Caregiver perceptions of seizure severity in pediatric epilepsy

Epilepsia

Volumn 50, Issue 9, 2009, Pages 2102-2109

  Wagner, Janelle L ^a   Smith, Gigi M ^a,b   Ferguson, Pamela L ^b   Wannamaker, Braxton B ^a  

^a MEDICAL UNIVERSITY OF SOUTH CAROLINA   (United States)

^b MEDICAL UNIVERSITY OF SOUTH CAROLINA   (United States)

Author keywords

Caregiver; Pediatric epilepsy; Seizure severity

Indexed keywords

ADOLESCENT; ARTICLE; BEHAVIOR; CAREGIVER; CHILD; CHILDHOOD DISEASE; CLINICAL EVALUATION; CONVALESCENCE; DISEASE DURATION; DISEASE SEVERITY; EPILEPSY; FEMALE; HUMAN; JUVENILE; MAJOR CLINICAL STUDY; MALE; MEDICAL PRACTICE; OUTCOME ASSESSMENT; OUTPATIENT DEPARTMENT; PEDIATRICS; PRIORITY JOURNAL; RATING SCALE; SCHOOL CHILD; SEIZURE; SELF REPORT;

ADOLESCENT; ADULT; ATTITUDE TO HEALTH; CAREGIVERS; CHILD; EPILEPSY; FEMALE; HUMANS; INTERNATIONAL CLASSIFICATION OF DISEASES; LOGISTIC MODELS; MALE; PERSONALITY INVENTORY; QUESTIONNAIRES; SELF CARE; SELF EFFICACY; SEVERITY OF ILLNESS INDEX; SOCIAL SUPPORT;

EID: 69149107111     PISSN: 00139580     EISSN: 15281167     Source Type: Journal    
DOI: 10.1111/j.1528-1167.2009.02146.x     Document Type: Article

References (25)

1. Anderson DL, Spratt EG, Macias MM, Jellinek MS, Murphy JM, Pagano M, Griesemer DA, Holden KR, Barbosa E 1999) Use of the pediatric symptom checklist in the pediatric neurology population. Pediatr Neurol 20 : 116 120.
2. Austin JK, Huberty TJ, Huster GA, Dunn DW 1999) Does academic achievement in children with epilepsy change over time? Dev Med Child Neurol 41 : 473 479.
3. Austin JK, Dunn DW, Huster GA 2000) Childhood epilepsy and asthma: changes in behavior problems related to gender and change in condition severity. Epilepsia 41 : 615 623.
4. Austin JK, Dunn DW, Johnson CS, Perkins SM 2004) Behavioral issues involving children and adolescents with epilepsy and the impact of their families: recent research data. Epilepsy Behav 5 : S33 S41.
5. Austin JK, Carr DA, Hermann BP 2006a) Living well II: a review of progress since 2003. Epilepsy Behav 9 : 386 393.
6. Austin JK, Dunn DW, Perkins SM, Shen J 2006b) Youth with epilepsy: development of a model of children's attitudes toward their condition. Child Health Care 35 : 123 140.
7. Austin JK, Caplan R 2007) Behavioral and psychiatric comorbidities in pediatric epilepsy: toward an integrative model. Epilepsia 48 : 1639 1651.
8. Baker GA, Smith DF, Dewey M, Morrow J, Crawford PM, Chadwick DW 1991) The development of a seizure severity scale as an outcome measure in epilepsy. Epilepsy Res 8 : 245 251.
9. Caplin DA, Rao JK, Filloux F, Bale JF, Van Orman C 2006) Development of performance indicators for the primary care management of pediatric epilepsy: expert consensus recommendations based on the available evidence. Epilepsia 47 : 2011 2019.
10. Carpay JA, Vermuelen J, Stroink H, Brouwer OF, Peters ACB, Aldenkamp AP, van Donselaar CA, Arts WFM 1997) Seizure severity in children with epilepsy: a parent-completed scale compared with clinical data. Epilepsia 38 : 346 352.
11. Cramer JA, French J 2001) Quantitative assessment of seizure severity for clinical trials: a review of approaches to seizure components. Epilepsia 42 : 119 129.
12. Cramer JA, Baker GA, Jacoby A 2002) Development of a new seizure severity questionnaire: initial reliability and validity testing. Epilepsy Res 48 : 187 197.
13. Cramer JA, Blum D, Reed M, Fanning K, Epilepsy Impact Project Group 2003) The influence of comorbid depression on seizure severity. Epilepsia 44 : 1578 1584.
14. DiIorio C, Faherty B, Manteuffel B 1994) Epilepsy self-management: partial replication and extension. Res Nurs Health 17 : 167 174.
15. DiIorio C, Osborne Shafer P, Letz R, Henry T, Schomer DL, Yeager K, Project EASE Study Group 2003) The association of stigma with self-management and perceptions of health care among adults with epilepsy. Epilepsy Behav 4 : 259 267.
16. Dunn DW, Buelow JM, Austin JK, Shinnar S, Perkins SM 2004) Development of syndrome severity scores for pediatric epilepsy. Epilepsia 45 : 661 666.
17. Hirtz D, Berg A, Bettis D, Camfield C, Camfield P, Crumrine P, Gaillard WD, Schneider S, Shinnar S 2003) Practice parameter: treatment of the child with a first unprovoked seizure: report of the quality standards subcommittee of the American academy of neurology and the practice committee of the child neurology society. Neurology 60 : 166 175. (Pubitemid 36152003)
18. Huberty TJ, Austin JK, Huster GA, Dunn DW 2000) Relations of change in condition severity and school self-concept to change in achievement-related behavior in children with asthma or epilepsy. J Sch Psychol 38 : 259 276.
19. Jellinek MS, Murphy JM, Burns BJ 1986) Brief psychosocial screening in outpatient pediatric practice. J Pediatr 109 : 371 378.
20. O'Donoghue MF, Duncan JS, Sander JWAS 1996) The national hospital seizure severity scale: a further development of the Chalfont seizure severity scale. Epilepsia 37 : 563 571.
21. Ozuna J, Sierzant T, Bell T, Buelow J, Callana M, Lannon S, O'Dell C, Shafer P, Santilli N 1997) American Association of Neuroscience Nurses clinical guideline series: Seizure assessment. American Association of Neuroscience Nurses, Chicago.
22. Rapp S, Shumaker S, Smith T, Gibson P, Berzon R, Hoffman R 1998) Adaptation and evaluation of the Liverpool seizure severity scale and Liverpool quality of life battery for American epilepsy patients. Qual Life Res 7 : 467 477. (Pubitemid 28401741)
23. Räty LKA, Söderfeldt BA, Larsson G, Larsson BMW 2004) The relationship between illness severity, sociodemographic factors, general self-concept, and illness-specific attitude in Swedish adolescents with epilepsy. Seizure 13 : 375 382.
24. Rodenburg R, Meijer AM, Deković M, Aldenkamp AP 2005) Family factors and psychopathology in children with epilepsy: a literature review. Epilepsy Behav 6 : 488 503.
25. Vickrey BG, Berg AT, Sperling MR, Shinnar S, Langfitt JT, Bazil CW, Walczak TS, Pacia S, Kim S, Spencer SS 2000) Relationships between seizure severity and health-related quality of life in refractory localization-related epilepsy. Epilepsia 41 : 760 764.