Improving the care of people with dementia at the end of life: The role of hospice and the US experience

Dementia

Volumn 8, Issue 3, 2009, Pages 377-389

  Shega, Joe ^a   Tozer, Carla ^b  

^a UNIVERSITY OF CHICAGO   (United States)

^b NORTHWESTERN UNIVERSITY   (United States)

Author keywords

Cognitive impairment; Death dying; Dementia; End of life; Hospice

Indexed keywords

EID: 69949134123     PISSN: 14713012     EISSN: 17412684     Source Type: Journal    
DOI: 10.1177/1471301209104979     Document Type: Article

References (27)

1. Alzheimer's Association. (2008). What is Alzheimer's. Retrieved 21 October 2008, from http://www.alz.org/alzheimers_disease_what_is_alzheimers.asp
2. Alzheimer's Society. (2007). Dementia UK: The prevalence and cost of dementia. London: Alzheimer's Society (PSSRU).
3. Baer, W. M., & Hanson, L. C. (2000). Families perspective of the added value of hospice in the nursing home. Journal of the American Geriatrics Society, 48(8), 879-882.
4. Casarett, D. J., Takesaka, J., Karlawish, J., Hirschman, K., & Clark, C. (2002). How should clinicians discuss hospice for patients with dementia? Alzheimer Disease and Associated Disorders, 16(2), 116-122.
5. Christakis, N. A., & Escarce, J. J. (1996). Survival of medicare patients after enrollment in hospice programs. The New England Journal of Medicine, 335(3), 172-178.
6. Dubois, B., Feldman, H. H., Jacova, C., DeKosky, S., Barberger-Gateau, P., Cummings, J., et al. (2007). Research criteria for the diagnosis of Alzheimer's disease: Revising the NINCDS-ADRDA criteria. Lancet Neurology, 6(8), 734-746.
7. Evans, D. A., Scherr, P. A., Smith, L. A., Albert, M. S., & Funkenstein, H. (1990). The east Boston Alzheimer's disease registry. Aging, 2(3), 298-302.
8. Finucane, T. E., Christmas, C., & Travis, K. (1999). Tube feeding in patients with advanced dementia. Journal of the American Medical Association, 282, 1365-1370.
9. Gillick, M. R. (2000). Rethinking the role of tube feeding in patients with advanced dementia. The New England Journal of Medicine, 342(3), 206-210.
10. Hanrahan, P., & Luchins, D. (1995). Access to hospice programs in end-stage dementia: A national survey of hospice programs. Journal of American Geriatrics Society, 43, 56-59.
11. Leisi, H., Scherr, P., Bienias, J., Bennet, D., & Evans, D. (2003). Alzheimer's disease in the US population: Prevalence estimates using the 2000 census. Arch Neurology, 60(8), 1119-1122.
12. Luchins, D., & Hanrahan, P. (1993). What is appropriate health care for end-stage dementia. Journal of the American Geriatrics Society, 41(1), 25-30.
13. Luchins, D., Hanrahan, P., & Murphy, K. (1997). Criteria for enrolling dementia patients in hospice. Journal of American Geriatrics Society, 45(9), 1054-1059.
14. McCarthy, M., Addington-Hall, J., & Altmann, D. (1997). The experience of dying with dementia: A retrospective study. International Journal of Geriatric Psychiatry, 12, 404-409.
15. Miller, S., Mor, V., & Teno, J. (2003). Hospice enrollment and pain assessment and management in nursing homes. Journal of Pain and Symptom Management, 26(3), 791-799.
16. Mitchell, S. L. (2003). Financial incentives for placing feeding tubes in nursing home residents with advanced dementia. Journal of the American Geriatrics Society, 51(1), 129-131.
17. Mitchell, S. L., Kiely, D. K., & Hamel, M. (2004). Dying with advanced dementia in the nursing home. Archives of Internal Medicine, 164(3), 321-326.
18. Mumm, J., Hanson, L., Zimmerman, s., Sloane, P., & Mitchell, C. M. (2006). Is hospice associated with improved end of life care in nursing homes and assisted living facilities? Journal of American Geriatrics Society, 54, 490-495.
19. Nhpco. (2008). NHPCO facts and figures: Hospice care in America: National Hospice and Palliative Care Organization.
20. Pace, B., Burke, A., & Glass, R. (2006). Hospice care. Journal of the American Medical Assocation, 295(6), 715.
21. Sachs, G., Shega, J. W., & Cox-Hayley, D. (2004). Barriers to excellent end-of-life care for patients with dementia. Journal of General Internal Medicine, 19(10), 1057-1063.
22. Shega, J. W., Hougham, G. W., Stocking, C. B., Cox-Hayley, D., & Sachs, G. (2008). Patients dying with dementia: Experience at the end of life and impact of hospice care. Journal of Pain and Symptom Management, 35(5), 499-507.
23. Singer, P., Martin, D., & Kelner, M. (1999). Quality end of life care. Journal of the American Medical Assocation, 181(2), 163-168.
24. Stuart, B. (1999). The NHO medical guidelines for non-cancer disease and local medical review policy: Hospice access for patients with diseases other than cancer. The Hospice Journal, 14, 139-154.
25. Teno, J., Weitzen, S., Wetle, T., & Mor, V. (2001). Persistent pain in nursing homes. Journal of the American Medical Assocation, 285(6), 2081.
26. Volicer, L., Rheaume, Y., Brown, J., Fabiszewski, K., & Brady, R. (1986). Hospice approach to the treatment of patients with advanced dementia of the Alzheimer type. Journal of the American Medical Association, 256(16), 2210-2213.
27. Won, A., Lapane, K., Gambassi, G., Gernabei, R., Mor, V., & Lipsitz, L. (1999). Correlates and management of nonmalignant pain in the nursing home. Journal of the American Geriatrics Society, 47(8), 936-942.