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Volumn 151, Issue 3, 2009, Pages 207-213

Outcomes of genetics services: Creating an inclusive definition and outcomes menu for public health and clinical genetics services

Author keywords

Genetic service; Genetics services; Outcome; Public health; Qquality

Indexed keywords

ARTICLE; CLINICAL GENETICS; FUNDING; GENETIC COUNSELING; GENETIC SERVICE; HEALTH CARE PERSONNEL; HEALTH CARE QUALITY; MEDICAL INFORMATION; MEDICAL SPECIALIST; NEWBORN SCREENING; PRIORITY JOURNAL; PROFESSIONAL KNOWLEDGE; PUBLIC HEALTH; UNITED STATES;

EID: 67651245407     PISSN: 15524868     EISSN: 15524876     Source Type: Journal    
DOI: 10.1002/ajmg.c.30218     Document Type: Article
Times cited : (12)

References (11)
  • 1
    • 67651216966 scopus 로고    scopus 로고
    • Association of State and Territorial Health Officers. Executive Summary, Framework for Public Health Genetics Policies and Practices in State and Local Public Health Agencies. 2001. http://www.astho.org/ templates/display-pub.php?u= JnB1Yl9p ZD00NTM%3D#executive. Last accessed 11-24-08.
    • Association of State and Territorial Health Officers. Executive Summary, Framework for Public Health Genetics Policies and Practices in State and Local Public Health Agencies. 2001. http://www.astho.org/ templates/display-pub.php?u= JnB1Yl9p ZD00NTM%3D#executive. Last accessed 11-24-08.
  • 2
    • 67651209792 scopus 로고    scopus 로고
    • Council of Regional Networks for Genetic Services (CORN). 1997. Guidelines for Clinical Genetic Services for the Public's Health. 1st edition. Atlanta, GA: CORN. http://genes-r-us.uthscsa.edu/resources/ pdf/geneticguidelns. pdf. Last accessed 11-16-08.
    • Council of Regional Networks for Genetic Services (CORN). 1997. Guidelines for Clinical Genetic Services for the Public's Health. 1st edition. Atlanta, GA: CORN. http://genes-r-us.uthscsa.edu/resources/ pdf/geneticguidelns. pdf. Last accessed 11-16-08.
  • 3
    • 67651209793 scopus 로고    scopus 로고
    • Department of Health, United Kingdom. 2007. Specialised Services National Definition Set: 20 Medical genetic services (all ages). http://www.dh.gov.uk/ en/Managingyour-organisation/ Commissioning/Commissioningspecialisedservices/ Specialisedservices-definition/ DH-4001694. 2007. Last accessed 10-30-08.
    • Department of Health, United Kingdom. 2007. Specialised Services National Definition Set: 20 Medical genetic services (all ages). http://www.dh.gov.uk/ en/Managingyour-organisation/ Commissioning/Commissioningspecialisedservices/ Specialisedservices-definition/ DH-4001694. 2007. Last accessed 10-30-08.
  • 5
    • 67651242996 scopus 로고    scopus 로고
    • Genetic Alliance. 2001. Mandate for Quality Genetic Services. http://www.geneticalliance. org/ws-display.asp?filter=principles&char =Q&s-Diseases. Last accessed 11-24-08.
    • Genetic Alliance. 2001. Mandate for Quality Genetic Services. http://www.geneticalliance. org/ws-display.asp?filter=principles&char =Q&s-Diseases. Last accessed 11-24-08.
  • 6
    • 0035731883 scopus 로고    scopus 로고
    • Integrating genetic services in public health - Guidance for State and Territorial Programs from the National Newborn Screening and Genetics Resource Center
    • Kaye CI, Laxova R, Livingston JE, Lloyd-Puryear MA, Mann M, McCabe ERB, Therrell BL. 2001. Integrating genetic services in public health - Guidance for State and Territorial Programs from the National Newborn Screening and Genetics Resource Center. Community Genet 4:175-196.
    • (2001) Community Genet , vol.4 , pp. 175-196
    • Kaye, C.I.1    Laxova, R.2    Livingston, J.E.3    Lloyd-Puryear, M.A.4    Mann, M.5    McCabe, E.R.B.6    Therrell, B.L.7
  • 7
    • 67651231596 scopus 로고    scopus 로고
    • Maternal and Child Health Bureau. 1989. Achieving and measuring success: A National Agenda for Children with Special Health Care Needs, Core Outcomes to be Achieved. Year? http://mchb.hrsa. gov/programs/specialneeds/measuresuccess. htm. Last accessed 11-24-08.
    • Maternal and Child Health Bureau. 1989. Achieving and measuring success: A National Agenda for Children with Special Health Care Needs, Core Outcomes to be Achieved. Year? http://mchb.hrsa. gov/programs/specialneeds/measuresuccess. htm. Last accessed 11-24-08.
  • 8
    • 56749153148 scopus 로고    scopus 로고
    • What process attributes of clinical genetics services could maximize patient benefits?
    • McAllister M, Payne K, MacLeod R, Nicholls S, Donnai D, Davies L. 2008. What process attributes of clinical genetics services could maximize patient benefits? Eur J Hum Genet 16:1467-1476.
    • (2008) Eur J Hum Genet , vol.16 , pp. 1467-1476
    • McAllister, M.1    Payne, K.2    MacLeod, R.3    Nicholls, S.4    Donnai, D.5    Davies, L.6
  • 9
    • 67651231597 scopus 로고    scopus 로고
    • National Newborn Screening and Genetics Resource Center. Serving the Family From Birth to the Medical Home. 2000. New-born screening: A blueprint for the future. Pediatrics 106:389-427.
    • National Newborn Screening and Genetics Resource Center. Serving the Family From Birth to the Medical Home. 2000. New-born screening: A blueprint for the future. Pediatrics 106:389-427.
  • 10
    • 44049091729 scopus 로고    scopus 로고
    • Outcome measurement in Clinical Genetics Services: A Systematic Review of Validated Measures
    • Payne K, Nicholls S, McAllister M, MacLeod R, Donnai D, Davies LM. 2008. Outcome measurement in Clinical Genetics Services: A Systematic Review of Validated Measures. Value Health 11:497-508.
    • (2008) Value Health , vol.11 , pp. 497-508
    • Payne, K.1    Nicholls, S.2    McAllister, M.3    MacLeod, R.4    Donnai, D.5    Davies, L.M.6
  • 11
    • 67651226334 scopus 로고    scopus 로고
    • Roberts RN, Behl DD. 2001. Measuring and Monitoring Community Based Systems of Care for CSHSN. Utah State University, Early Intervention Research Institute. http ://eiri .usu.edu/projects/ MandM/Accomplishments.pdf. Last accessed 11-24-08.
    • Roberts RN, Behl DD. 2001. Measuring and Monitoring Community Based Systems of Care for CSHSN. Utah State University, Early Intervention Research Institute. http ://eiri .usu.edu/projects/ MandM/Accomplishments.pdf. Last accessed 11-24-08.


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.