40. Schalock, R. L., & Lilley, M. A. (1986). Placement from community-based mental retardation programs: How well do clients do after 8 to 10 years. American Journal of Mental Deficiency, 90, 669-676.
41. Schalock, R. L., Brown, I., Brown, R., Cummins, R. A., Felce, D., Matikka, L., et al. (2002). Conceptualization, measurement, and application of quality of life for persons with intellectual disabilities: Results of an international panel of experts. Mental Retardation, 40, 457-470.
42. Schalock, R. L., Gardner, J. F., & Bradley, V. J. (2007). Quality of life for persons with intellectual and other developmental disabilities: Applications across individuals, organizations, communities, and systems. Washington, DC: American Association on Intellectual and Developmental Disabilities.
43. Senge, P.M. (2006). The fifth discipline: The art and practice of the learning organization (revised ed.). New York: Doubleday.
44. Stufflebeam, D. L. (2002). CIPP evaluation model checklist. Retrieved April 7, 2008, from http://www.wmich.edu./evalctr/checklists
45. Stufflebeam, D. L. (2003). The CIPP Model for Evaluation. Paper presented at the Annual Conference of the Oregon Program Evaluators Network (OPEN), Portland, Oregon.
46. Stufflebeam, D. L., Gullickson, A. R., & Wingate, L. A. (2002). The spirit of Consuelo: An evaluation of Ke Aka Ho'ona. Kalamazoo, MI: Evaluation Center, Western Michigan University.
47. Summers, J. A., Poston, D. J., Turnbull, A. P., Marquis, J., Hoffman, L., Mannan, H., et al. (2005). Conceptualizing and measuring family quality of life. Journal of Intellectual Disability Research, 49, 777-783.
48. Taylor, S. J. (1994). In support of research on quality of life, but against QoL. In D. Goode (Ed.), Quality of life for persons with disabilities: International perspectives and issues (pp. 260-265). Cambridge, MA: Brookline.
49. Wehman, P., Kregel, J., Banks, P. D., Hill, M., & Moon, M. S. (1987). Sheltered vs. supported work programs: A second look. Rehabilitation Counseling Bulletin, 31, 42-53.
50. World Health Organization. (2001). International classification of functioning, disability and health. Geneva, Switzerland: Author.