Health related quality of life in patients with neuroendocrine tumors compared with the general Norwegian population

Quality of Life Research

Volumn 18, Issue 6, 2009, Pages 719-726

  Haugland, Trude ^a   Vatn, Morten H ^a,c   Veenstra, Marijke ^d   Wahl, Astrid Klopstad ^e   Natvig, Gerd Karin ^b  

^a OSLO UNIVERSITY HOSPITAL   (Norway)

^b UNIVERSITY OF BERGEN   (Norway)

^c UNIVERSITY OF OSLO   (Norway)

^d NORWEGIAN SOCIAL RESEARCH NOVA   (Norway)

^e UNIVERSITY OF OSLO   (Norway)

Author keywords

Disease specific characteristics; Health related quality of life; NET patients; SF 36; Sociodemographic

Indexed keywords

ADULT; AGED; ARTICLE; CONTROLLED STUDY; FEMALE; HEALTH CARE QUALITY; HEALTH SURVEY; HUMAN; MAJOR CLINICAL STUDY; MALE; NEUROENDOCRINE TUMOR; NORWAY; POPULATION RESEARCH; PRIORITY JOURNAL; SHORT FORM 36; STUDENT T TEST;

ADULT; AGED; AGED, 80 AND OVER; CARCINOMA, NEUROENDOCRINE; FEMALE; HEALTH STATUS; HUMANS; MALE; MIDDLE AGED; NORWAY; QUALITY OF LIFE; QUESTIONNAIRES;

EID: 67650759467     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11136-009-9487-x     Document Type: Article

References (29)

1. K Oberg 2003 Diagnosis and treatment of carcinoid tumors Expert Review of Anticancer Therapy 3 6 863 877 10.1586/14737140.3.6.863 Review 134 refs (Pubitemid 37540543)
2. K Oberg 1994 Endocrine tumors of the gastrointestinal tract: Systemic treatment Anti-Cancer Drugs 5 5 503 519 10.1097/00001813-199410000-00001 Review 93 refs
3. CD Knox ID Feurer PE Wise LW Lamps WJ Kelly RS Chari 2004 Survival and functional quality of life after resection for hepatic carcinoid metastasis Journal of Gastrointestinal Surgery 8 6 653 659 10.1016/j.gassur.2004.04.003
4. I Norheim K Oberg E Theodorsson-Norheim PG Lindgren G Lundqvist A Magnusson 1987 Malignant carcinoid tumors. An analysis of 103 patients with regard to tumor localization, hormone production, and survival Annals of Surgery 206 2 115 125 (Pubitemid 17104952)
5. Ware, J. E., Jr., Kosinski, M., & Keller, S. D. (1994). SF-36 Physical and mental health summary scales: A user's manual (5th ed.). Boston, MA: Health Assessment Lab
6. G Larsson L Von Essen PO Sjoden 1998 Quality of life in patients with endocrine tumors of the gastrointestinal tract: Patient and staff perceptions Cancer Nursing 21 6 411 420 10.1097/00002820-199812000-00005 (Pubitemid 28545851)
7. G Larsson PV Widmark C Lampic L von Essen PO Sjoden 1998 Cancer patient and staff ratings of the importance of caring behaviors and their relations to patient anxiety and depression Journal of Advanced Nursing 27 4 855 864 10.1046/j.1365-2648.1998.00583.x (Pubitemid 128452666)
8. JK Ramage AH Davies 2003 Measurement of quality of life in carcinoid/neuroendocrine tumours Endocrine-Related Cancer 10 4 483 486 10.1677/erc.0.0100483
9. G Larsson PO Sjoden K Oberg B Eriksson L Von Essen 2001 Health-related quality of life, anxiety and depression in patients with midgut carcinoid tumours Acta Oncologica 40 7 825 831 10.1080/02841860152703445
10. C Frojd G Larsson C Lampic L von Essen 2007 Health related quality of life and psychosocial function among patients with carcinoid tumours. A longitudinal, prospective, and comparative study Health and Quality of Life Outcomes 5 18 10.1186/1477-7525-5-18
11. G Berglund A Liden MG Hansson K Oberg PO Sjoden K Nordin 2003 Quality of life in patients with multiple endocrine neoplasia type 1 (MEN 1) Familial Cancer 2 1 27 33 10.1023/A:1023252107120 Erratum appears in Fam Cancer. 2003;2(2):151
12. G Larsson PO Sjoden K Oberg L von Essen 1999 Importance-satisfaction discrepancies are associated with health-related quality of life in five-year survivors of endocrine gastrointestinal tumours Annals of Oncology 10 11 1321 1327 10.1023/A:1008360718646
13. MJ Hjermstad PM Fayers K Bjordal S Kaasa 1998 Using reference data on quality of life-the importance of adjusting for age and gender, exemplified by the EORTC QLQ-C30 (+3) European Journal of Cancer 34 9 1381 1389 10.1016/S0959-8049(98)00136-1
14. CA McHorney JE Ware Jr JF Lu CD Sherbourne 1994 The MOS 36-item short-form health survey (SF-36): III. Tests of data quality, scaling assumptions, and reliability across diverse patient groups Medical Care 32 1 40 66 10.1097/00005650-199401000-00004
15. Norwegian Social Sience data Services (NSD). (2003). SF-36 data from the General population (n = 5152). Norway, The Norwegian Social Science Data Services, The Norwegian Survey Archive ( www.nsd-uib.no/english/2006 ).
16. SM Albert L Frank L Kleinman NK Leidy M Legro R Shikiar 1998 Defining and measuring quality of life in medicine. JAMA Journal of the American Medical Association 279 6 429 431 10.1001/jama.279.6.429
17. AHG Davies G Larsson J Ardill E Friend L Jones M Falconi 2006 Development of a disease-specific quality of life questionnaire module for patients with gastrointestinal neuroendocrine tumours European Journal of Cancer 42 4 477 484 10.1016/j.ejca.2005.10.025
18. JE Ware Jr CD Sherbourne 1992 The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection Medical Care 30 6 473 483 10.1097/00005650-199206000-00002
19. JH Loge S Kaasa 1998 Short form 36 (SF-36) health survey: Normative data from the general Norwegian population Scandinavian Journal of Social Medicine 26 4 250 258 (Pubitemid 128671032)
20. Cohen, J. (1988). Statistical power analysis for the behavioral sciences (2nd ed.). New York: Academic Press.
21. MT King 1996 The interpretation of scores from the EORTC quality of life questionnaire QLQ-C30 Quality of Life Research 5 6 555 567 10.1007/BF00439229 Review 35 refs
22. F Mols NK Aaronson AJ Vingerhoets JW Coebergh G Vreugdenhil ML Lybeert 2007 Quality of life among long-term non-Hodgkin lymphoma survivors: A population-based study Cancer 109 8 1659 1667 10.1002/cncr.22581
23. S Boini S Briancon F Guillemin P Galan S Hercberg 2004 Impact of cancer occurrence on health-related quality of life: A longitudinal pre-post assessment Health and Quality of Life Outcomes 2 4 10.1186/1477-7525-2-4
24. E Hammerlid C Taft 2001 Health-related quality of life in long-term head and neck cancer survivors: A comparison with general population norms British Journal of Cancer 84 2 149 156 10.1054/bjoc.2000.1576
25. S Saegrov AG Halding 2004 What is it like living with the diagnosis of cancer? European Journal of Cancer Care 13 2 145 153 10.1111/j.1365-2354.2004. 00442.x
26. LG Tan L Nan J Thumboo F Sundram LK Tan 2007 Health-related quality of life in thyroid cancer survivors The Laryngoscope 117 3 507 510 10.1097/MLG.0b013e31802e3739
27. K Oberg L Astrup B Eriksson SE Falkmer UG Falkmer J Gustafsen 2004 Guidelines for the management of gastroenteropancreatic neuroendocrine tumours (including bronchopulmonary and thymic neoplasms). Part II-specific NE tumour types Acta Oncologica 43 7 626 636 10.1080/02841860410018584
28. K Oberg L Astrup B Eriksson SE Falkmer UG Falkmer J Gustafsen 2004 Guidelines for the management of gastroenteropancreatic neuroendocrine tumours (including bronchopulmonary and thymic neoplasms). Part I-general overview Acta Oncologica 43 7 617 625 10.1080/02841860410018575
29. K Oberg B Eriksson 1989 Medical treatment of neuroendocrine gut and pancreatic tumors Acta Oncologica 28 3 425 431 10.3109/02841868909111217 Review 32 refs (Pubitemid 19166905)