Patients attending tertiary referral urology clinics: Willingness to participate in tissue banking

BJU International

Volumn 104, Issue 2, 2009, Pages 209-213

  Fitzpatrick, Patricia E ^a,b   McKenzie, Kenneth D ^b   Beasley, Avril ^c   Sheehan, John D ^d  

^a School of Public Health and Population Science   (Ireland)

^b UNIVERSITY COLLEGE DUBLIN   (Ireland)

^c Departments of Urology   (United States)

^d MATER MISERICORDIAE UNIVERSITY HOSPITAL   (Ireland)

Author keywords

Attitudes; Prostate cancer; Tissue banking

Indexed keywords

ADULT; AGED; ARTICLE; CANCER GENETICS; CANCER RESEARCH; DONOR; HEALTH CARE FACILITY; HUMAN; HUMAN TISSUE; MAJOR CLINICAL STUDY; MALE; PATIENT ATTITUDE; PRIORITY JOURNAL; PROSTATE CANCER; TISSUE PRESERVATION;

ADULT; AGE FACTORS; AGED; ATTITUDE TO HEALTH; HUMANS; MALE; MIDDLE AGED; PATIENT COMPLIANCE; PROSTATE; PROSTATIC NEOPLASMS; TISSUE BANKS; YOUNG ADULT;

EID: 67650575643     PISSN: 14644096     EISSN: 1464410X     Source Type: Journal    
DOI: 10.1111/j.1464-410X.2009.08666.x     Document Type: Article

References (24)

1. Bates BR, Lynch JA, Bevan JL, Condit CM. Warranted concerns, warranted outlooks: a focus group study of public understandings of genetic research. Soc Sci Med 2005 60 : 331 44
2. Michie S, Drake H, Bobrow M, Marteau T. A comparison of public and professionals' attitudes towards genetic developments. Public Understand Sci 1995 4 : 243 55
3. Oosterhuis JW, Coebergh JW, van Veen EB. Tumour banks: well-guarded treasures in the interest of patients. Nat Rev Cancer 2003 3 : 73 7
4. Cousins G, McGee H, Ring L et al. Public Perceptions of Biomedical Research. Dublin : Health Research Board, 2005
5. Chen DT, Rosenstein DL, Muthappan P et al. Research with stored biological samples: what do research participants want? Arch Intern Med 2005 165 : 652 5
6. Ford BM, Evans JS, Stoffel EM, Balmana J, Regan MM, Syngal S. Factors associated with enrolment in cancer genetics research. Cancer Epidemiol Biomarkers Prev 2006 15 : 1355 9
7. Pituskin E, Dabbs K, Danyluk J et al. Breast cancer patient participation in clinical trials after participation in PolyomX tissue banking. Proc Am Soc Clin Oncol 2003 22 : 561
8. Gillon R. Fully informed consent, clinical trials, and the boundaries of therapeutic discretion. In Doyal L, Tobias JS, Informed Consent in Medical Research. London : BMJ Books, 2001 : 256 65
9. Wendler D. One-time general consent for research on biological samples. BMJ 2006 332 : 544 7
10. Kaphingst KA, Janoff JM, Harris LN, Emmons KM. Views of female breast cancer patients who donated biologic samples regarding storage and use of samples for genetic research. Clin Genet 2006 69 : 393 8
11. Chan ECY, Vernon SW, O'Donnell FT, Ahn C, Greisinger A, Aga DW. Informed consent for cancer screening with prostate-specific antigen. How well are men getting the message? Am J Public Health 2003 93 : 779 85
12. Nicholas DR. Men, masculinity, and cancer: risk-factor behaviors, early detection, and psychosocial adaptation. J Am Coll Health 2000 49 : 27 33
13. Ferguson E. Conscientiousness, emotional stability, perceived control and the frequency, recency, rate and years of blood donor behaviour. Br J Health Psychol 2004 9 : 293 314 (Pubitemid 39277404)
14. Godin G, Sheeran P, Conner M et al. Factors explaining the intention to give blood among the general population. Vox Sang 2005 89 : 140 9
15. Skirton H, Frazier LQ, Calvin AO, Cohen MZ. A legacy for the children - attitudes of older adults in the united Kingdom to genetic testing. J Clin Nurs 2006 15 : 565 73
16. Petty RE, Cacioppo JT. The elaboration likelihood model of persuasion. Adv Exp Soc Psychol 1986 19 : 123 205
17. Zaller J. The Nature and Origins of Mass Opinion. Cambridge : Cambridge University Press, 1992
18. Hansson MG, Dillner J, Bartrarn CR, Carlson JA, Helgesson G. Should donors be allowed to give broad consent to future biobank research? Lancet Oncol 2006 7 : 266 9
19. Hoeyer K, Olofsson BO, Mjorndal T, Lynoe N. Informed consent and biobanks: a population-based study of attitudes towards tissue donation for genetic research. Scand J Public Health 2004 32 : 224 9
20. Kettis-Linblad A, Ring L, Viberth E, Hansson MG. Genetic research and donation of tissue samples to biobanks. What do potential sample donors in the Swedish general public think? Eur J Public Health 2006 16 : 433 40
21. HMSO. Human Tissue Act 2004. London : HMSO, 2004
22. Scottish Executive. Human Tissue (Scotland) Act 2006. Edinburgh : Scottish Executive, 2006
23. Underwood JCE. The impact on histopathology practice of new human tissue legislation in the UK. Histopathology 2006 49 : 221 8
24. Department of Health & Children. Consultation on Development of Proposals for Human Tissue Legislation. Dublin : Department of Health & Children, 2008. Available at: http://www.dohc.ie/issues/pmpp/Consultation-on- Legislative-Scope-Final.pdf. Accessed September 2008