How do cancer registries in Europe estimate completeness of registration?

Methods of Information in Medicine

Volumn 48, Issue 3, 2009, Pages 267-271

  Schmidtmann, I ^a   Blettner, M ^a  

^a JOHANNES GUTENBERG UNIVERSITY   (Germany)

Author keywords

Cancer registry; Quality indicators; Survey

Indexed keywords

ARTICLE; EUROPE; HEALTH CARE QUALITY; HUMAN; INFORMATION PROCESSING; NEOPLASM; REGISTER; STANDARD;

DATA COLLECTION; EUROPE; HUMANS; NEOPLASMS; QUALITY INDICATORS, HEALTH CARE; REGISTRIES;

EID: 67650491611     PISSN: 00261270     EISSN: None     Source Type: Journal    
DOI: 10.3414/ME0559     Document Type: Article

References (30)

1. Parkin DM, Chen VW, Ferlay J, Galceran J, Storm HH, Whelan SL. Comparability and Quality Control in Cancer Registration. Lyon: IARC Press; 1994.
2. Robles SC, Marrett LD, Clarke EA, Risch HA. An application of capture-recapture methods to the estimation of completeness of cancer registration. J Clin Epidemiol 1988; 41 (5): 495-501.
3. Brenner H, Stegmaier C, Ziegler H. Estimating completeness of cancer registration in Saarland/ Germany with capture-recapture methods. Eur J Cancer 1994; 30A (11): 1659-1663.
4. Brenner H, Stegmaier C, Ziegler H. Estimating completeness of cancer registration: an empirical evaluation of the two source capture-recapture approach in Germany. J Epidemiol Community Health 1995; 49 (4): 426-430.
5. Berghold A, Stronegger WJ, Wernecke KD. A model and application for estimating completeness of registration. Methods Inf Med 2001; 40 (2): 122-126.
6. Schouten LJ, Straatman H, Kiemeney LA, Gimbrere CH, Verbeek AL. The capture-recapture method for estimation of cancer registry completeness: a useful tool? Int J Epidemiol 1994; 23 (6): 1111-1116.
7. Tilling K. Capture-recapture methods - useful or misleading? Int J Epidemiol 2001; 30 (1): 12-14.
8. Brenner H. Application of capture-recapture methods for disease monitoring: potential effects of imperfect record linkage. Methods Inf Med 1994; 33 (5): 502-506.
9. Bullard J, Coleman MP, Robinson D, Lutz JM, Bell J, Peto J. Completeness of cancer registration: a new method for routine use. Br J Cancer 2000; 82 (5): 1111-1116.
10. Haberland J, Bertz J, Görsch B, Schön D. Krebsinzidenzschä tzungen für Deutschland mittels log-linearer Modelle. Gesundheitswesen 2001; 63 (8-9): 556-560.
11. Haberland J, Schön D, Bertz J, Görsch B. Vollzä hligkeitsschätzungen von Krebsregisterdaten in Deutschland. Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz 2003; 46 (9): 770-774.
12. Colonna M, Grosclaude P, Faivre J, Revzani A, Arveux P, Chaplain G, et al. Cancer registry data based estimation of regional cancer incidence: application to breast and colorectal cancer in French administrative regions. J Epidemiol Community Health 1999; 53 (9): 558-564.
13. Mattauch V. Strukturanalyse des Epidemiologischen Krebsregisters für den Regierungsbezirk Münster: Identifikation von Schwachstellen und Konzepte für eine kontinuierliche Qualitätssicherung. Münster: Inauguraldissertation. Medizinische Fakultät der Westfälischen Wilhelms-Universität Münster; 2005.
14. Silcocks PB, Robinson D. Completeness of ascertainment by cancer registries: putting bounds on the number of missing cases. J Public Health 2004; 26 (2): 161-167.
15. Ajiki W, Tsukuma H, Oshima A. Index for evaluating completeness of registration in populationbased cancer registries and estimation of registration rate at the Osaka Cancer Registry between 1966 and 1992 using this index (in Japanese). Nippon Koshu Eisei Zasshi 1998; 45 (10): 1011-1017.
16. Kamo K, Kaneko S, Satoh K, Yanagihara H, Mizuno S, Sobue T. A mathematical estimation of true cancer incidence using data from population-based cancer registries. Jpn J Clin Oncol 2007; 37 (2): 150-155. (Pubitemid 47090714)
17. Silcocks PB, Robinson D. Simulation modelling to validate the flow method for estimating completeness of case ascertainment by cancer registries. J Public Health 2007; 29 (4): 455-462.
18. Schmidtmann I. Estimating completeness in cancer registries - comparing capture-recapture methods in a simulation study. Biom J 2008; 50 (6): 1077-1092.
19. International Association of Cancer Registries. IACR Membership List. International Association of Cancer Registries Homepage 2006 (cited 2006 Aug 9). Available from: URL: http://www.iacr.com.Fr
20. Tyczynski JE, Demaret E, Parkin DM. Standards and Guidelines for cancer registration. Lyon: IARC Press; 2003.
21. European Network of Cancer Registries. ENCR Membership List. European Network of Cancer Registries Homepage 2006 (cited 2006 Aug 9). Available from: URL: http://www.encr.com.fr/
22. UN Population Division. Definition of Major Areas and Regions. UN Population Division Homepage 2007 (cited 2007 Aug 10). Available from: URL: http://esa.un.org/unpp/index.asp?panel=5
23. Crocetti E, Miccinesi G, Paci E, Zappa M. An application of the two-source capture-recapture method to estimate the completeness of the Tuscany Cancer Registry, Italy 4. Eur J Cancer Prev 2001; 10 (5): 417-423.
24. Schouten LJ, Hoppener P, van den Brandt PA, Knottnerus JA, Jager JJ. Completeness of cancer registration in Limburg, The Netherlands. Int J Epidemiol 1993; 22 (3): 369-376.
25. Brewster DH, Crichton J, Harvey JC, Dawson G. Completeness of case ascertainment in a Scottish regional cancer registry for the year 1992. Public Health 1997; 111 (5): 339-343.
26. Lund E. Pilot study for the evaluation of completeness of reporting to the cancer registry. Incidence of Cancer in Norway 1978. Oslo: The Cancer Registry of Norway; 1981. pp 11-14.
27. Helseth A, Langmark F, Mork SJ. Neoplasms of the central nervous system in Norway. I. Quality control of the registration in the Norwegian Cancer Registry. APMIS 1988; 96 (11): 1002-1008.
28. Mork J, Thoresen S, Faye-Lund H, Langmark F, Glattre E. Head and neck cancer in Norway. A study of the quality of the Cancer Registry of Norway's data on head and neck cancer for the period 1953-1991. APMIS 1995; 103 (5): 375-382.
29. Harvei S, Tretli S, Langmark F. Quality of prostate cancer data in the cancer registry of Norway. Eur J Cancer 1996; 32A (1): 104-110.
30. Tingulstad S, Halvorsen T, Norstein J, Hagen B, Skjeldestad FE. Completeness and accuracy of registration of ovarian cancer in the cancer registry of Norway1. Int J Cancer 2002; 98 (6): 907-911.