The quality of life of children and adolescents with X-linked agammaglobulinemia

Journal of Clinical Immunology

Volumn 29, Issue 4, 2009, Pages 501-507

  Soresina, Annarosa ^a   Nacinovich, Renata ^a   Bomba, Monica ^a   Cassani, Morena ^a   Molinaro, Anna ^a   Sciotto, Antonella ^b   Martino, Silvana ^c   Cardinale, Fabio ^d   De Mattia, Domenico ^d   Putti, Caterina ^e   DellePiane, R M ^h   Felici, Leonardo ^a   Parrinello, Giovanni ^a   Neri, Francesca ^g   Plebani, Alessandro ^a   Pierani, P ^h   DeMattia, D ^h   Martire, B ^h   Armenio, L ^h   Cardinale, F ^h   Dammacco, F ^h   Ranieri, G ^h   Masi, M ^h   Miniaci, A ^h   Pession, A ^h   Rondelli, R ^h   Plebani, A ^h   Notarangelo, L D ^h   Soresina, A ^h   Cao, ^h   Cossu, F ^h   Del Giacco, S ^h   Manconi, P ^h   Evangelista, I ^h   Magro, S ^h   Morgione, S ^h   Strisciuglio, P ^h   Anastasio, E ^h   Schilliro G ^h   Sciotto, A ^h   Paganelli, R ^h   Sticca, M ^h   Sperli D ^h   Carpino, L ^h   Bernini, G ^h   Azzari, C ^h   Maggi, E ^h   Romagnani, S ^h   Matucci, A ^h   Vultaggio, A ^h   Castagnola, E ^h   Gattorno, M ^h   Presta, G ^h   Civino, A ^h   Gambaretto, G ^h   Fasoli, S ^h   Salpietro, C ^h   Pietrogrande, M C ^h   Panisi, C ^h   Cambiaghi, G ^h   Pietrogrande, M ^h   Roncarolo, M G ^h   Aiuti, A ^h   Masera, G ^h   Biondi, A ^h   Sala, A ^h   Pignata, C ^h   Poggi, V ^h   Menna, G ^h   Di Nardo, R ^h   D'Apuzzo, A ^h   Pelliccia, A ^h   Correra, A ^h   Marone, G ^h   Spadaro, G ^h   Carli, M ^h   Zanesco, L ^h   Basso, G ^h   Putti, M C ^h   Semenzato, G ^h   Agostini, C ^h   Amato, G M ^h   Arico M ^h   Trizzino, A ^h   Izzi, G ^h   Bertolini, P ^h   Locatelli, F ^h   Zecca, M ^h   Rondini, G ^h   Marseglia, G L ^h   Maccario, R ^h   Bossi, G ^h   Felici, L ^h   Favre, C ^h   Consolini, R ^h   Vecchi, V ^h   Sacchini, P ^h   Rinaldi, G ^h   Ugazio, A G ^h   Rossi, P ^h   Livadiotti, S ^h   Cancrini, C ^h   Finocchi, A ^h   Stabile, A ^h   Duse, M ^h   Iacobini, M ^h   Quinti, I ^h   Moschese, V ^h   Cecere, F ^h   Morgese, G ^h   Acquaviva, A ^h   De Zan, G ^h   Strafella, S ^h   Tamaro, P ^h   Rabusin, M ^h   Tovo, P A ^h   Martino, S ^h   Nespoli, L ^h   Marinoni, M ^h   Porcellini, A ^h   Cazzola, G A ^h   more..

^a UNIVERSITY OF BRESCIA   (Italy)

^b UNIVERSITY OF CATANIA   (Italy)

^c UNIVERSITY OF TURIN   (Italy)

^d UNIVERSITY OF BARI   (Italy)

^e UNIVERSITY OF PADOVA   (Italy)

^f UNIVERSITY OF MILAN   (Italy)

^g UNIVERSITY OF MILANO BICOCCA   (Italy)

^h Università di Milano ^*

Author keywords

children; health related quality of life; parents; PedsQL 4.0 Generic Core Scale; X linked agammaglobulinemia

Indexed keywords

IMMUNOGLOBULIN;

ADOLESCENT; ADULT; ARTICLE; CHILD; CLINICAL ARTICLE; COMPARATIVE STUDY; CONTROL GROUP; CONTROLLED STUDY; DEMOGRAPHY; EMOTION; FEMALE; GENE MUTATION; HUMAN; ITALY; MALE; MISSENSE MUTATION; PARENT; PERCEPTION; PHYSICIAN; PRESCHOOL CHILD; PRIORITY JOURNAL; PSYCHOSOCIAL CARE; QUALITY OF LIFE; RHEUMATIC DISEASE; SCHOOL CHILD; SOCIAL INTERACTION; TREATMENT DURATION; X LINKED AGAMMAGLOBULINEMIA;

EID: 67651230100     PISSN: 02719142     EISSN: 15732592     Source Type: Journal    
DOI: 10.1007/s10875-008-9270-8     Document Type: Article

References (14)

1. JA Wilkenstein MC Marino HM Lederman SM Jones K Sullivan AW Burks ME Conley C Cunningham-Rundles HD Ochs 2006 X-linked agammaglobulinemia. Report on a United States Registry of 201 patients Medicine 85 193 202 (Pubitemid 44107177)
2. A Plebani A Soresina R Rondelli GM Amato C Azzari F Cardinale G Cazzola R Consolini D De Mattia G Dell'Erba M Duse M Fiorini S Martino B Martire M Masi V Monafo V Moschese LD Notarangelo P Orlandi P Panei A Pession MC Pietrogrande C Pignata I Quinti V Ragno P Rossi A Sciotto A Stabile 2002 Italian Group for XLA-AIEOP: clinical, immunological, and molecular analysis in a large cohort of patients with X-linked agammaglobulinemia: an Italian multicenter study Clin Immunol 104 221 230 (Pubitemid 35191097)
3. A Zashikhina B Hagglof 2007 Mental health in adolescents with chronic physical illness versus controls in Northern Russia Acta Paediatr 96 890 896 (Pubitemid 46846894)
4. Fayers PM, Machin D. Quality of life: assessment, analysis and interpretation. New York: Wiley; 2000.
5. JW Varni M Seid PS Kurtin 1999 Pediatric health-related quality of life measurement technology: a guide for health care decision makers J Clin Outcomes Manag 6 33 40
6. V Howard JM Greene S Pahwa JA Winkelstein JM Boyle M Kocak ME Conley 2006 The health status and quality of life of adults with X-linked agammaglobulinemia Clin Immunol 118 201 208 (Pubitemid 43199659)
7. K Zebracki TM Palermo R Hostoffer K Duff D Drotar 2004 Health-related quality of life of children with primary immunodeficiency disease: a comparison study Ann Allergy Asthma Immunol 93 557 561 (Pubitemid 39628278)
8. H Mozaffari Z Pourpak S Pourseyed M Moin A Farhoodi A Aghamohammadi M Movahedi M Gharagozlou N Entezari 2006 Health-related quality of life in primary immune deficient patients Iran J Allergy Asthma Immunol 5 23 27 (Pubitemid 44047681)
9. JW Varni M Seid T Smith-Knight T Burwinkle J Brown IS Szer 2002 The PedsQL in pediatric rheumatology. Reliability, validity and responsiveness of the Pediatric Quality of Life Inventory Generic Core Scale and Rheumatology Module Arthritis Rheum 46 714 725 (Pubitemid 34214252)
10. Hollingshead AB. Four factor index of social status. New Haven, CT: Yale University; 1975.
11. JW Varni M Seid PS Kurtin 2001 PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 Generic Core Scales in healthy and patient populations Med Care 39 800 812 (Pubitemid 33686263)
12. AC Huygen W Kuis G Sinnema 2000 Psychological, behavioural, and social adjustment in children and adolescents with juvenile chronic arthritis Ann Rheum Dis 59 4 276 282 (Pubitemid 30305569)
13. SA Clarke C Eiser 2004 The measurement of health-related quality of life (QOL) in paediatric clinical trials: a systematic review Health Qual Life Outcomes 22 2 66
14. J Cremeens C Eiser M Blades 2006 Factors influencing agreement between child self-report and parent proxy-reports on the Pediatric Quality of Life Inventory 4.0 (PedsQL) Generic Core Scales Health Qual Life Outcomes 30 4 58