Policy statements and practice guidelines for medical end-of-life decisions in Dutch health care institutions: Developments in the past decade

Health Policy

Volumn 92, Issue 1, 2009, Pages 79-88

  Pasman, H Roeline W ^a   Wolf, Johanna E Hanssen de ^a   Hesselink, Berniek A M ^a   van der Heide, Agnes ^b   van der Wal, Gerrit ^a   van der Maas, Paul J ^b   Onwuteaka Philipsen, Bregje D ^a  

^a VU UNIVERSITY MEDICAL CENTER   (Netherlands)

^b ERASMUS MEDICAL CENTER   (Netherlands)

Author keywords

End of life care; End of life decisions; Institutional policy; Practice guidelines; Quality of care

Indexed keywords

ARTICLE; ASSISTED SUICIDE; CONTROLLED STUDY; EUTHANASIA; HEALTH CARE QUALITY; HOSPITAL POLICY; NETHERLANDS; PALLIATIVE THERAPY; PRACTICE GUIDELINE; PROFESSIONAL STANDARD; RELIGION; RESUSCITATION; SEDATION; TERMINAL CARE; TREATMENT WITHDRAWAL;

HEALTH FACILITIES; HUMANS; NETHERLANDS; ORGANIZATIONAL POLICY; PRACTICE GUIDELINES AS TOPIC; QUESTIONNAIRES; RESUSCITATION ORDERS; SUICIDE, ASSISTED;

EID: 67651061885     PISSN: 01688510     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.healthpol.2009.02.008     Document Type: Article

References (33)

1. Grimshaw J.M., and Russell I.T. Effect of clinical guidelines on medical practice: a systematic review of rigorous evaluations. Lancet 342 8883 (1993) 1317-1322
2. Woolf S.H., Grol R., Hutchinson A., Eccles M., and Grimshaw J. Clinical guidelines: potential benefits, limitations, and harms of clinical guidelines. British Medical Journal 318 7182 (1999) 527-530
3. Van Bruchem van der Scheur G.G., Van der Arend A.J.G., Huijer Abu-Saad H., Spreeuwenberg C., Van Wijmen F.C.B., and Ter Meulen R.H.J. The role of nurses in euthanasia and physician-assisted suicide in The Netherlands. Journal of Medical Ethics 34 (2008) 254-258
4. van Bruchem van der Scheur G.G., van der Arend A.J.G., Huijer Abu-Saad H., van Wijmen F.C.B., Spreeuwenberg C., and ter Meulen R.H.J. Alleviation of pain and symptoms with a life-shortening intention. Nursing Ethics 15 5 (2008) 682-695
5. Bilsen J., Vander Stichele R., Broeckaert B., Mortier F., and Deliens L. Changes in medical end-of-life practices during the legalization process of euthanasia in Belgium. Social Science and Medicine 65 (2007) 803-808
6. AVVV, NU'91, KNMG. Guidelines to support the collaboration of physicians, nurses and caretakers in euthanasia procedures. 4th edition Utrecht: AVVV, NU'91, KNMG, 2006 [in Dutch].
7. Committee on National Guideline for Palliative Sedation, Royal Dutch Medical Association, Guideline for palliative sedation Available from, KNMG, Utrecht (2005). Available at: http://knmg.artsennet.nl/uri/?uri=AMGATE_6059_100_TICH_R193567276369746 (10-02-2009).
8. Committee on National Guideline for Palliative Sedation, Royal Dutch Medical Association, Guideline for palliative sedation Available from, KNMG, Utrecht (2009) [in Dutch]. Available at: http://knmg.artsennet.nl/uri/?uri=AMGATE_6059_100_TICH_R245476833788002 (10-02-2009).
9. Dutch Association of Nursing Home Physicians (NVVA). Guidelines for resuscitation. Utrecht, 2000 [in Dutch].
10. State Committee on Euthanasia. Report on euthanasia. The Hague, The Netherlands: Government Printing Office, 1985 [in Dutch].
11. Board of the Royal Dutch Medical Association. Vision on Euthanasia. Utrecht, 2003 [in Dutch].
12. Haverkate I., and van der Wal G. Policies on medical decisions concerning the end of life in Dutch health care institutions. The Journal of the American Medical Association 275 6 (1996) 435-439
13. Haverkate I., and van der Wal G. Policies on assisted suicide in Dutch psychiatric facilities. Psychiatric Services 49 1 (1998) 98-100
14. Termination of Life on Request and Assisted Suicide (Review Procedures) Act, April 2002.
15. van der Heide A., Onwuteaka-Philipsen B.D., Rurup M.L., Buiting H.M., van Delden J.J.M., Hanssen-de Wolf H.H., et al. End-of-life practices in the Netherlands under the Euthanasia Act. New England Journal in Medicine 356 19 (2007) 1957-1965
16. Lemiengre J., de Casterlé B.D., van Craen K., Schotmans P., and Gastmans C. Institutional ethics policies on medical end-of-life decisions: A literature review. Health Policy 83 2-3 (2007) 131-143
17. Lemiengre J., Dierckx de Casterlé B.D., Verbeke G., Guisson C., Schotmans P., and Gastmans C. Ethics policies on euthanasia in hospitals-a survey in Flanders (Belgium). Health Policy 84 2-3 (2007) 170-180
18. Gastmans C., Lemiengre J., van der Wal G., Schotmans P., and Dierckx de Casterlé B. Prevalence and content of written ethics policies on euthanasia in Catholic healthcare institutions in Belgium (Flanders). Health Policy 76 2 (2006) 169-178
19. Rurup M.L., Borgsteede S.D., van der Heide A., van der Maas P.J., and Onwuteaka-Philipsen B.D. Trends in the use of opioids at the end of life and the expected effects on hastening death. The Journal of Pain and Symptom Management 37 2 (2009) 144-155
20. van Delden J.J.M., Löfmark R., Deliens L., Bosshard G., Norup M., Cecioni R., et al. EURELD Consortium. Do-not-resuscitate decisions in six European countries. Critical Care Medicine 34 6 (2006) 1686-1690
21. Hasselaar G.J., Reuzel R.P.B., van den Muijsenbergh M.E.T.C., Koopmans R.T.C.M., Leget C.J.W., Crul B.J.P., and Vissers K.C.P. Dealing with delicate issues in continuous deep sedation. Varying practices among Dutch medical specialists, general practitioners, and nursing home physicians. Archives of Internal Medicine 168 5 (2008) 537-543
22. Reuzel R.P.B., Hasselaar G.J., Vissers K.C.P., van der Wilt G.J., Groenewoud J.M.M., and Crul B.J.P. Inappropriateness of using opioids for end-stage palliative sedation: a Dutch study. Palliative Medicine 22 (2008) 641-646
23. Rietjens J., van Delden J., Onwuteaka-Philipsen B., Buiting H., van der Maas P., and van der Heide A. Continuous deep sedation for patients nearing death in the Netherlands: descriptive study. British Medical Journal 336 7648 (2008 Apr 12) 810-813
24. Miccinesi G., Rietjens J.A., Deliens L., Paci E., Bosshard G., Nilstun T., Norup M., and van der Wal G. EURELD Consortium. Continuous deep sedations: physicians' experiences in six European countries. Journal of Pain Symptom Management 31 2 (2006) 122-129
25. van Thiel G.J., van Delden J.J., de Haan K., and Huibers A.K. Retrospective study of doctors' "end of life decisions" in caring for mentally handicapped people in institutions in The Netherlands. British Medical Journal 315 7100 (1997) 88-91
26. Netherlands' Society of Physicians for People with Intellectual Disabilities (NVAVG). Medical end-of-life decisions concerning the mentally handicapped 2007 [in Dutch]. Available at: http://www.nvavg.nl/bestanden/nvavg-standaarden/2008-januari-Richtlijn-medische-beslissingen-levenseinde.pdf (10-02-2009).
27. van Dartel JN. Guidelines on (non-) resuscitation policies in the care for the mentally handicapped Utrecht: Vereniging Gehandicaptenzorg Nederland 2007 [in Dutch].
28. Groenewoud J.H., van der Maas P.J., van der Wal G., Hengeveld M.W., Tholen A.J., Schudel W.J., et al. Physician-assisted death in psychiatric practice in the Netherlands. New England Journal of Medicine 336 25 (1997) 1795-1801
29. Tholen A.J., Berghmans R.L., Legemaate J., Nolen W.A., Huisman J., and Scherders M.J. Physician-assisted suicide for a patient with a psychiatric disorder: guidelines for psychiatrists. Dutch Association of Psychiatry. Ned Tijdschr Geneeskd 143 17 (1999) 905-909 [In Dutch]
30. Kwaliteitsinstituut voor de Gezondheidszorg CBO. Evidence-based development of guidelines. Guidelines for working groups 2007 [in Dutch].
31. Shekelle P., Eccles M.P., Grimshaw J.M., and Woolf S.H. When should clinical guidelines be updated?. British Medical Journal 323 7305 (2001) 155-157
32. Shekelle P.G., Woolf S.H., Eccles M., and Grimshaw J. Clinical guidelines: developing guidelines. British Medical Journal 318 7183 (1999) 593-596
33. Winkler E.C. The ethics of policy writing: how should hospitals deal with moral disagreement about controversial medical practices?. Journal of Medical Ethics 31 10 (2005) 559-566