Interdisciplinary structural follow-up of surgical newborns: a prospective evaluation

Journal of Pediatric Surgery

Volumn 44, Issue 7, 2009, Pages 1382-1389

  Gischler, Saskia J ^a   Mazer, Petra ^a   Duivenvoorden, Hugo J ^a   van Dijk, Monique ^a   Bax, Nikolaas M A ^a   Hazebroek, Frans W J ^a   Tibboel, Dick ^a  

^a ERASMUS MEDICAL CENTER   (Netherlands)

Author keywords

Congenital anomalies; Follow up; Neonatal intensive care; Outcome

Indexed keywords

ARTICLE; BODY HEIGHT; BODY WEIGHT; BRAIN HEMORRHAGE; BRAIN INFARCTION; CHILD; CHILD DEVELOPMENT; CONGENITAL DIAPHRAGM HERNIA; CONGENITAL MALFORMATION; DEMOGRAPHY; ESOPHAGUS ATRESIA; FEMALE; FOLLOW UP; GASTROESOPHAGEAL REFLUX; GROWTH CURVE; HUMAN; INFANT; MAJOR CLINICAL STUDY; MALE; MATERNAL AGE; MENTAL DEVELOPMENT; NEUROLOGIC DISEASE; NEUROLOGICAL COMPLICATION; PEDIATRIC HOSPITAL; PRESCHOOL CHILD; PRIORITY JOURNAL; PROSPECTIVE STUDY; PSYCHOMOTOR DEVELOPMENT; RECURRENT INFECTION; RESPIRATORY TRACT INFECTION; SEPSIS; SOCIAL ASPECT; SOCIAL STATUS; SURGERY; TERTIARY HEALTH CARE; TRACHEOSTOMY;

CHILD DEVELOPMENT; CHILD, PRESCHOOL; CONFIDENCE INTERVALS; CONGENITAL ABNORMALITIES; FEMALE; FOLLOW-UP STUDIES; GESTATIONAL AGE; HUMANS; INFANT; INFANT, NEWBORN; INTENSIVE CARE, NEONATAL; INTERDISCIPLINARY COMMUNICATION; MALE; PROGNOSIS; PROSPECTIVE STUDIES;

EID: 67649522807     PISSN: 00223468     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jpedsurg.2008.12.034     Document Type: Article

References (40)

1. Statistics Netherlands. Vademecum of health statistics of the Netherlands (2003), Ministry of Health Welfare and Sports, Voorburg/Heerlen
2. Hazebroek F.W., Bouman N.H., and Tibboel D. The neonate with major malformations: experiences in a university children's hospital in the Netherlands. Semin Pediatr Surg 10 4 (2001) 222-229
3. Bouman N.H., Koot H.M., and Hazebroek F.W. Long-term physical, psychological, and social functioning of children with esophageal atresia. J Pediatr Surg 34 3 (1999) 399-404
4. Bouman N.H., Koot H.M., Tibboel D., et al. Children with congenital diaphragmatic hernia are at risk for lower levels of cognitive functioning and increased emotional and behavioral problems. Eur J Pediatr Surg 10 1 (2000) 3-7
5. Hauser-Cram P, Warfield ME, Shonkoff JP, et al. Children with disabilities: a longitudinal study of child development and parent well-being. Monogr Soc Res Child Dev 2001;66(3):i-viii, 1-126.
6. Poley M.J., Stolk E.A., Tibboel D., et al. Short term and long term health related quality of life after congenital anorectal malformations and congenital diaphragmatic hernia. Arch Dis Child 89 9 (2004) 836-841
7. van Rijen E.H., Utens E.M., Roos-Hesselink J.W., et al. Psychosocial functioning of the adult with congenital heart disease: a 20-33 years follow-up. Eur Heart J 24 7 (2003) 673-683
8. Ens-Dokkum M.H., Schreuder A.M., Veen S., et al. Evaluation of care for the preterm infant: review of literature on follow-up of preterm and low birthweight infants. Report from the collaborative Project on Preterm and Small for Gestational Age Infants (POPS) in The Netherlands. Paediatr Perinat Epidemiol 6 4 (1992) 434-459
9. Gyler L., Dudley M., Blinkhorn S., et al. The relationship between psychosocial factors and developmental outcome for very low and extremely low birthweight infants: a review. Aust N Z J Psychiatry 27 1 (1993) 62-73
10. Hack M., Taylor H.G., Drotar D., et al. Chronic conditions, functional limitations, and special health care needs of school-aged children born with extremely low-birth-weight in the 1990s. JAMA 294 3 (2005) 318-325
11. Hemgren E., and Persson K. Associations of motor co-ordination and attention with motor-perceptual development in 3-year-old preterm and full-term children who needed neonatal intensive care. Child Care Health Dev 33 1 (2007) 11-21
12. Vohr B.R., O'Shea M., and Wright L.L. Longitudinal multicenter follow-up of high-risk infants: why, who, when, and what to assess. Semin Perinatol 27 4 (2003) 333-342
13. Follow-up care of high-risk infants. Pediatrics 114 5 (2004) 1377-1397
14. Bouman N.H. The psychosocial adjustment of children with major congenital abdominal anomalies (1999), Sophia Childrens Hospital, Erasmus University, Rotterdam
15. Cortes R.A., Keller R.L., Townsend T., et al. Survival of severe congenital diaphragmatic hernia has morbid consequences. J Pediatr Surg 40 1 (2005) 36-45 [discussion -6]
16. Bai Y., Chen H., Hao J., et al. Long-term outcome and quality of life after the Swenson procedure for Hirschsprung's disease. J Pediatr Surg 37 4 (2002) 639-642
17. Bai Y., Yuan Z., Wang W., et al. Quality of life for children with fecal incontinence after surgically corrected anorectal malformation. J Pediatr Surg. 35 3 (2000) 462-464
18. Davies B.W., and Stringer M.D. The survivors of gastroschisis. Arch Dis Child. 77 2 (1997) 158-160
19. Deurloo J.A., Ekkelkamp S., Hartman E.E., et al. Quality of life in adult survivors of correction of esophageal atresia. Arch Surg 140 10 (2005) 976-980
20. Kaltman J.R., Jarvik G.P., Bernbaum J., et al. Neurodevelopmental outcome after early repair of a ventricular septal defect with or without aortic arch obstruction. J Thorac Cardiovasc Surg 131 4 (2006) 792-798
21. Limperopoulos C., Majnemer A., Shevell M.I., et al. Predictors of developmental disabilities after open heart surgery in young children with congenital heart defects. J Pediatr 141 1 (2002) 51-58
22. Ravitch M.M., and Barton B.A. The need for pediatric surgeons as determined by the volume of work and the mode of delivery of surgical care. Surgery 76 5 (1974) 754-763
23. Cullen D.J., Civetta J.M., Briggs B.A., et al. Therapeutic Intervention Scoring System: a method for quantitative comparison of patient care. Crit Care Med 2 2 (1974) 57-60
24. Keene A.R., and Cullen D.J. Therapeutic Intervention Scoring System: update 1983. Crit Care Med 11 1 (1983) 1-3
25. Statistics Netherlands. Standaard Beroepenclassificatie, standard classification of education and professions 1992.
26. Fredriks A.M., van Buuren S., Burgmeijer R.J., et al. Continuing positive secular growth change in The Netherlands 1955-1997. Pediatr Res 47 3 (2000) 316-323
27. Bierman-van Eendenburg M.E., Jurgens-van der Zee A.D., Olinga A.A., et al. Predictive value of neonatal neurological examination: a follow-up study at 18 months. Dev Med Child Neurol 23 3 (1981) 296-305
28. Touwen B.C. A study on the development of some motor phenomena in infancy. Dev Med Child Neurol 13 4 (1971) 435-446
29. Touwen B.C.L. Examination of the child with minor neurological dysfunctions. Clin Dev Med 71 (1979) 1-141
30. Bayley N. Manual for the Bayley Scales of Infant Development (1969), The Psychological Corp, New York: NY
31. Van der Meulen B.F., and Smrkovsky M. De Bayley Ontwikkelings Schalen (BOS2-30). Handleiding (1983), Swets and Zeitlinger, Lisse, the Netherlands
32. Bock R. Multivariate statistical methods (1975), McGraw-Hill, New York
33. Little R. Modeling for dropout mechanism in repeated-measures studies. J Amer Statistical Assoc 90 (1995) 1112-1121
34. Little R., and Rubin D. Statistical analysis with missing data (1987), Wiley, New York
35. Schafer J. Analysis of incomplete multivariate data (1997), Chapman and Hall, New York
36. Verbeke G., and Molenberg G. Linear mixed models for longitudinal data (2000), Springer, Berlin
37. Jaillard S.M., Pierrat V., Dubois A., et al. Outcome at 2 years of infants with congenital diaphragmatic hernia: a population-based study. Am Thorac Surg 75 1 (2008 Jan) 250-256
38. Lally K.P., and Engle W. Postdischarge follow-up of infants with congenital diaphragmatic hernia. Pediatrics 121 3 (2008) 627-632
39. Hamid C.H., Holland A.J., and Martin H.C. Long-term outcome of anorectal malformations: the patient perspective. Pediatr Surg Int 23 2 (2007) 97-102
40. Goyal A., Williams J.M., Kenny S.E., et al. Functional outcome and quality of life in anorectal malformations. J Pediatr Surg 41 2 (2006) 318-322