A conceptual model of the experience of dyspnea and functional limitations in chronic obstructive pulmonary disease

Value in Health

Volumn 12, Issue 6, 2009, Pages 1018-1025

  Victorson, David E ^a   Anton, Susan ^b   Hamilton, Alan ^c   Yount, Susan ^a   Cella, David ^a  

^a NORTHWESTERN UNIVERSITY   (United States)

^b BOEHRINGER INGELHEIM PHARMACEUTICALS INC   (United States)

^c BOEHRINGER INGELHEIM CANADA LTD   (Canada)

Author keywords

COPD; Model; Patient reported outcomes; Qualitative research; Quality of life

Indexed keywords

ARTICLE; CHRONIC LUNG DISEASE; CHRONIC OBSTRUCTIVE LUNG DISEASE; CLINICAL ARTICLE; DAILY LIFE ACTIVITY; DISEASE SEVERITY; DISTRESS SYNDROME; DYSPNEA; EMOTION; ENVIRONMENTAL FACTOR; FEAR; FORCED EXPIRATORY VOLUME; FUNCTIONAL ASSESSMENT; HEALTH STATUS; HUMAN; LUNG FUNCTION; MODEL; OUTCOMES RESEARCH; PRIORITY JOURNAL; QUALITY OF LIFE; SELF REPORT; SYMPTOM;

ACTIVITIES OF DAILY LIVING; AGED; AGED, 80 AND OVER; DISABILITY EVALUATION; DYSPNEA; FEMALE; HUMANS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; MODELS, THEORETICAL; PSYCHOMETRICS; PULMONARY DISEASE, CHRONIC OBSTRUCTIVE; QUALITY OF LIFE; QUESTIONNAIRES; SICKNESS IMPACT PROFILE;

EID: 67651211948     PISSN: 10983015     EISSN: 15244733     Source Type: Journal    
DOI: 10.1111/j.1524-4733.2009.00547.x     Document Type: Article

References (34)

1. Mannino DM, Homa DM, Akinbami LJ, et al. Chronic obstructive pulmonary disease surveillance - United States, 1971-2000. Respir Care 2002 47 : 1184 99.
2. Ferrer M, Alonso J, Morera J, et al. Chronic obstructive pulmonary disease stage and health-related quality of life. The quality of life of chronic obstructive pulmonary disease study group. Ann Intern Med 1997 127 : 1072 9.
3. Edelman NH, Kaplan RM, Buist AS, et al. Chronic obstructive pulmonary disease. Task Force on Research and Education for the Prevention and Control of Respiratory Diseases. Chest 1992 102 (Suppl. S243 56.
4. Standards for the diagnosis and care of patients with chronic obstructive pulmonary disease (COPD) and asthma. This official statement of the American Thoracic Society was adopted by the ATS Board of Directors, November 1986. Am Rev Respir Dis 1987 136 : 225 44.
5. BTS guidelines for the management of chronic obstructive pulmonary disease. The COPD Guidelines Group of the Standards of Care Committee of the BTS. Thorax 1997 52 (Suppl. 5 S1 28.
6. Pauwels RA, Buist AS, Calverley PM, et al. Global strategy for the diagnosis, management, and prevention of chronic obstructive pulmonary disease. NHLBI/WHO Global Initiative for Chronic Obstructive Lung Disease (GOLD) Workshop summary. Am J Respir Crit Care Med 2001 163 : 1256 76.
7. Eltayara L, Becklake MR, Volta CA, Milic-Emili J. Relationship between chronic dyspnea and expiratory flow limitation in patients with chronic obstructive pulmonary disease. Am J Respir Crit Care Med 1996 154 : 1726 34.
8. Eakin EG, Sassi-Dambron DE, Ries AL, Kaplan RM. Reliability and validity of dyspnea measures in patients with obstructive lung disease. Int J Behav Med 1995 2 : 118 34.
9. Mahler DA. Mechanisms and measurement of dyspnea in chronic obstructive pulmonary disease. Proc Am Thorac Soc 2006 3 : 234 8.
10. Fletcher CM, Elmes PC, Fairbairn AS, Wood CH. The significance of respiratory symptoms and the diagnosis of chronic bronchitis in a working population. Br Med J 1959 2 : 257 66.
11. Aitken RC. Measurement of feelings using visual analogue scales. Proc R Soc Med 1969 62 : 989 93.
12. Borg GA. Psychophysical bases of perceived exertion. Med Sci Sports Exerc 1982 14 : 377 81.
13. Jones P, Lareau S, Mahler DA. Measuring the effects of COPD on the patient. Respir Med 2005 99 (Suppl. B S11 18.
14. Earp JA, Ennett ST. Conceptual models for health education research and practice. Health Educ Res 1991 6 : 163 71.
15. Guba E, Lincoln Y. Naturalist Inquiry. London : Sage, 1985.
16. Walker JS, Koroloff N. Grounded theory and backward mapping: exploring the implementation context for wraparound. J Behav Health Serv Res 2007 34 : 443 58.
17. Elliott N, Lazenbatt A. How to recognise a "quality" grounded theory research study. Aust J Adv Nurs 2005 22 : 48 52.
18. Zemke R, Kramlinger T. Figuring It Out. Reading, MA : Addison Wesley, 1985.
19. Basch CE. Focus group interview: an underutilized research technique. Health Educ Q 1987 14 : 411 48.
20. Basch CE, DeCicco IM, Malfetti JL. A focus group study on decision processes of young drivers: Reasons that may support a decision to drink and drive. Health 1989 16 : 389 96.
21. Willis GB. Cognitive Interviewing: A "How To" Guide. 1999. Short course presented at the meeting of the American Statistical Association.
22. Bowen GA. Naturalistic inquiry and the saturation concept: a research note. Qual Res 2008 8 : 137 52.
23. Guest G, Bunce A, Johnson L. How many interviews are enough? An experiment with data saturation and variability. Field Methods 2006 18 : 59 82.
24. Carrieri VK, Janson-Bjerklie S, Jacobs S. The sensation of dyspnea: a review. Heart Lung 1984 13 : 436 47.
25. Gift AG. Dyspnea. Nurs Clin North Am 1990 25 : 955 65.
26. McCord M, Cronin-Stubbs D. Operationalizing dyspnea: focus on measurement. Heart Lung 1992 21 : 167 79.
27. Steele B, Shaver J. The dyspnea experience: nociceptive properties and a model for research and practice. ANS Adv Nurs Sci 1992 15 : 64 76.
28. Campbell ML. Managing terminal dyspnea: caring for the patient who refuses intubation or ventilation. Dimens Crit Care Nurs 1996 15 : 4 12.
29. Weaver TE, Richmond TS, Narsavage GL. An explanatory model of functional status in chronic obstructive pulmonary disease. Nurs Res 1997 46 : 26 31.
30. McCarley C. A model of chronic dyspnea. Image J Nurs Sch 1999 31 : 231 6.
31. Yeh ML, Chen HH, Liao YC, Liao WY. Testing the functional status model in patients with chronic obstructive pulmonary disease. J Adv Nurs 2004 48 : 342 50.
32. DeWalt DA, Rothrock N, Yount S, Stone AA. Evaluation of item candidates: the PROMIS qualitative item review. Med Care 2007 45 (Suppl. S12 21.
33. Christodoulou C, Junghaenel DU, DeWalt DA, et al. Cognitive interviewing in the evaluation of fatigue items: results from the patient-reported outcomes measurement information system (PROMIS). Qual Life Res 2008 17 : 1239 46.
34. Wilson IB, Cleary PD. Linking clinical variables with health-related quality of life. A conceptual model of patient outcomes. JAMA 1995 273 : 59 65.