Suffering and posttraumatic growth in women with systemic lupus erythematosus (SLE): A qualitative/quantitative case study

Psychosomatics

Volumn 50, Issue 4, 2009, Pages 362-374

  Wittmann, Lutz ^a   Sensky, Tom ^b   Meder, Luzia ^b   Michel, Beat ^b   Stoll, Thomas ^b   Büchi, Stefan ^b  

^a UNIVERSITY HOSPITAL ZURICH   (Switzerland)

^b NONE

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ARTICLE; ATTITUDE TO ILLNESS; AUTOIMMUNE DISEASE; CHRONIC DISEASE; CLINICAL ARTICLE; COPING BEHAVIOR; FEMALE; HUMAN; INTERVIEW BIAS; LIFE EXPECTANCY; MEDICAL LITERATURE; PERSONAL EXPERIENCE; PHENOMENOLOGY; POSTTRAUMATIC GROWTH; POSTTRAUMATIC PAIN; PSYCHOMETRY; QUALITATIVE RESEARCH; QUALITY OF LIFE; QUANTITATIVE STUDY; SEMI STRUCTURED INTERVIEW; SUFFERING; SWITZERLAND; SYSTEMIC LUPUS ERYTHEMATOSUS; WOMEN'S HEALTH;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; FEMALE; HUMANS; INTERVIEW, PSYCHOLOGICAL; LUPUS ERYTHEMATOSUS, SYSTEMIC; MIDDLE AGED; PSYCHIATRIC STATUS RATING SCALES; PSYCHOMETRICS; QUALITY OF LIFE; STRESS, PSYCHOLOGICAL;

EID: 69249124961     PISSN: 00333182     EISSN: None     Source Type: Journal    
DOI: 10.1176/appi.psy.50.4.362     Document Type: Article

References (43)

1. Charmaz K: Loss of self: a fundamental form of suffering in the chronically ill. Sociol Health Illn 1983; 5:168-195
2. Daneault S, Lussier V, Mongeau S, et al: The nature of suffering and its relief in the terminally ill: a qualitative study. J Palliat Care 2004; 20:7-11 (Pubitemid 38661874)
3. Morse M: Toward a praxis theory of suffering. Adv Nurs Sci 2001; 24:47-59
4. Cassell EJ: The nature of suffering and the goals of medicine. N Engl J Med 1982; 306:639-645
5. Travelbee J: Interpersonal aspects of nursing. Philadelphia, PA, Davis Company, 1976
6. Chapman CR, Gavrin J: Suffering and its relationship to pain. J Palliat Care 1993; 9:5-13
7. Cassell EJ: The Nature of Suffering and the Goals of Medicine, 2nd Edition. Oxford, UK, Oxford University Press, 2004
8. Davis CG, Nolen-Hoeksema S, Larson J: Making sense of loss and benefiting from the experience: two construals of meaning. J Pers Soc Psychol 1998; 75:561-574 (Pubitemid 128452417)
9. Frankl VE: Man's Search for Meaning. London, UK, Random House, 2004
10. Park CL, Cohen LH, Murch RL: Assessment and prediction of stress-related growth. J Pers 1996; 64:71-105
11. Tedeschi RG, Calhoun LG: The Posttraumatic Growth Inventory: measuring the positive legacy of trauma. J Trauma Stress 1996; 9:455-471 (Pubitemid 126710047)
12. Bellizzi KM, Blank TO: Predicting posttraumatic growth in breast cancer survivors. Health Psychol 2006; 25:47-56 (Pubitemid 43214381)
13. Milam J: Posttraumatic growth and HIV disease progression. J Consult Clin Psychol 2006; 74:817-827 (Pubitemid 44547476)
14. Maercker A, Langner R: Posttraumatic personal growth: validation of German versions of two questionnaires (Persönliche reifung durch belastungen und traumata: validierung zweier deutschsprachiger fragebogenversionen). Diagnostica 2001; 47:153-162
15. Büchi S, Morgeli H, Schnyder U, et al: Grief and posttraumatic growth in parents 2-6 years after the death of their extremely premature baby. Psychother Psychosom 2007; 76:106-114 (Pubitemid 46145639)
16. Znoj H: Bereavement and posttraumatic growth, in The Handbook of Posttraumatic Growth: Research and Practice. Edited by Calhoun R, Tedeschi L. Mahwah, NJ, Lawrence Erlbaum Associates, 2006, pp 176-196
17. Büchi S, Buddeberg C, Klaghofer R, et al: Preliminary validation of PRISM (Pictorial Representation of Illness and Self-Measure): a brief method to assess suffering. Psychother Psychosom 2002; 71:333-341 (Pubitemid 36151509)
18. Ward MM, Pyun E, Studenski S: Long-term survival in systemic lupus erythematosus: patient characteristics associated with poorer outcomes. Arthritis Rheum 1995; 38:274-283
19. Rosner S, Ginzler EM, Diamond HS, et al: A multicenter study of outcome in systemic lupus erythematosus, II: causes of death. Arthritis Rheum 1982; 25:612-617
20. Denburg SD, Carbotte RM, Denburg JA: Psychological aspects of systemic lupus erythematosus: cognitive function, mood, and self-report. J Rheumatol 1997; 24:998-1003 (Pubitemid 27223645)
21. Tan EM, Cohen AS, Fries JF, et al: The 1982 Revised Criteria for the Classification of Systemic Lupus Erythematosus. Arthritis Rheum 1982; 25:1271-1277 (Pubitemid 13221242)
22. Büchi S, Sensky T: PRISM: Pictorial Representation of Illness and Self Measure: a brief nonverbal measure of illness impact and therapeutic aid in psychosomatic medicine. Psychosomatics 1999; 40:314-320 (Pubitemid 29315952)
23. Büchi S, Sensky T, Sharpe L, et al: Graphic representation of illness: a novel method of measuring patients' perceptions of the impact of illness. Psychother Psychosom 1998; 67:222-225 (Pubitemid 28386466)
24. Antonovsky A: The structure and properties of the Sense of Coherence Scale. Soc Sci Med 1993; 36:725-733
25. Kosinski M, Keller SD, Hatoum HT, et al: The SF-36 Health Survey as a generic outcome measure in clinical trials of patients with osteoarthritis and rheumatoid arthritis: tests of data quality, scaling assumptions, and score reliability. Med Care 1999; 37:MS10-MS22
26. Gladman D, Ginzler E, Goldsmith C, et al: The development and initial validation of the Systemic Lupus International Collaborating Clinics/American College of Rheumatology Damage Index for Systemic Lupus Erythematosus. Arthritis Rheum 1996; 39:363-369 (Pubitemid 26085211)
27. Gladman DD, Urowitz MB, Goldsmith CH, et al: The reliability of the Systemic Lupus International Collaborating Clinics/American College of Rheumatology Damage Index in Patients With Systemic Lupus Erythematosus. Arthritis Rheum 1997; 40:809-813
28. Stoll T, Stucki G, Malik J, et al: Further validation of the BILAG Disease Activity Index in patients with systemic lupus erythematosus. Ann Rheum Dis 1996; 55:756-760 (Pubitemid 26354438)
29. Hay EM, Bacon PA, Gordon C, et al: The BILAG Index: a reliable and valid instrument for measuring clinical disease activity in systemic lupus erythematosus. Q J Med 1993; 86:447-458 (Pubitemid 23223653)
30. Mergenthaler E, Stinson C: Psychotherapy transcription standards. Psychother Res 1992; 2:125-142
31. Flick U: An Introduction to Qualitative Research. London, UK, Sage Publications, 2006
32. Mayring P: Qualitative Inhaltsanalyse. Grundlagen und Techniken. Weinheim, Beltz, 2002
33. Hahn BH: Systemic lupus erythematosus, in Harrison's Principles of Internal Medicine, 16th Edition. Edited by Kaspar LD, Braunwald E, Fauci AS, et al. New York, McGraw-Hill, 2007, pp 1960-1967
34. Leandro MJ, Edwards JC, Cambridge G, et al: An open study of B lymphocyte depletion in systemic lupus erythematosus. Arthritis Rheum 2002; 46:2673-2677 (Pubitemid 36118931)
35. Marks SD, Pilkington C, Woo P, et al: The use of the British Isles Lupus Assessment Group (BILAG) Index as a valid tool in assessing disease activity in childhood-onset systemic lupus erythematosus. Rheumatology 2004; 43:1186-1189 (Pubitemid 39232827)
36. Appenzeller S, Costallat LT: Clinical implications of migraine in systemic lupus erythematosus: relation to cumulative organ damage. Cephalalgia 2004; 24:1024-1030 (Pubitemid 39577568)
37. Mikdashi J, Handwerger B: Predictors of neuropsychiatric damage in systemic lupus erythematosus: data from The Maryland Lupus Cohort. Rheumatology 2004; 43:1555-1560 (Pubitemid 39642582)
38. Büchi S, Villiger P, Kauer Y, et al: PRISM (Pictorial Representation of Illness and Self Measure): a novel visual method to assess the global burden of illness in patients with systemic lupus erythematosus. Lupus 2000; 9:368-373 (Pubitemid 30389040)
39. Joseph S, Linley PA: Growth following adversity: theoretical perspectives and implications for clinical practice. Clin Psychol Rev 2006; 26:1041-1053 (Pubitemid 46110802)
40. O'Leary VE, Ickovics JR: Resilience and thriving in response to challenge: an opportunity for a paradigm shift in women's health. Womens Health 1995; 1:121-142
41. Hawkins AH: Reconstructing Illness: Studies in Pathography, 2nd Edition. West Lafayette, IN, Purdue University Press, 1999
42. Chapman CR, Gavrin J: Suffering: the contributions of persistent pain. Lancet 1999; 353:2233-2237
43. Emanuel L: Relief of suffering is the business of every discipline. Arch Intern Med 2006; 166:149-150