The economic consequences of narcolepsy

Journal of Clinical Sleep Medicine

Volumn 5, Issue 3, 2009, Pages 240-245

  Jennum, Poul ^a   Knudsen, Stine ^a   Kjellberg, Jakob ^b  

^a UNIVERSITY OF COPENHAGEN   (Denmark)

^b Dansk Sundhedsinstitut   (Denmark)

Author keywords

Consequences; Epidemiology; Medication; Narcolepsy; Social economics

Indexed keywords

ARTICLE; COST BENEFIT ANALYSIS; COST OF ILLNESS; DENMARK; ECONOMIC ASPECT; EDUCATION; HOSPITALIZATION COST; HUMAN; INCOME; NARCOLEPSY; PENSION; REGISTRATION;

EID: 67650447016     PISSN: 15509389     EISSN: 15509397     Source Type: Journal    
DOI: 10.5664/jcsm.27493     Document Type: Article

References (36)

1. Dauvilliers Y, Arnulf I, Mignot E. Narcolepsy with cataplexy. Lancet 2007;369:499-511.
2. Knudsen S, Mikkelsen JD, Jennum P. Antibodies in narcolepsycataplexy patient serum bind to rat hypocretin neurons. Neuroreport 2007;18:77-79 (Pubitemid 46188214)
3. Overeem S, Black JL, 3rd, Lammers GJ. Narcolepsy: immunological aspects. Sleep Med Rev 2008;12:95-107.
4. Knudsen S, Jennum PJ. [Narcolepsy - new implications of molecular biology]. Ugeskr Laeger 2006;168:3699-3704
5. Kryger MH, Walid R, Manfreda J. Diagnoses received by narcolepsy patients in the year prior to diagnosis by a sleep specialist. Sleep 2002;25:36-41. (Pubitemid 34072657)
6. Broughton R, Valley V, Aguirre M, Roberts J, Suwalski W, Dunham W. Excessive daytime sleepiness and the pathophysiology of narcolepsy-cataplexy: a laboratory perspective. Sleep 1986;9:205-215 (Pubitemid 18008497)
7. Dodel R, Peter H, Spottke A, et al. Health-related quality of life in patients with narcolepsy. Sleep Med 2007;8:733-741 (Pubitemid 47553545)
8. Dodel R, Peter H, Walbert T, et al. The socioeconomic impact of narcolepsy. Sleep 2004;27:1123-1128
9. Ervik S, Abdelnoor M, Heier MS, Ramberg M, Strand G. Health-related quality of life in narcolepsy. Acta Neurol Scand 2006;114:198-204.
10. Daniels E, King MA, Smith IE, Shneerson JM. Health-related quality of life in narcolepsy. J Sleep Res 2001;10:75-81.
11. Goswami M. The influence of clinical symptoms on quality of life in patients with narcolepsy. Neurology 1998;50:S31-6. (Pubitemid 28100865)
12. Stores G, Montgomery P, Wiggs L. The psychosocial problems of children with narcolepsy and those with excessive daytime sleepiness of uncertain origin. Pediatrics 2006;118:e1116-23. (Pubitemid 46393760)
13. Efron B, Tibshirani RJ. An Introduction to the Bootstrap. Boca Raton, FL: CRC Press; 1993.
14. Aldrich CK, Aldrich MS, Aldrich TK, Aldrich RF. Asleep at the wheel. The physician's role in preventing accidents 'just waiting to happen'. Postgrad Med 1986;80:233-5, 8, 40.
15. Aldrich MS. Automobile accidents in patients with sleep disorders. Sleep 1989;12:487-494 (Pubitemid 20009376)
16. Bartels EC, Kusakcioglu O. Narcolepsy: a possible cause of automobile accidents. Lahey Clin Found Bull 1965;14:21-26
17. Findley L, Unverzagt M, Guchu R, Fabrizio M, Buckner J, Suratt P. Vigilance and automobile accidents in patients with sleep apnea or narcolepsy. Chest 1995;108:619-624
18. Grubb TC. Narcolepsy and highway accidents. JAMA 1969;209:1720.
19. Wright J, Johns R, Watt I, Melville A, Sheldon T. Health effects of obstructive sleep apnoea and the effectiveness of continuous positive airways pressure: a systematic review of the research evidence. BMJ 1997;314:851-860 (Pubitemid 27182017)
20. Beusterien KM, Rogers AE, Walsleben JA, et al. Health-related quality of life effects of modafinil for treatment of narcolepsy. Sleep 1999;22:757-765 (Pubitemid 29445343)
21. Reimer MA, Flemons WW. Quality of life in sleep disorders. Sleep Med Rev 2003;7:335-349
22. Vignatelli L, D'Alessandro R, Mosconi P, et al. Health-related quality of life in Italian patients with narcolepsy: the SF-36 health survey. Sleep Med 2004;5:467-475 (Pubitemid 39194057)
23. Lammers GJ, Overeem S, Bassetti C. Re: Silber MH, Krahn LE, Olson EJ. Diagnosing narcolepsy: validity and reliability of new diagnostic criteria. Sleep Med. 2002 Mar;3(2):109-13. Sleep Med 2002;3:531-2; author reply 3-4.
24. Silber MH, Krahn LE, Olson EJ. Diagnosing narcolepsy: validity and reliability of new diagnostic criteria. Sleep Med 2002;3:109-13. (Pubitemid 34303106)
25. Vignatelli L, Plazzi G, Bassein L, et al. ICSD diagnostic criteria for narcolepsy: interobserver reliability. Intemational Classification of Sleep Disorders. Sleep 2002;25:193-196 (Pubitemid 34193580)
26. Matsuki K, Honda Y, Juji T. Diagnostic criteria for narcolepsy and HLA-DR2 frequencies. Tissue Antigens 1987;30:155-160 (Pubitemid 17160904)
27. Bassetti C, Gugger M, Bischof M, et al. The narcoleptic borderland: a multimodal diagnostic approach including cerebrospinal fluid levels of hypocretin-1 (orexin A). Sleep Med 2003;4:7-12. (Pubitemid 36284870)
28. Baumann CR, Khatami R, Werth E, Bassetti CL. Hypocretin (orexin) deficiency predicts severe objective excessive daytime sleepiness in narcolepsy with cataplexy. J Neurol Neurosurg Psychiatry 2006;77:402-404 (Pubitemid 43295171)
29. Heier MS, Evsiukova T, Vilming S, Gjerstad MD, Schrader H, Gautvik K. CSF hypocretin-1 levels and clinical profiles in narcolepsy and idiopathic CNS hypersomnia in Norway. Sleep 2007;30:969-973 (Pubitemid 47221896)
30. Kunimoto M. The level of hypocretin 1 (orexin A) in cerebrospinal fluid and the diagnosis of narcolepsy and other somnolent disorders. Intern Med 2003;42:634-635 (Pubitemid 37021191)
31. Mignot E, Chen W, Black J. On the value of measuring CSF hypocretin-1 in diagnosing narcolepsy. Sleep 2003;26:646-649
32. Mignot E, Lammers GJ, Ripley B, et al. The role of cerebrospinal fluid hypocretin measurement in the diagnosis of narcolepsy and other hypersomnias. Arch Neurol 2002;59:1553-1562
33. Billiard M, Bassetti C, Dauvilliers Y, et al. EFNS guidelines on management of narcolepsy. Eur J Neurol 2006;13:1035-1048
34. Becker PM, Schwartz JR, Feldman NT, Hughes RJ. Effect of modafinil on fatigue, mood, and health-related quality of life in patients with narcolepsy. Psychopharmacology (Berl) 2004;171:133-139 (Pubitemid 38134649)
35. Murali H, Kotagal S. Off-label treatment of severe childhood narcolepsy-cataplexy with sodium oxybate. Sleep 2006;29:1025-1029 (Pubitemid 44257379)
36. Weaver TE, Cuellar N. A randomized trial evaluating the effectiveness of sodium oxybate therapy on quality of life in narcolepsy. Sleep 2006;29:1189-1194 (Pubitemid 44484812)