Place of death of adolescents and young adults with cancer: First study in a French population

Palliative and Supportive Care

Volumn 7, Issue 1, 2009, Pages 27-35

  Montel, Sebastien ^a,b   Laurence, Valerie ^a   Copel, Laure ^a   Pacquement, Helene ^a   Flahault, Cecile ^a  

^a INSTITUT CURIE   (France)

^b UPO   (France)

Author keywords

Adolescents; Cancer; Family; Place of death; Young adults

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; ATTITUDE TO DEATH; BEREAVEMENT; FAMILY; FRANCE; HUMAN; HUMAN RELATION; MENTAL STRESS; NEOPLASM; PALLIATIVE THERAPY; PARENT; PSYCHOLOGICAL ASPECT; TERMINAL CARE;

ADOLESCENT; ATTITUDE TO DEATH; BEREAVEMENT; FAMILY; FRANCE; HUMANS; NEOPLASMS; PALLIATIVE CARE; PARENTS; PROFESSIONAL-FAMILY RELATIONS; STRESS, PSYCHOLOGICAL; TERMINAL CARE; YOUNG ADULT;

EID: 67749109984     PISSN: 14789515     EISSN: 14789523     Source Type: Journal    
DOI: 10.1017/S1478951509000054     Document Type: Article

References (23)

1. Ahlner-Elmqvist, M., Jordhoy, M.S., Jannert, M., et al. (2004). Place of death: Hospital-based advanced home care versus conventional care. A prospective study in palliative cancer care. Palliative Medicine, 18 583-593.
2. Annells, M. (1996). Grounded theory method: Philosophical perspectives, paradigm of inquiry and postmodernism. Qualitative Health Research, 6 379.
3. Bradshaw, G., Hinds, P.S., Lensing, S., et al. (2005). Cancer-related deaths in children and adolescents. Journal of Palliative Medicine, 8 86-95.
4. Bruera, E., Russell, N., Sweeney, C., et al. (2002). Place of death and its predictors for local patients registered at a comprehensive cancer center. Journal of Clinical Oncology, 20, 2127-2133.
5. Cantwell, P., Turco, S., Brenneis, C., et al. (2000). Predictors of home death in palliative care cancer patients. Journal of Palliative Care, 16, 23-28.
6. Charmaz, K. (1990). Discovering chronic illness: Using grounded theory. Social Science and Medicine, 30, 1161-1172.
7. Chevalier-Verjus, F. (1995). A propos des étapes du mourir quelques considérations sur l'origine de la souffrance psychique et des mécanismes de defense (Considerations about the origine of psychic suffering at the end of the life). In La dimension de la souffrance psychique chez le malade douloureux chronique (The dimension of psychic suffering in chronic pain patient), Ferragut, E. (ed), p. 83. Paris: Masson.
8. Choi, K.S., Chae, Y.M., Lee, S.W., et al. (2005). Factors influencing preferences for place of terminal care and death among cancer patients and their families in Korea. Supportive Care in Cancer, 13, 565-572.
9. Contro, N., Larson, J., Scofield, S., et al. (2002). Family perspective on the quality of pediatric palliative care. Archives of Pediatric and Adolescent Medicine, 156, 14-19.
10. Feudtner, C., DiGiuseppe, D.L., & Neff, J.M. (2003). Hospital care for children and young adults in the last year of life: A population-based study. BMC Medicine, 1, 3.
11. Feudtner,C., Silveira,M.J., & Christakis, D. (2002).Where do children with complex chronic conditions die? Patterns in Washington state, 1980-1998. Pediatrics, 109, 656-660.
12. Fukui, S., Fukui, N., & Kawagoe, H. (2004). Predictors of place of death for Japanese patients with advanced stage malignant disease in home care settings: A nationwide survey. Cancer, 101, 421-429.
13. Higginson, I.J. & Thompson, M. (2003). Children and young people who die from cancer: Epidemiology and place of death in England (1995-9). British Medical Journal, 327, 478-479.
14. Hinds, P.S., Drew, D., Oakes, L.L., et al. (2005). End-of-life care preferences of pediatric patients with cancer. Journal of Clinical Oncology, 23, 9146-9154.
15. Klopfenstein, K.J., Hutchison, C., Clark, C., et al. (2001). Variables influencing end-of-life care in children and adolescents with cancer. Journal of Pediatric Hematology and Oncology, 23, 481-486.
16. Kreicbergs, U., Valdimarsdottir, U., Onelöv, E., et al. (2004). Talking about death with children who have severe malignant disease. New England Journal of Medicine, 351, 1175-1186.
17. Mangan, P.A., Taylor, K.L., Yabroff, K.R., et al. (2003). Caregiving near the endof life:UNmetneedsand potential solutions. Palliative and Supportive Care, 1, 247-259.
18. Phipps, E.J. & Braitman, L.E. (2004). Family caregiver satisfaction with care at end of life: Report from the cultural variation study (CVAS). American Journal of Hospice and Palliative Medicine, 21, 340-342.
19. Rando, T.A. (1988). Anticipatory grief: The term is a misnomer but the phenomenon exists. Journal of Palliative Care, 4, 70-73.
20. Rice, P.L. & Ezzy, D. (1999). Qualitative Research Methods: A Health Focus. South Melbourne, Australia: Oxford University Press.
21. Teno, J.M., Clarridge, B.R., Casey, V., et al. (2004). Family perspectives on end-of-life care at the last place of care. JAMA, 291 1445-1446.
22. Vanden Eynden,B., Hermann, I., Schrijvers, D., et al. (2000). Factors determining the place of palliative care and death of cancer patients. Supportive Care in Cancer, 8, 59-64.
23. Young, B., Dixon-Woods, M.,Windridge, K.C., et al. (2003). Managing communication with young people who have a potentially life threatening chronic illness:QUalitative study of patients and parents. Bristish Medical Journal, 326, 305.