Being an XY female: An analysis of accounts from the website of the androgen insensitivity syndrome support group

Health Care for Women International

Volumn 30, Issue 5, 2009, Pages 428-446

  Garrett, Cameryn C ^a   Kirkman, Maggie ^a  

^a UNIVERSITY OF MELBOURNE   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

ADAPTIVE BEHAVIOR; ANDROGEN INSENSITIVITY SYNDROME; ARTICLE; FEMALE; GENDER IDENTITY; HUMAN; INTERNET; LIFESTYLE; LITERATURE; MALE; PERCEPTION; PSYCHOLOGICAL ASPECT; SELF CONCEPT; SELF HELP; SOCIAL PSYCHOLOGY; TRANSSEXUALISM; UTILIZATION REVIEW;

ADAPTATION, PSYCHOLOGICAL; ANDROGEN-INSENSITIVITY SYNDROME; ANECDOTES AS TOPIC; FEMALE; GENDER IDENTITY; HUMANS; INTERNET; LIFE STYLE; MALE; SELF CONCEPT; SELF-HELP GROUPS; SOCIAL PERCEPTION; STEREOTYPING; TRANSSEXUALISM;

EID: 67649213872     PISSN: 07399332     EISSN: 10964665     Source Type: Journal    
DOI: 10.1080/07399330902785380     Document Type: Article

References (31)

1. Achermann, J. C., & Jameson, L. J. (2004). Disorders of sexual differentiation. In D. L. Kasper, E. Braunwald, A. S. Fauci, S. L. Hauser, D. L. Longo, J. L. Jameson, & K. J. Isselbacher (Eds.), Harrison's principles of internal medicine online (16th ed.). New York: McGraw Hill. Retrieved from http://www.accessmedicine.com/ content.aspx?aID=100343
2. Alderson, J., Madill, A., & Balen, A. (2004). Fear of devaluation: Understanding the experience of intersexed women with Androgen Insensitivity Syndrome. British Journal of Health Psychology, 9, 81-100.
3. Anonymous. (1994a). Be open and honest with sufferers. British Medical Journal, 308, 1041-1042.
4. Anonymous. (1994b). Once a dark secret. British Medical Journal, 308, 542.
5. Braun, V., & Wilkinson, S. (2005). Vagina equals woman? On genitals and gendered identity. Women's Studies International Forum, 28, 509-522.
6. Brockmeier, J., & Carbaugh, D. (Eds.). (2001). Narrative and identity: Studies in autobiography, self and culture. Amsterdam: John Benjamins.
7. Byne, W. (2006). Developmental endocrine influences on gender identity: Implications for management of disorders of sex development. Mount Sinai Journal of Medicine, 73, 950-959.
8. Cohen-Kettenis, P. (2005). Psychological long-term outcome in intersex conditions. Hormone Research, 64(Suppl. 2), 27-30.
9. Davis, D. R., & Jansen, G. G. (1998). Making meaning of Alcoholics Anonymous for social workers: Myths, metaphors, and realities. Social Work, 43, 169-182.
10. Diamond, M., & Watson, L. A. (2004). Androgen Insensitivity Syndrome and Kline-felter's Syndrome: Sex and gender considerations. Child and Adolescent Psychiatric Clinics of North America, 13, 623-640.
11. Frank, A. (1995). The wounded storyteller: Body, illness, and ethics. Chicago: University of Chicago Press.
12. Freedman, J., & Combs, G. (1996). Narrative therapy: The social construction of preferred realities. New York: Norton.
13. Goffman, E. (1963). Stigma.Englewood Cliffs, NJ: Prentice-Hall.
14. Hines, M., Ahmed, S. F., & Hughes, I. A. (2003). Psychological outcomes and gender-related development in Complete Androgen Insensitivity Syndrome. Archives of Sexual Behavior, 32, 93-101.
15. Hubbard, R. (1996). Gender and genitals: Constructs of sex and gender. Social Text, 46/47, 157-165.
16. Kermode, F. (1967). The sense of an ending: Studies in the theory of fiction. London: Oxford University Press.
17. Kirkman, M. (2001). Thinking of something to say: Public and private narratives of infertility. Health Care for Women International, 22, 523-535.
18. Kirkman, M. (2002). Moving on, living in the subjunctive mode: Revising autobiographical narratives after infertility. Meridian, 18(2), 59-82.
19. Kirkman, M. (2003). Infertile women and the narrative work of mourning: Barriers to the revision of autobiographical narratives of motherhood. Narrative Inquiry, 13, 243-262.
20. Laqueur, T. (1990). Making sex: Body and gender from the Greeks to Freud. Cambridge, MA: Harvard University Press.
21. Mart́inez-Patiño, M. J. (2005). Personal account: A woman tried and tested. Lancet, 366(Suppl. 1), S38.
22. Mazur, T. (2005). Gender dysphoria and gender change in androgen insensitivity or micropenis. Archives of Sexual Behavior, 34, 411-421.
23. Melo, K. F., Mendonca, B. B., Billerbeck, A. E., Costa, E. M., Inacio, M., Silva, F. A., et al. (2003). Clinical, hormonal, behavioral, and genetic characteristics of Androgen Insensitivity Syndrome in a Brazilian cohort: Five novel mutations in the androgen receptor gene. Journal of Clinical Endocrinology and Metabolism, 88, 3241-3250.
24. Meyer-Bahlburg, H. F. (2005). Gender dysphoria and gender change in persons with intersexuality. Archives of Sexual Behavior, 34, 371-373.
25. Preves, S. E. (2003). Intersex and identity: The contested self. New Brunswick, NJ: Rutgers University Press.
26. Rimmon-Kenan, S. (2002). The story of 'I': Illness and narrative identity. Narrative, 10, 9-27.
27. Sax, L. (2002). How common is intersex? A response to Anne Fausto-Sterling. Journal of Sex Research, 39, 174-178.
28. Slijper, F. M. E., Frets, P. G., Boehmer, A. L. M., & Drop, S. L. S. (2000). Androgen Insensitivity Syndrome (AIS): Emotional reactions of parents and adult patients to the clinical diagnosis of AIS and its confirmation by androgen receptor gene mutation analysis. Hormone Research, 53, 9-15.
29. Urcuyo, K. R., Boyers, A. E., Carver, C. S., & Antoni, M. H. (2005). Finding benefit in breast cancer: Relations with personality, coping, and concurrent well-being. Psychology and Health, 20, 175-192.
30. Ussher, J., Kirsten, L., Butow, P., & Sandoval, M. (2006). What do cancer support groups provide which other supportive relationships do not? The experience of peer support groups for people with cancer. Social Science & Medicine, 62, 2565-2576.
31. Wisniewski, A. B., Migeon, C. J., Meyer-Bahlburg, H. F., Gearhart, J. P., Berkovitz, G. D., Brown, T. R., et al. (2000). Complete Androgen Insensitivity Syndrome: Long-term medical, surgical, and psychosexual outcome. Journal of Clinical Endocrinology and Metabolism, 85, 2664-2669.