Tube feeding and quality of life in children with severe neurological impairment

Archives of Disease in Childhood

Volumn 94, Issue 9, 2009, Pages 668-673

  Mahant, S ^a,b,c,d   Friedman, J N ^a,b,c,d   Connolly, B ^c,d   Goia, C ^b,c   Macarthur, C ^a,b,c,d,e  

^a Division of Paediatric Medicine   (Canada)

^b Research Institute   (Canada)

^c HOSPITAL FOR SICK CHILDREN   (Canada)

^d UNIVERSITY OF TORONTO   (Canada)

^e University of Toronto   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

ANTICONVULSIVE AGENT;

ARTICLE; CHILD; CHILD HEALTH; CLINICAL ARTICLE; CLINICAL TRIAL; CONTROLLED STUDY; DISEASE COURSE; DISEASE SEVERITY; ENTEROSTOMY; FEMALE; GASTROESOPHAGEAL REFLUX; GASTROJEJUNOSTOMY; GASTROSTOMY; HUMAN; MALE; NEUROLOGIC DISEASE; NUTRITIONAL ASSESSMENT; PATIENT SATISFACTION; PERITONITIS; PRESCHOOL CHILD; PRIORITY JOURNAL; QUALITY OF LIFE; STRUCTURED QUESTIONNAIRE; TREATMENT OUTCOME; TUBE FEEDING; VISUAL ANALOG SCALE;

ADOLESCENT; CEREBRAL PALSY; CHILD; CHILD, PRESCHOOL; ENTERAL NUTRITION; FOLLOW-UP STUDIES; HEALTH STATUS; HUMANS; INFANT; INFANT, NEWBORN; NEURODEGENERATIVE DISEASES; NUTRITIONAL STATUS; PROSPECTIVE STUDIES; QUALITY OF LIFE; TREATMENT OUTCOME; WEIGHT GAIN;

EID: 69249085800     PISSN: 00039888     EISSN: 14682044     Source Type: Journal    
DOI: 10.1136/adc.2008.149542     Document Type: Article

References (17)

1. Nutrition Committee, Canadian Paediatric Society. Undernutrition in children with a neurodevelopmental disability. CMAJ 1994;151:753-759
2. Marchand V, Motil KJ, NASPGHAN Committee on Nutrition. Nutrition support for neurologically impaired children: a clinical report of the North American Society for Pediatric Gastroenterology, Hepatology, and Nutrition. J Pediatr Gastroenterol Nutr 2006;43:123-135 (Pubitemid 44022400)
3. Chait PG, Weinberg J, Connolly BL, et al. Retrograde percutaneous gastrojejunostomy in 505 children: a 4 1/2-year experience. Radiology 1996;201:691-695
4. Friedman JN, Ahmed S, Connolly B, et al. Complications associated with image-guided gastrostomy and gastrojejunostomy tubes in children. Pediatrics 2004;114:458-461 (Pubitemid 39006675)
5. Sleigh G, Brocklehurst P. Gastrostomy feeding in cerebral palsy: a systematic review. Arch Dis Child 2004;89:534-539 (Pubitemid 38715553)
6. Samson-Fang L, Butler C, O'Donnell M. Effects of gastrostomy feeding in children with cerebral palsy: an AACPDM evidence report. Dev Med Child Neurol 2003;45:415-426 (Pubitemid 36612108)
7. Sullivan PB, Juszczak E, Bachlet AM, et al. Gastrostomy tube feeding in children with cerebral palsy: a prospective, longitudinal study. Dev Med Child Neurol 2005;47:77-85. (Pubitemid 40246488)
8. Sullivan PB, Juszczak E, Bachlet AM, et al. Impact of gastrostomy tube feeding on the quality of life of caregivers of children with cerebral palsy. Dev Med Child Neurol 2004;46:796-800. (Pubitemid 39549652)
9. Palisano R, Rosenbaum P, Walter S, et al. Development and reliability of a system to classify gross motor function in children with cerebral palsy. Dev Med Child Neurol 1997;39:214-223 (Pubitemid 27226331)
10. Morris C, Galuppi BE, Rosenbaum PL. Reliability of family report for the Gross Motor Function Classification System. Dev Med Child Neurol 2004;46:455-460 (Pubitemid 38885843)
11. Fries J, Ramey D. "Arthritis specific" global health analog scales assess "generic" health related quality of life in patients with rheumatoid arthritis. J Rheumatol 1997;24:1697-1702
12. Feldman BM, Grundland B, McCullough L, et al. Distinction of quality of life, health related quality of life, and health status in children referred for rheumatologic care. J Rheumatol 2000;27:226-233 (Pubitemid 30058654)
13. Uziel Y, Laxer RM, Krafchik BR, et al. Children with morphea have normal self perception. J Pediatr 2000;137:727-730 (Pubitemid 30840135)
14. Patwardhan RV, Stong B, Bebin EM, et al. Efficacy of vagal nerve stimulation in children with medically refractory epilepsy. Neurosurgery 2000;47:1353-1358
15. Cheng AK, Rubin HR, Powe NR, et al. Cost-utility analysis of the cochlear implant in children. JAMA 2000;284:850-856 (Pubitemid 30643612)
16. Landgraf JM, Abetz L, Ware JE. Child Health Questionnaire (CHQ): a user's manual. 1st edn. Boston: The Health Institute, New England Medical Centre, 1996.
17. Frisancho RA. Triceps skin fold and upper arm muscle size norms for assessment of nutritional status. Am J Clin Nutr 1974;27:1052-1058