Quality of Life in Adult Survivors Greater Than 10 Years After Pediatric Heart Transplantation

Journal of Heart and Lung Transplantation

Volumn 28, Issue 7, 2009, Pages 661-666

  Petroski, Rebecca A ^a   Grady, Kathleen L ^b   Rodgers, Sherrie ^a   Backer, Carl L ^c   Kulikowska, Agnieszka ^d   Canter, Charles ^d   Pahl, Elfriede ^a  

^a CHILDREN'S MEMORIAL HOSPITAL   (United States)

^b NORTHWESTERN MEMORIAL HOSPITAL   (United States)

^c NORTHWESTERN UNIVERSITY   (United States)

^d WASHINGTON UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ACUTE GRAFT REJECTION; ADULT; AGE DISTRIBUTION; ARTICLE; CLINICAL ARTICLE; CLINICAL TRIAL; CORONARY ARTERY DISEASE; FEMALE; GROUPS BY AGE; HEALTH; HEALTH SURVEY; HEART ARRHYTHMIA; HEART TRANSPLANTATION; HUMAN; KIDNEY TRANSPLANTATION; LYMPHOPROLIFERATIVE DISEASE; MALE; MEDICAL RECORD; MENTAL HEALTH; OUTCOME ASSESSMENT; POPULATION RESEARCH; PRIORITY JOURNAL; PROSPECTIVE STUDY; QUALITY OF LIFE; RECIPIENT; SCHOOL; SCORING SYSTEM; SEX RATIO; SURVIVOR; UNITED STATES;

ADOLESCENT; ADULT; ARRHYTHMIAS, CARDIAC; CHILD; CHILD, PRESCHOOL; CORONARY ARTERY DISEASE; FEMALE; FOLLOW-UP STUDIES; GRAFT REJECTION; HEALTH SURVEYS; HEART TRANSPLANTATION; HUMANS; INCIDENCE; LYMPHOPROLIFERATIVE DISORDERS; MALE; OUTCOME ASSESSMENT (HEALTH CARE); PILOT PROJECTS; PROSPECTIVE STUDIES; QUALITY OF LIFE; SELF CONCEPT; YOUNG ADULT;

EID: 67649094103     PISSN: 10532498     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.healun.2009.04.004     Document Type: Article

References (28)

1. Boucek M.M., Aurora P., Edwards L.B., et al. Registry of the International Society for Heart and Lung Transplantation: tenth official pediatric heart transplantation report--2007. J Heart Lung Transplant 26 (2007) 796-807
2. Ross M., Kouretas P., Gamberg P., et al. Ten- and 20-year survivors of pediatric orthotopic heart transplantation. J Heart Lung Transplant 25 (2006) 261-270
3. Uzark K.C., Sauer S.N., Lawrence K.S., Miller J., Addonizio L., and Crowley D.C. The psychosocial impact of pediatric heart transplantation. J Heart Lung Transplant 11 (1992) 1160-1167
4. Grady K., Naftel D., Kobashigawa J., et al. Patterns and predictors of quality of life at 5 to 10 years after heart transplantation. J Heart Lung Transplant 26 (2007) 535-543
5. Politi P., Piccinelli M., Poli F.P., et al. Ten years of "extended" life: quality of life among heart transplant survivors. Transplantation 78 (2004) 257-263
6. Karam V.H., Gasquet I., Delvart V., et al. Quality of life in adult survivors beyond 10 years after liver, kidney, and heart transplantation. Transplantation 76 (2003) 1699-1704
7. Aravot D., Berman M., Ben-Gal T., Sahar G., and Vidne B. Functional status and quality of life of heart transplant recipients surviving beyond 5 years. Transplant Proc 32 (2000) 731-732
8. Spilker B. Quality of life and pharmacoeconomics in clinical trials. 2nd ed. (1996), Lippincott Williams & Wilkens, New York
9. Ware Jr. J.E., Snow K.K., Kosinski M., and Gandek B. SF-36 Health Survey Manual and Interpretation Guide (1997), Quality Metric, Lincoln, RI
10. Cockcroft D.W., and Gault M.H. Prediction of creatinine clearance from serum creatinine. Nephron 16 (1976) 31-41
11. DeMaso D., Douglas K.S., Bastardi H., O'Brien P., and Blume E.D. The longitudinal impact of psychological functioning, medical severity, and family functioning in pediatric heart transplantation. J Heart Lung Transplant 23 (2004) 473-480
12. Simons L.E., Anglin G., Warshaw B.L., Mahle W.T., Vincent R.N., and Blount R.L. Understanding the pathway between the transplant experience and heath-related quality of life outcomes in adolescents. Pediatr Transplant 12 (2008) 187-193
13. Pahl E., Sundararaghavan S., Strasburger J., et al. Impaired exercise parameters in pediatric heart transplant recipients: comparison of biatrial and bicaval techniques. Pediatr Transplant 4 (2000) 268-272
14. White-Williams C., Jalowiec A., and Grady K. Who returns to work after heart transplantation?. J Heart Lung Transplant 24 (2005) 2255-2261
15. Lee C.K., Christensen L.L., Magee J.C., Ojo A.O., Harmon W.E., and Bridges N.D. Pre-transplant risk factors for chronic renal dysfunction after pediatric heart transplantation: a 10-year national cohort study. J Heart Lung Transplant 26 (2007) 458-465
16. Sigfússon G., Fricker F.J., Bernstein D., et al. Long-term survivors of pediatric heart transplantation: a multicenter report of sixty-eight children who have survived longer than five years. J Pediatr 130 (1997) 862-871
17. Littlefield C., Abbey S., Fiducia D., et al. Quality of life following transplantation of the heart, liver, and lungs. Gen Hosp Psychiatry 18 6 suppl (1996) 36S-47S
18. Pollock-BarZiv S.M., Anthony S.J., Niedra R., Dipchand A.I., and West L.J. Quality of life and function following cardiac transplantation in adolescents. Transplant Proc 35 (2003) 2468-2470
19. Deuse T., Haddad F., Pham M., et al. Twenty-year survivors of heart transplantation at Stanford University. Am J Transplant 8 (2008) 1769-1774
20. Mendoza F., Kunitake H., Laks H., and Odim J. Post-transplant lymphoproliferative disorder following pediatric heart transplantation. Pediatr Transplant 10 (2006) 60-66
21. Katz B.Z., Pahl E., Crawford S.E., et al. Case-control study of risk factors for the development of post-transplant lymphoproliferative disease in a pediatric heart transplant cohort. Pediatr Transplant 11 (2007) 58-65
22. Pahl E., Naftel D.C., Kuhn M.A., et al. The impact and outcome of transplant coronary artery disease in a pediatric population: a 9-year multi-institutional study. J Heart Lung Transplant 24 (2005) 645-651
23. Pahl E., Naftel D.C., Canter C.E., Frazier E.A., Kirklin J.K., and Morrow W.R. Death after rejection with severe hemodynamic compromise in pediatric heart transplant recipients: a multi-institutional study. J Heart Lung Transplant 20 (2001) 279-287
24. Alonso E.M. Long-term renal function in pediatric liver and heart recipients. Pediatr Transplant 8 (2004) 381-385
25. Chin C., Naftel D., Pahl E., et al. Cardiac re-transplantation in pediatrics: a multi-institutional study. J Heart Lung Transplant 25 (2006) 1420-1424
26. Webber S.A., Naftel D.C., Parker J., et al. Late rejection episodes more than 1 year after pediatric heart transplantation: risk factors and outcomes. J Heart Lung Transplant 22 (2003) 869-875
27. Cupples S., Dew M.A., Grady K.L., et al. Report of the Psychosocial Outcomes Workgroup of the Nursing and Social Sciences Council of the International Society for Heart and Lung Transplantation: present status of research on psychosocial outcomes in cardiothoracic transplantation: review and recommendations for the field. J Heart Lung Transplant 25 (2006) 716-725
28. Grady K., Naftel D., Young J., et al. Patterns and predictors of physical functional disability at 5 to 10 years after heart transplantation. J Heart Lung Transplant 26 (2007) 1182-1191